The First Deed Is In Progress ....

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CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/26/2008 11:23 AM (GMT -7)   
Ha! Would you believe, I am my gastro's FIRST patient to use the Agile patency capsule (dissolvable pill) before the pill camera endoscopy? She's ordered many PCE's but not the dissolvable pill before.
 
10 AM this morning we had some further discussion and that baby was handed to me w/a glass of water. I gotta tell you, its more than a big pill! That baby is the size of a horse bolus! A calcium tablet looks small compared to it. It didn't feel slippery when I took it in my grubby little mitt either! Now, bear in mind I have a slight swallowing problem (not enough to have my esophagus stretched tho she's offered enough times!) So I took a deep breath, popped that horse pill in my mouth and started downing that glass of water. I was surprised at how easily it started going down. It hesitated right at the base of the throat so I gulped down some more water. It hesitated again a bit further down, about mid wishbone so I gulped down the rest of the glass. Not bad at all!
 
And then I asked: WHEN CAN I EAT? I've done liquid diets for a day before for a scope prep, in fact, I've done 3 day liquid diets and never had a hunger problem, but I gotta tell you this ole broad is HUNGRY. I was hungry enough yesterday I swear I could have eaten the north end of a south bound skunk!
 
2PM today is zero hour. I CAN EAT! But I can only eat lightly. Now, tell me, WHAT is eating lightly? The amount? Or the types of food? The big bubble from the gulps of air I swallowed w/the pill and water has settled to the tummy and turned into these frothy gas bubbles of HUNGER!
 
Noon tomorrow is the MAGIC hour. Abdominal xray time to see if the little darling has passed or where it is at. And then I can REALLY EAT! Cross your fingers that it passes, please.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 2/26/2008 11:28:41 AM (GMT-7)


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 2/26/2008 11:59 AM (GMT -7)   
my fingers are crossed for you.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/26/2008 12:09 PM (GMT -7)   
If all else fails, get a standard toilet plunger, apply firmly to face and churn rapidly -- ought to get anything in there moving just fine!

UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 2/26/2008 12:11 PM (GMT -7)   
Count my fingers in too.

BTW, are we getting together this Rolex? And should we invite the others on the list to join us :)
The funny story of my first abscess

The paper about the apheresis study

******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/26/2008 12:18 PM (GMT -7)   

CrohnieToo

I am a visual person.........you tommorow after test.

 

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/26/2008 12:26 PM (GMT -7)   
Wow, sounds like fun C2....

My idea of eating lightly is, eating very little at a time and easily digestible foods/soft foods, pudding, jello, broth, things along that line...avoiding heavy things, meat, veggies, textured stuff.

Good luck!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/26/2008 12:27 PM (GMT -7)   
I hope this go well with your test.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/26/2008 2:32 PM (GMT -7)   
Thanks everyone. Gads, Mike, I liked to have choked laughing at the toilet plunger suggestion!!! This pill will dissolve if it doesn't pass. But I'll keep that toilet plunger in mind if I get to do the PCE - just in case.

Pup!!! Good to see you! I don't think I'm coming down this year. I waited too long to be sure of the date and when I called for an appt for the ovarian cancer screening they are booked until August unless I can catch them w/a cancellation. *sigh*. I had been trying for Wednesday, the 26th.

And I don't know what's up but haven't found any dates for the Rolex yet. I know it SHOULD be the 24th thru the 27th but all I find at the KY HP site is talk about the remodeling, etc. for 2010. I was beginning to think it was scheduled for elsewhere or cancelled for this year.

How are you and your Crohn's getting along? How are the girls? And Michelle?
 
Kitt, that's about how I reacted when hubby and the dog and cat walked into the kitchen!!! I'm sure I didn't look as cute tho. But every bit as threatening and nasty! devil

PB4, THANK YOU. She had said I could eat a sandwhich at 2PM when I asked when I could eat but never gave me any other clues. I've probably already overdone it, but I'll follow your suggestions from now on until after the xray tomorrow. I ate a ham sandwich, chips and dip and a coke and started them at 2:01. (I was late getting started).

Will let you know what the xray says tomorrow. Gonna drive way in town to go to the imaging center that gives us the pics on disk so I can see too!!! Before my gastro does!


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 2/26/2008 2:37:14 PM (GMT-7)


UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 2/26/2008 2:59 PM (GMT -7)   
Well my crohn's and I aren't getting a long too well these days. I came out of remission (boy those were good times), have ANOTHER fistula, had an abscess removed, and feel pretty crappy. Not to mention the lung issue I'm still dealing with from the Remicade. I don't get to see my GI again until April 2nd when he's going to put me on Humira again. But that's the hand I've been dealt so I'll play it :)

Michelle is fine, as are our little girls. My oldest is in Kindergarten and already reading (breaks a daddy's heart) and my youngest is getting a long just fine too.

I'm not sure about Rolex this year - EVERYTHING at the HP is all about the 2010 equestrian games! If I find out something, I'll let you know.
The funny story of my first abscess

The paper about the apheresis study

******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 2/26/2008 3:29 PM (GMT -7)   
My toes are also crossed for you that everything passes and you're good to go for a tour through your fridge!

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/26/2008 7:38 PM (GMT -7)   
THANKS, BentWistle. I like your way of thinking!

Pup, dang, wish that darn Crohn's of yours would straighten up and fly right! (out the door). Doesn't Humira have the same or similar lung risks as Remicade? I know you are out of the apheresis trial but are you hearing any indications of how its going? How soon it will be ending? etc.? Have you ever asked your doctor about that Alequel (I've forgotten the correct spelling). The Israeli research on creating an autologous vaccine from our own diseased innards? I think I heard it was going into clinical trials here in the US. The theory makes sense to me and sounds more benign than the biologicals. Gads! The oldest in school already! Has it really been that long? They sure grow up fast. *sigh* My granddaughters are 13 and 15 and I've been referring to them as 11 and 13!!! The youngest corrected me just last week and brought me up to date. If I'm lucky and get a cancellation I'll be down. Will let you know if that happens. Meanwhile, feel free to e-mail me.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 2/26/2008 7:47:23 PM (GMT-7)


UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 2/27/2008 11:52 AM (GMT -7)   
C2,

I haven't heard anything about the Apheresis trial. I still don't know if I was getting the real deal of not. I did reread my blog from that time - I couldn't remember what I went through:) But reading it again, I said I was doing worse at week 5, the last time I had it done. So, either I wasn't getting the real thing or it just isn't for me. I know patient #1 went into remission during the trial, but I don't know about anyone else.

The vaccine does sound promising, I might hear something about it when I see my GI.....he likes all that research.

I hope your day is going well with your stuffers.

pup
The funny story of my first abscess

The paper about the apheresis study

******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/27/2008 1:12 PM (GMT -7)   
Thanks, Pup. Had my noon xray. Patency capsule is sitting at the inside top corner of the left pelvic/hip area. Don't know if that means its that close to the end of the colon and due out in the next "batch" or if it isn't quite to the terminal ileum yet and just making a bend before heading for the TI. I love getting my imaging disks and seeing before my gastro does!!!! I wish these cheapskates around here would do the same and get the imaging software for the colonoscopies too. *sigh* Ah well, I've got this neat new video cam (my old one was one of those big heavy beasts from ... way back when) w/the flash drive for stills and the little DVD disk and we video the monitor during the scope. Almost as good. Well, in a way, better 'cause you get the audio too. I remember you had to quit the apheresis trial but thought maybe you'd heard some "whispers". Gotta go check the Givens site and see if I can find anything about where this capsule should be when. My best to you and yours!!!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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