fistulas, setons and bikes.

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ivy6
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Date Joined Sep 2005
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   Posted 2/27/2008 4:17 PM (GMT -7)   
Hi everyone,

I have an anal fistula, a seton, and a sore bottom. I have to be careful to only sit on very soft seats, or else I simply can't sit.

That said, we have a new bike path in town and I'd *love* to be able to use it. I don't own a bike and am reluctant to invest in one when I'm uncertain that I can ride without being in pain.

*Can* you ride a bike when you have lots of bottom issues? Has anybody managed it? Are there any tricks to help? Any specific types of bikes to buy or avoid?

Ivy, who started Humira a week ago and is starting to feel a bit better!! yeah
Co-Moderator Crohn's Forum.


chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 2/27/2008 7:13 PM (GMT -7)   
I have an anal fistula, a seton, but no sore bottom.

That said, I ride my bike all summer with my family. It is one of our favorite things to do. I do have a big soft seat on my bike, but I also don't have the sore bottom issues that you have. Do you have any place around you that you could rent a bike at to try it out before you invest in one? My husband and I just bought $100 bikes at Meijers and we have had them for probably at least 5 years, and we have had no problems with them. I did by a nicer seat for mine. :) The bikes do have 2 shock absorbers that give when the road is rough, so that is nice.

Hopefully, with the humira, your bum won't be sore!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/28/2008 12:26 AM (GMT -7)   
That's interesting, that you have a fistula, a seton and no soreness. I thought they were inextricably linked. My own personal theory is that I have a permanent abscess up there that only partially drains through the seton. The drs know about the soreness but have never made a big deal of it, so *shrug*, who knows...

Renting a bike is a great idea! Unfortunately I've missed the summer tourist season, but it's not long 'til Easter, so there might be some available then.

You said you were able to get a softer seat for your bike - how? And do shock absorbers come with all bikes, or did you request them specially?

Thanks for your advice, Crohniemom. It's either going to be bike or rollerblades, and I'm such a klutz that I'd be too self-conscious to use blades in public! (and I'd worry about falling and straining my abdomen)

I.
Co-Moderator Crohn's Forum.


HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 2/28/2008 6:26 AM (GMT -7)   

OK second try at my reply...The subject line of your post has got to be the name of my next band!!!!

I can't ride a bike due to my back issues (leg goes numb)  Butt tongue , I did try at the PT office when I had my seton.  The PT recommended going to a mountain bike website to search for cushioned seats.  She also recommended a mountain bike becuase they have better shock absorbers so better on the tush
 
ps I did have some pain in my tush with the seton, but not much.  I think I agree with your self dx and hope you heal soon
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 2/28/2008 8:05 AM (GMT -7)   
I would recommend you go to a good bike shop and test ride a "comfort" bike. they are like a mountain bike, but you sit upright, have comfy seat and handlebars, shocks, and lots of gears for hills. if you live somewhere flat you could go for a "cruser" bike, but I am crazy in love with my comfort bike. they can adjust the seat to tip forward or back, and that might help.
a good comfort bike is around $200-500, but that isn't much for a bike and I have a grocery bag that attaches to my bike and I ride it to the store a lot. I even carried a pie once! when I was at my worst, pain-wise, walking hurt a lot as the pain was all in my gut, but the bike felt great.
I hope you find you can ride one and let me know what happens, k? yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 2/28/2008 12:33 PM (GMT -7)   
everyone is different i guess, for me, the fistula pain comes and goes....

i suggest getting the bike with shock absorbers for sure, and also get one with a really thick gel-cushioned seat, i mean really thick, not just a thin gel-layer....and maybe pop a few painkillers a little while before taking the ride, and hopefully you will enjoy it, but some days you probably won't be up for it....

for instance, today, I have a softball game, it is the first game of the season, i just joined the team, and my rear is killing me. I am all out of pain meds, so I am not sure yet, if I will play. I don't want to let my team down, but the whole point is to have fun, and If I am in pain, that won't be happening....what sucks is no one on the team except one guy knows about my disease (or my ileostomy)..so they won't get it if I miss a game.

