New member, first post. . .

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

smilingmonster
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/27/2008 12:14 AM (GMT -7)   
Hello everyone.  I'm glad to have stumbled into this resource here with very little hunting on the Interweb.  I'm the boyfriend of a Crohn's / Colitis sufferer.  She's been dealing with this for close to twenty years, I've known her for three.
 
We're in the position of having had some really good results with Remicade, and having had smooth sailing for about a year.  Our problem is that we're about as poor as dirt ;)  My girl was getting medical vouchers because of her daughter being under seventeen and the income bracket she's in.  Now, due to budget depredations by Bush, and her daughter hitting seventeen, they yanked her coverage.  She can't become eligable for Medicare because she can't quit her job.  We wouldn't be able to pay our rent.
 
So we're freaking out because she's almost due for another dose and she's already starting to get sick again.  So before I really get into it, can someone tell me if this is the proper place to talk about financial issues related to Crohn's / Colitis, because of it's prohibitive cost?
 
Thanks in advance.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/27/2008 1:27 AM (GMT -7)   
Hi Smilingmonster,

I think financial discussions are ok :-). The topic of insurance comes up quite regularly here; you might find it helpful to scroll back through the forum and see what others have had to say.

I'm Australian so won't be able to give any constructive advice on insurance or coverage, but I'm sure others will be along shortly to help you.

A warm welcome,

I.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/27/2008 1:29 AM (GMT -7)   
PS. Just be careful with the political commentary, though. It would be best not to offend anybody.

Best,

I.
Co-Moderator Crohn's Forum.


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/27/2008 3:48 AM (GMT -7)   
Hi I would recommend calling the makers of Remicade. I think they have an assist program. you can check on the web-site for there phone number.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 2/27/2008 6:06 AM (GMT -7)   
Centocor, the manufacturer of Remicade does have a Patient Assistance program that your Girlfriend might be eligible for. Need to contact them quick if she has a Remicade coming up. Remicade is something you Don't want to have to pay out-of-pocket. Most people Can't afford it out-of-pocket.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/27/2008 7:28 AM (GMT -7)   

smilingmonster

Welcome to HealingWell and the Crohn's Forum. I  know most states have emergency assistance for medical but you would have to check into that in your state.

I agree with the others, contact the Pharm Co and see what they can do for you.

Take care.
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 2/27/2008 9:18 AM (GMT -7)   
Welcome, You have stubbled across a fantastic site - full of wonderful people with lots of info. I' m sorry for your troubles. Unfortunately, I can't be of much help......Our insurance just cancelled us and we have had to hire an attorney. Definitely look into state funded programs and follow others advice with contacting the pharmaceutical co. - it's worth a shot. Good luck to you!
Mother to 15 yr old daughter diagnosed w/CD 9/07.  Had col & endo in 9/07, small bowel follow through 11/07, surgery for abcesses 11/07.  Curently taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, entocort-x3, 6 mp 50mg-x3.....still not doing well.


smilingmonster
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/27/2008 2:12 PM (GMT -7)   

Yeah, it's great, both the DSHS and Medicare have flatly told her to just quit her job, then she'd be in the clear for coverage.  I wonder if they can provide that coverage when you're living under and overpass on the freeway.  I like that idea of going straight to the manufacturer for the juice, I've talked to several other people that have done that and it made all the difference for them.  We're still bogged down with the price of administering it.  We're off to the hospital today to essentially get on our knees and beg for charity care, so we'll see how that goes.  I'm looking at getting a second job that gives health insurance to even part-timers, and is progressive enough to extend that care to "life partners", but we'll have to see.  I'm understanding that many insurance programs just flat-out don't cover this stuff, end of story.

This is really bad news for people working simple retail jobs with no medical coverage.  She's been stuck in a low paying job at an occult bookstore, where, if she was having a bad day, she could do her job literally without getting out of her chair, and her boss knew all about her condition.  I'm just a few years out of college and still looking for a job for the "rest of my life" and working simple retail in the meantime.  So we're livin' paycheck to paycheck, literally, and DSHS was saving our butts. 

Phew, kindof'a rant there.  This is just really, really frustrating, 'cause I've seen her at her worst (in the hospital for 8 days and then having to be a month late with the rent since she didn't get paid for those days) and at her best, (the year she's been on Remicade has been beautiful)  I'm just really fed up with a "care" system that doesn't want to hear about people trying to work and help themselves and their families, that just wants them to be out of the system and be victims for the rest of their lives.  Thanks all for the advice sofar, I'll let you know how it works out.


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 2/27/2008 2:46 PM (GMT -7)   

Definitely check with the state.  Here in Texas they have a state sponsored insurance program for people with chronic conditions who can't get coverage elsewhere.  My infusion nurse's adult son is on it, and she said it runs him about $350 a month.  Not cheap, but a lot better than the $9,000+ my doctor charges for a Remicade infusion.  These programs aren't advertised- probably because it's expensive for the state- but they're out there.

Good luck.


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 2/27/2008 3:44 PM (GMT -7)   
Welcome!

Please keep us updated with this situation. I'm not able to help as I'm Canadian - but I'm sure fortunate that both my husband and I have really good insurance from our work. Our medications, including my remicade are free for us because of the insurance our jobs offer. I can't imagine anyone buying it out of pocket.

Good luck,

Bev

bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 2/27/2008 3:45 PM (GMT -7)   
Perhaps your partner can look into participating in a study for one of the newer medications if you can't get the remicade paid for?
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 12:56 AM (GMT -7)
There are a total of 2,734,541 posts in 301,223 threads.
View Active Threads


Who's Online
This forum has 151337 registered members. Please welcome our newest member, hellokd10.
188 Guest(s), 2 Registered Member(s) are currently online.  Details
Laceymyaalayah, celebrate life


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer