Problems: but you told me not to be a stranger.... :)

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gardenlady
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Date Joined May 2003
Total Posts : 3103
   Posted 2/26/2008 5:23 AM (GMT -7)   
Yeah, life is doing okay on the outside. I wasn't lying in the last update, no worries there. Kerry even says he wants to get married.

Problems. Trying Effexor for the anxiety, and I think...I think it's causing some odd side effects. That whole brain light switch thing, which I guess are called brain zaps according to wikipedia. Those have been bad, as has dizziness/vertigo. Pile on top of that some heart palpitations, and things are just not cool. Its the kind of thing where I feel my heart kinda hiccup a beat, then squeeze really hard to make up for it.

Tonight, I'm stuffy and snuffly and my throat is so sore I can hardly swallow. My arthritis has been kicking up an absolute b*****. Arms, hands, fingers, hips, knees, ankles...the other night it felt like I had somehow dislocated the middle joint in my index finger. I actually woke Kerry up pulling at it trying to get it to settle down.

I'm tired all the time, but I can't sleep. I know I should know better, but I got on wikipedia and started reading up on hypotension, since that was what Kerry was thinking of as a first line thing to check out. I went from there to mono, which I kinda doubt, but who knows....then I ran across Chronic Fatigue.

Anyone here got CFS along with their Crohn's? Man some of those symptoms sound familiar, and not in a recent kinda way. They sound like things i"ve been dealing with for a long time now, but just always figured I'd bull my way through.

Thing is, now, bulling my way through isn't working so hot.

Advice????
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Barbz
Veteran Member


Date Joined Jun 2005
Total Posts : 848
   Posted 2/26/2008 6:56 AM (GMT -7)   
How long have you been taken the anti depressent? When i started taking mine it sounds like i felt pretty much the same as you only i am taking paxil. The side effects went away after about the first 3 weeks. Hope you feel better soon good luck. Barb

Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 2/26/2008 9:16 AM (GMT -7)   
Are you getting cold feet on the marriage issue?
I feel your pain as far as the arthritis goes. Mine is just starting to settle down since kicking in last October. Plus the bloody Osteo has to be with me from now on. But enough about me, this is your problems we are talking about. You know I used to get some pretty weird side-eefects with the anti-depressents myself. I think that is where you need to go with that.
Sara, don't let all the worrying stress you out more! I'm not saying that is the cause of THESE CURRENT problems, but you know what stress does to all of us crohnies. ITS NOT PRETTY! I know its having an effect. Plus you always do so much. Maybe a bit too much?
Please don't get angry at me for pointing that out ( I think you know it anyway! LOL)

Most sincerely yours,
Matt.
PS.
Stop being such a stranger here!

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 2/26/2008 9:30 AM (GMT -7)   
Hey there stranger hehehehehehe...
I can't help on the Effexor, but I do sympathize! I was thinking about your palpitations, the stuffy snufflies and the joint pain though. I'm thinking about the sAme issues. i have the head and chest cold that won't leave, crippling knee and knuckle pain worse than I have ever had & weird heart feelings since mid january. I really think it may be the latest flu version causing all of it. it's the only thing I can come up with for me and wondering if you have the same problem. By the way...I ruled out nutritional issues but B12, K and iron can cause the heart issues and the joint issues from what I have experienced.

Chronic Fatigue...my brother in law was diagnosed with this. It seems that a lot of the symptoms match symptoms of other diseases so I can't justify it as a related disease. Plus....hate to say it but Wiki irks me in the misinformation possiblities.

Now about the wedding...woohoo. My husband is a pain, annoying & has a very different view on politics and finances BUT gotta love him. I want to hear about a happy wedding planner from you....I loved my "we're older, gonna have fun & not spend a lot of money" planning days.
Take Care
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 2/26/2008 12:29 PM (GMT -7)   
I'd be asleep like a good sicky, but my cockatiel won't shut the bloody he** up. Fed her, gave her water, and next step is throwing the heavier blanket over the cage.

no cold feet on the marriage thing -- we've been together for 8 years now, so pretty much everyone is looking at us saying "its about time." And kerry went' about it in his usual fashion -- not so much asking me, but suggesting it, like he might suggest we have ham for dinner. It's an unusual relationship we have, but it works. :)


If this is the flu it's a doozy -- i got the shot and everything this year, too.

I always double check my wiki -- but it IS a great place to start. I like the external links at the bottom of the articles and such. And they're pretty up front about telling you when something might not have the whole story, or might be biased or need editing.

I have a doc appt for tomorrow and he wants to run some tests...

Matthew: re: arthritis. I guess that's just my body telling me I can't get away with abusing the snot out of all ends of it fo rmost of my life and not pay for it somehow. I'v had problems with my joints since junior high, but this has been the worst year I can remember. It feels like someone put all my carpals in the wrong order. No worries -- you aren't the first person to tell me I stretch myself too thin! It's hard to realize how stressful some things are when I'm following my joy/passion, though.

I've also read that CFS and FMS are ridiculous hard to dx (sound familiar???).
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/26/2008 12:39 PM (GMT -7)   
Hi Gardenlady, Sorry you are not feeling well. When is the last time you saw your doctor?