I think I am gonna play, but for now, I am not sure....

and while I am whining, i also have a sore throat and nasty cough, whine whine....some call me a wambulance!

what would you guys do?
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/28/2008 4:35 PM (GMT -7)   
Thanks so much, everyone. I'm starting to get information overload here - do you think that if I went to a specialist bike shop and explained my problem, they'd know what I was talking about and be able to advise accordingly?

So, in summary:
1. ask for a comfort bike (which I've never heard of!) or a mountain bike
2. ask for a super thick gel comfort seat
3. ask for shock absorbers

yp, I find it comforting to know that you could still ride even when your gut pain was at its worse. Abdo pain has inhibited my mobility for years; it's interesting to know that you could ride even when you found walking hard.

Are gears necessary? What do they do?

As you can see, I'm almost a novice at all this. I haven't ridden since primary school!

Glad, I hope you feel better soon and that you do get to play softball,

I.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/28/2008 4:40 PM (GMT -7)   
ps. Glad, could you go and ask to be the twelfth man, or the reserve, or whatever they call the non-playing person over there?

That way, you'd get Brownie points for showing up and you would get to be with the team, without having to go through much physical exertion.
Co-Moderator Crohn's Forum.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/28/2008 4:53 PM (GMT -7)   
ivy6 said...
Thanks so much, everyone. I'm starting to get information overload here - do you think that if I went to a specialist bike shop and explained my problem, they'd know what I was talking about and be able to advise accordingly?

So, in summary:
1. ask for a comfort bike (which I've never heard of!) or a mountain bike
2. ask for a super thick gel comfort seat
3. ask for shock absorbers

yp, I find it comforting to know that you could still ride even when your gut pain was at its worse. Abdo pain has inhibited my mobility for years; it's interesting to know that you could ride even when you found walking hard.

Are gears necessary? What do they do?
yes, go to a specialty shop and they should take good care of you. gears make it easier to go up and down hills, like changing gears in a car. if you are only on flat you don't need them, but I would get them.
a comfort bike is a better choice than a mountain bike IMHO. I hope it works for you. I love love love biking with my comfort bike and I have never been a biker; too chicken!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/28/2008 5:07 PM (GMT -7)   
We have a few hills in this town, but the bike paths are fairly flat. Would that influence my choice?

I've just looked up comfort bikes on the 'net. I'm still confused. What's the difference between comfort and mountain bikes?

I.
Co-Moderator Crohn's Forum.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/28/2008 6:57 PM (GMT -7)   
I just have a mountain bike with shock absorbers...but the comfort bike is a good idea...guess it depends on how much you want to spend. I'm sorry that you have pain with your seton. I was back toworking out within a week of having mine...it has never really hurt me even in the beginning except for like for the first couple of days. If you think you have an abscess still, I would get an mri or ct and find out for sure....maybe you have another fistula coming into that one that would be abscessing....don't know...just a thought....

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/28/2008 9:17 PM (GMT -7)   
Hi crohniemom,

MRIs are in the city and fairly inaccessible to mere mortals like us. I doubt the docs would agree to a c/t either. As I said, they know it hurts; they just don't engage in a discussion about it. :-/

I,
Co-Moderator Crohn's Forum.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/28/2008 10:00 PM (GMT -7)   
mountain bikes are made for rough riding and you lean over to hold the handlebars. comfort bikes are made for sorta rough roads, but you sit upright (think the witch in Wizard of Oz) so it is easier on your back and arms. the seats are more comfortable. they are really popular with the baby boomers, as they are easier on the body. here is a link to the brand I have, just so you can get an idea what they look like

http://www.raleighusa.com/depts.asp?deptid=6

darn, I couldn't get it to hyperlink. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/28/2008 10:12 PM (GMT -7)   
well i have 5 setons! all down there, and while i dont want to ride a bike, i'm getting ready to return to work and could use any suggestions on comfortable seating. My pain isnt constant like it was b4 my bag, but im sitting at my pc now on a pillow and it still is uncomfortable.

