2nd Blockage in 3 days, a bit discouraged!!

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Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 2/27/2008 6:55 AM (GMT -7)   
Long story short, I get adhesion blockages. Usually they clear on their own in less than 12 hours or so and I can manage at home. But one put me in the hospital in September because it lasted longer and I ended up dehydrated and just needed some fluids. One doctor wanted me to consider having the adhesions cut, my doctor didn't even want to discuss it. He just said I should keep track of how often it happens and that I really wouldn't want to have more than 5 or so in a year. Well you guessed it, this is 4 and 5 and its been just over 5 months. I know I have to call my doctor, but I'm a chicken. I don't want to go to the hospital AGAIN!!!!. If I show up there its almost automatic that I get 2 nights of restless sleep and crap food. I would much rather stay home. That's my rant/pout for the day. Thanks for listening. :-)
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/27/2008 7:16 AM (GMT -7)   

Hi Suzanne,

I am sorry that you are having so many problems with the adhesions.  May I ask how your physician has made this determination that your problem is from  adhesions versus intestinal stricture?  I know the sx is similiar for both problems and many patients heal without  the need for surgery.
I hope you can continue to avoid surgery.
My best to you and here is the best place to vent.
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
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Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/27/2008 7:30 AM (GMT -7)   
I've had a lot, like more than 10 colonoscopies/endoscopies in the last 2 years as well as SBFT, CT, MRI and every other test in the book when I was having a lot of gastritis with unknown cause and the only thing they could find was some minor ulceration. So they are pretty sure that it is adhesions causing the blockages. Also based on how quickly they come on and how quickly they resolve. I can be fine one minute and then within minutes I am doubled over. Samething on the other end.

I think this one just hadn't completely resolved since it started back up so soon, but I could be wrong. I have an appointment around the corner from the hospital this morning and hopefully I won't have to just drive myself into the ER afterward. Yesterday all I wanted was a shot of pain med cause the oral stuff I have wasn't touching it.

These are the times when I have to smirk at people who have to take to their beds for hang nails! I'm driving myself to the doctors when I have a blockage! Nothing stops a Crohnie!!!!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/27/2008 7:53 AM (GMT -7)   
Hi Zanne, I suffer with the same problem. I was hospitalized last Feb and March 3 different times with obstructive episodes. Finally I figured out on my own what was causing mine (adhesions). All my tests came back the same as yours. I don't know if you do this right now or not, but I have put myself on low residue diet and I stay on it. I have also stopped eating red meat which is hard to digest. I still have bad days occasionally, but haven't had any further obstructive episodes. Sure hope you get feeling better.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/27/2008 8:06 AM (GMT -7)   
after two surgeries in '06 for adhesions my pain lessoned, but is still there. as you know, the problem with fixing adhesions is it can make them come right back. I say when you can't take it any more, have them cut. it did help me. also, some docs totally believe they don't cause pain, so it can be hard to be treated for them.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/27/2008 2:01 PM (GMT -7)   
Nanners, I do keep to a low residue diet, but diet doesn't seem to be related, or at least I can't seem to tie it into anything. I had eggs and a piece of toast yesterday.

YP, That's my GI's opinion, and mine too. You don't want to do anything about the adhesions cause they can come right back, but at some point this is going to get OLD really fast.

I called my doctor and have an appointment next week. He may call me to do something sooner, his office staff wasn't sure what he would want to do. Of course, he is doing procedures today and not in the office. So until then, its liquids and very soft foods.

I just hate how fast it happens. I was FINE yesterday morning, got in my car to drive home and by the time I got home, I was doubled over. Its just crazy and a bit scary. I was out of state and hours away from home. If it had been worse I'm not sure what I would have done.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 2/27/2008 4:08 PM (GMT -7)   
I'm so sorry you're having so many problems. Hopefully the doctor can determine the right course of treatment for you soon,

Thinking of you,

Bev

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/27/2008 4:10 PM (GMT -7)   
I decided to have the surgeries when I was living on pain meds. it is worth it if your head is in a fog all the time. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


jodyisme
Regular Member


Date Joined Dec 2006
Total Posts : 70
   Posted 2/27/2008 4:14 PM (GMT -7)   
imho*
 
it almost sounds like it is twisting and then causing a blockage. esp as to how it resolves and comes back.
 
might be something to ask? a colonoscopy wont show the twist unless it happening right then because it may untwist back on its own.
 
just my idea....
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