article on IBD in today's New York Times

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UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/26/2008 5:49 AM (GMT -7)   
hey Friends - I am about to reveal my anonymity here, but, whatever..... below is a link to a piece I wrote about my UC that is published in today's new york times. my hope is that this piece will raise visibility about UC and IBD in general. please circulate the story to as many people as you know so that together we can leverage this opportunity to bring IBD a bit more into the public sphere and make people less afraid to talk about it. hopefully you'll enjoy my piece. -Loren

http://www.nytimes.com/2008/02/26/health/views/26case.html

I linked it for you..........Kitt :-)

Post Edited By Moderator (stkitt) : 2/26/2008 4:27:27 PM (GMT-7)


RedAdmin
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Date Joined Aug 2003
Total Posts : 1017
   Posted 2/26/2008 7:46 AM (GMT -7)   
Nice article
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 2/26/2008 8:35 AM (GMT -7)   
Fantastic article, thank you so much for bringing much needed attention to IBD and the tragic way that chronic illness changes a person's quality of life in every conceivable way. Thank you again!
"Difficult things take a long time,
impossible things a little longer. " ~Author Unknown
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 2x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
 


WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 2/26/2008 9:32 AM (GMT -7)   
Very nice article, I hope many of those here will take the time to read it.  Well done and Congratulations on the publication.

31year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Unable/Unwilling to use immunosuppressents due to Melanoma history in 2000.
Illeocolonic Resection 1/08  (18 inches of terminal illeum, illeocecal valve, right colon and appendix)
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin, Flagyl


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 2/26/2008 9:47 AM (GMT -7)   
congratulations on a fantastic article! A day in the life of..... so many people need to be more aware of what it is like for all of us, so thank you!
40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Nov.2006
meds: pentasa 500mg 2 x 3day
(just went off Entocort 3mg 2/day)
Surgery booked for Feb.11th- TI resection(stricture)


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 2/26/2008 10:04 AM (GMT -7)   
Great article, thanks for sharing, it captured the feelings of living with a chronic disease very well.
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 33f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07. Tapered off entocort 1/08 and feeling the effects with fatigue, pain, D.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/26/2008 1:30 PM (GMT -7)   
Great job on that article!!!!! Good for you, you must be so proud! The more info that gets out there the better for us all so thanks for writing this article!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 2/26/2008 3:34 PM (GMT -7)   
well written. thanks for sharing.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/26/2008 4:28 PM (GMT -7)   

Super job and thanks for sharing.............you are very good.

Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 2/26/2008 4:30 PM (GMT -7)   
I'm not going to lie.....You did a fantastic job on that article!  Congrats and good for you!  Thank you so much for sharing.  Best wishes to you! VIEW IMAGE
Mother to 15 yr old daughter diagnosed w/CD 9/07.  Had col & endo in 9/07, small bowel follow through 11/07, surgery for abcesses 11/07.  Curently taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, entocort-x3, 6 mp 50mg-x3.....still not doing well.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/26/2008 4:49 PM (GMT -7)   
Wow! You did a great job! Keep it up!

mnchkn
New Member


Date Joined Jun 2007
Total Posts : 15
   Posted 2/26/2008 5:30 PM (GMT -7)   
WOW!!  Excellent work.  yeah   Maybe more people will begin to understand what we all go through on a daily basis. 
 
mnchkn

Female, age 38, diagnosed with Crohn's May 24, 2007
currently taking Humira every other week
6-MP 50 mg once daily
Entocort EC 6 mg once daily
married with one son


tlw
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 2/26/2008 5:42 PM (GMT -7)   

great job.  you really articulated how awful this disease is.  i have suffered with crohn's disease for over 30 years.  my symptoms began at age 22 so i know all too well what you are facing.

i wish you the best.

 


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/26/2008 5:53 PM (GMT -7)   
thanks to all of you for your supportive comments. glad it resonated with Crohnies (and not just UC-ers) since we are all in this together. If you want to forward the article to others you know with IBD, or your family/friends, you can send it from the webpage at the NYT, at the link at my original post. together we can educate others.

again, I am so glad you feel I represented you well. that means a lot to me. -Loren
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Cortfoam in AM, Rowasa in PM (is working wonders for me thus far)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 2/26/2008 7:11 PM (GMT -7)   

Loren,

I loved this article. You are a great writer! What a good way to help people to understand what it is we go through- not just the pain and sickness, but the loss of control, the uncertainty, the change in every little routine. I forwarded it on to the Crohn's and IBD group on Facebook and to people in my life who still don't quite get what it's like. THANK YOU!

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