Yoga, i applaud you for wanting to ride...just the thought of it makes me shrink in pain lol
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 2/29/2008 6:19 AM (GMT -7)   
OK so info overload now...but here's another thought. How about one of those recombinant (sp??) bikes? I like the commfort bike idea--had never heard the term before. But a recombinant (I'm sticking with that spelling!) is the kind where you are sitting in a chair and peddle in front of you. It wouldn't work for riding on rough terrain, but I don't think your tush wants that anyway.
Yes, go to a specialty shop. If they aren't offering ideas, go to another one. We have a few great bike shops here. Now you have me thinking about a recombinant (now I am determined that is how it is spelled) bike....thanks for getting me moving!!!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 2/29/2008 6:46 AM (GMT -7)   
Ivy,

Depending on exactly where the areas of pain are, you might want to try one of the split bicycle seats for women. I'm going to put in a few links to give you the idea, but in case they are removed (I'm not trying to promote any particular products, though), just do a search for "bicycle seats for women" and you should find many options of this sort.

http://www.spongywonder.com/

http://aerotechdesigns.com/seatcovers.htm

http://www.teamestrogen.com/categories.asp?catid=24

http://stason.org/articles/wellbeing/health/Safe-Bike-Seats-For-Men-and-Women.html (this has an article if you scroll down below the advertising links)

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/29/2008 7:57 AM (GMT -7)   
so many good ideas. I hope you find a nice, friendly bike store. they are all about helping you find the perfect fit. they always let you try them out and you will know what works best. if they find one that feels great, spend the money and get a nice one and assume you will use it lots. if you live close to stores it is a treat to do errands with one. I don't know how old you are, but I know at 48 it makes me feel like a kid again. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 2/29/2008 8:22 AM (GMT -7)   
Habs,

Um... not to be picky, but just to keep you from giving them a laugh at the bike shop, the type of bike you are talking about is a recumbent. Recombinant is a type of DNA (recombinant DNA is genetically engineered artificial DNA). :)

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/29/2008 4:27 PM (GMT -7)   
I worry about a recumb-oh, I can't spell it either - bike. Woudn't it put even more strain on your abdomen to ride that way?

I'm kicking myself for not thinking of this earlier, but I think my first step should be to go to a gym and see if I can use an exercise (stationary) bike without hurting the bottom. I'll let you know how I go.

Another question, though - does riding exacerbate hip pain? I have joint issues too...

I.
Co-Moderator Crohn's Forum.


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 3/6/2008 5:14 PM (GMT -7)   
ivy6 said...
ps. Glad, could you go and ask to be the twelfth man, or the reserve, or whatever they call the non-playing person over there?

That way, you'd get Brownie points for showing up and you would get to be with the team, without having to go through much physical exertion.


Hi Ivy!

well, i made it to the game, and it worked out fine, my friend had an extra vicodin for me, and i really had a good time.

I play again tonite! wish me luck...
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/6/2008 11:51 PM (GMT -7)   
Excellent, Bag! I'm so glad you were able to go. It takes courage to do something like that, I know.

I haven't tried a gym bike yet, but I have been going swimming!!

Good luck tonight,

I. :-)
Co-Moderator Crohn's Forum.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/7/2008 8:26 AM (GMT -7)   
if gym bike is ok you are in good shape,cuz they are way more uncomfortable than a good bike would be :)
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/7/2008 10:07 PM (GMT -7)   
Really? That's good to know, yp, and very encouraging. Thanks so much.

I haven't tried it yet, but will tell you when I have.

I. (isn't it nice to even have the option of doing this stuff? recovery is great!) :-)
Co-Moderator Crohn's Forum.

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