Welcome to HealingWell and the Crohn's Forum. I know most states have emergency assistance for medical but you would have to check into that in your state.
I agree with the others, contact the Pharm Co and see what they can do for you.
Yeah, it's great, both the DSHS and Medicare have flatly told her to just quit her job, then she'd be in the clear for coverage. I wonder if they can provide that coverage when you're living under and overpass on the freeway. I like that idea of going straight to the manufacturer for the juice, I've talked to several other people that have done that and it made all the difference for them. We're still bogged down with the price of administering it. We're off to the hospital today to essentially get on our knees and beg for charity care, so we'll see how that goes. I'm looking at getting a second job that gives health insurance to even part-timers, and is progressive enough to extend that care to "life partners", but we'll have to see. I'm understanding that many insurance programs just flat-out don't cover this stuff, end of story.
This is really bad news for people working simple retail jobs with no medical coverage. She's been stuck in a low paying job at an occult bookstore, where, if she was having a bad day, she could do her job literally without getting out of her chair, and her boss knew all about her condition. I'm just a few years out of college and still looking for a job for the "rest of my life" and working simple retail in the meantime. So we're livin' paycheck to paycheck, literally, and DSHS was saving our butts.
Phew, kindof'a rant there. This is just really, really frustrating, 'cause I've seen her at her worst (in the hospital for 8 days and then having to be a month late with the rent since she didn't get paid for those days) and at her best, (the year she's been on Remicade has been beautiful) I'm just really fed up with a "care" system that doesn't want to hear about people trying to work and help themselves and their families, that just wants them to be out of the system and be victims for the rest of their lives. Thanks all for the advice sofar, I'll let you know how it works out.
Definitely check with the state. Here in Texas they have a state sponsored insurance program for people with chronic conditions who can't get coverage elsewhere. My infusion nurse's adult son is on it, and she said it runs him about $350 a month. Not cheap, but a lot better than the $9,000+ my doctor charges for a Remicade infusion. These programs aren't advertised- probably because it's expensive for the state- but they're out there.