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 2/26/2008 7:34 PM (GMT -7)   
like a month ago when I wound up on the effexor, and then a couple weeks after that i went to the guy who covers for my doc to discuss stopping smoking and the ol' kidney stone. so i've been in contact -- it's just frustrating when doc says call and we can try to handle things over the phone and then all the nurse says is "i'm going to make an appt for you." so basically, if i want help, i gotta go with the desk dragon.

take me with a largish grain of salt at the moment. i get really pissy when i'm sick and on top of that i'm trying to wind my way through the never ending maze of red tape that is americorps.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 2/26/2008 7:39 PM (GMT -7)   
Sara,

Unfortunately, the CDC goofed last year. There are currently 3 SEPERATE Flu strains active. I caught one last week, but the shot kept it minor. I had more problems with the bladder/ prostate issue the last several days. I just got a sore throat & the sniffles.

Re: Arthritis
Invisible entities ( demonic?) are trying to drive nails into my hands, hips, & feet. I'm sure you know that feeling..

Matthew

gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 2/26/2008 11:49 PM (GMT -7)   
Matthew: so my Mom told me this afternoon when I called her. My throat was so swollen last night it was awful, but I'm a bit better today as long as I keep chilling out and resting. Mom also mentioned that they're really beefing up next years flu shot. Sounds like closing the barn door after all the animals had themselves an escape to me, but I guess whatever makes people feel better. Mentally, that is.

And yeah. I know that feeling. Usually, if it's in my arms, that means the weather is going to get wet. If it's my legs, weather will be getting clear. Unfortunately I live in WA where this time of year, the weather can do all that and more in teh space of five minutes. Not that WA isn't a great place to live and all, it's just spring and fall can be kinda schizo.

AND NOW -- after all that. Wouldn't you know one of my favorite shows is pre-empted? Boston Legal, the show that gets shoved around for every piece of tripe that needs a time slot, pre-empted AGAIN. I understood during the writer's strike, but we've had two new shows and now this.

Then there's CSI -- it's gonna be April before we have new episodes on that one.

One more question: why is ONE package of ramen never quite enough???

I think that pretty much sews it up for my list of ranting. Just remember, in telling me not to be a stranger, you brought it on yourselves. :)
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 2/27/2008 6:38 AM (GMT -7)   
I just have to meet you!!! If you converse like you write, you must be fun! Plus your Kerry sounds like my Al. He never really asked either...he gave me the ring as a gift and said "Well?"

Hope you got some sleep (our neighbors rescue at risk precious birds and I love their stories!) Take Care!!!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 2/27/2008 3:25 PM (GMT -7)   
GL, so did you quit smoking? maybe a bit of the smoking DT's? hey who knows right?
randynoguts 



     http://www.geocities.com/randynogutsweb/


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 2/27/2008 5:23 PM (GMT -7)   
Randy: when I lost ten pounds in three weeks during the time I was focusing on quitting smoking, I threw myself off the wagon. I remember entirely too well what it was like to start losing weight at that rate, not be able to stop it, and how hard it was to get my weight back up. During discussion with teh doc today, he said as much as he hated to say it, maybe quitting is something I should put off until I get a few other things in order, like the anxiety meds, this virus thing I have, and the arthritis (which he says bears some more looking into). When I did quit, I was super miserable (DTs) for about a day and a half. For that three weeks, I had one here and there, but kept working on quitting. But following the initial withdrawal, it was just that my appetite was gone -- the idea of eating was totally repellant. And I don't really have any hard and fast cigarette routines that revolve around food. Contrary to other folks, cigarettes have always acted as an apetite stimulant for me. Go fig, I gotta be weird. There are some options for keeping weight on, medication-wise, but the main one was something I'd tried for anxiety and it made me totally non-functional, so that isn't so much of an option.

So weight loss is something I'm just a little on teh paranoid side about.

The doc had me laughing, though. He came back in wtih some more samples of the Effexor (we're going with a lower dose, but I still can't afford the rx), and he said "Sara, friend, you are complicated. You handle it well, though." :) My file looks like a copy of War and Peace! Then I got to tell the doc that one of his other very puzzling patients is my Uncle. He just shook his head and told me I'd added a whole new twist to the plot. :)
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 2/27/2008 5:33 PM (GMT -7)   
HabsHockeyFan: yeah, I pretty much write like I talk. My email is available -- tell me where you guys are.

Oy -- I'm so tired from running teh red tape gamut again for the AmeriCorps thing...and I STILL had the wrong voucher, because our local community college doesn't take electronic funds. So instead of listening to me and just calling those hosers down at teh AmeriCorps admin, she hops on the internet for the better part of twenty minutes before she figures out that the site isn't going to have what she wants. THEN she calls them. THEN they email me the correct form. All I could thinks was "I know you're trying to help, but I worked with this system for two years. Go with me on this!" Hopefully, finally, after two months of (expletive deleted) around, we have finally gotten something accomplished here. I'm hoping I can get in on the orchestra that the college is putting together. And before anyone says it -- yes I know that I was just talking about arthritis in my hands. Hoping some exercise will help the dexterity a little.

Our conure almost said "hello" the other night! And he was trying to mimic the cockatiel, which was interesting, since his voice is pitched totallly different. Right now he's out there playing with his toys, laughing and making kissey noises. As long as he's having fun...I saved a coconut shell for him last night, and we'll see how he likes it.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 2/27/2008 5:59 PM (GMT -7)   
Re: Ramen

If you mean that instant kind? Its just because its a little starch & water! LOL. Have to move to Japan to get the real deal.
I hope you are feeling better now.. Resting must be quite a novel sensation aside from our favorite CD complication, where you really have no choice. Pain being very persuasive.

Matthew
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