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SKR
Regular Member


Date Joined Oct 2007
Total Posts : 42
   Posted 2/28/2008 9:35 AM (GMT -7)   
My Crohn's has been slightly more active over the last two weeks, and although I only work Saturdays because I am a fulltime university student, I had a day off..jus wasn't good..
In all I've had three Saturdays off since I started in September..and I've heard that other members of staff have been complaining about the amount of time I've been away.
 
and I think to myself..why do I bother?
 
It would be so easy to jus say, I've got Crohns so Im not going to work..but I don't..I try and live as normal a life as possible..and then u get ppl bitichin about u wen ur not ther!
 
Rele don't wont 2 face goin this week...they make u feel like u have dun sumthin so wrong...
 
Anyone else had employers that don't undertsand?
 
Anyways Ill stop ranting for now..
 
xxx

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 2/28/2008 12:25 PM (GMT -7)   
i feel your pain....for now, it is easier for me, since i work with my Dad, who gets it, but not everyone else at the office does, and I still feel guilty when I can't work....especially, since my paycheck is always less than, and I don't make as much as I want to.....

like right now, my Dad is out since he has been having heart trouble, I wish i could be home to, i feel like crap from a sore throat and my rear is killing me, but i am here, grunting through it....
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 2/28/2008 3:18 PM (GMT -7)   
I am so sorry you have to go through that. I missed TONS of work due to my Crohn's and when I broke it down to my peers/boss "barney style" they understood just what I was going through. I was very blunt about 10-15 bloody stools a day, awful gut wrenching, toe curling, uncontrollable pain. The fatigue, everything. I even tried some natural methods and told them about the detox clay I took that made me poo nothing but puss. It kinda grossed them out, but it really painted the picture for them to realize just what I was going through. Everybody became more understanding and actually supportive.

Don't let the folks at your work get you down. I GUARANTEE that if they were going through half the crap you are going through they wouldn't even show up. Stay tough, you'll be fine =)

"Never, never, never give up"
-Winston Churchill
Battling w/ CD for 2 years...
Osteopenia in the spine caused by prednisone
Currently on Remicade


ALI9
Regular Member


Date Joined Jan 2008
Total Posts : 95
   Posted 2/28/2008 4:13 PM (GMT -7)   
Some people never will understand and others are very uderstanding, I feel your pain also. It has to be hard enough just getting through school. I have been having some trouble to and the weather here has been terrible and I am the only employee that lives in town and can get to work, but therenhas been times I just couldnt help out, they had come from out of town anyway and work doubles. I felt bad but there was nothing I could do. Some times we need to listen to our bodys and do whats right for us. If they dont like it there has to be other jobs right your in a college town???? Hang in there and keep venting on here it makes you feel better knowing everyone here understands how you feel!!!!

kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 2/28/2008 8:14 PM (GMT -7)   

I can relate. My boss is  not understanding, which is very hard. I am just trying to lay low and do my job. I am good at my job and she will realize a disease won't keep me from that. I get down quite a bit and people think I am too sensitive. Hang in there. I have the fear I am going to lose my job, but I have faith if I work hard I will make it through. It is tough with CD, but that's why you have us. Congrats on being in school full time. That is hard, but it is worth it.

Kgirlie


Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  


map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 2/29/2008 10:19 AM (GMT -7)   

Don't feel bad, it's not your fault and they should be glad that you are still willing to come to work whenever you can.  I have employers that treat me badly for being sick as well, and even have a boss that refuses to believe that I have a real illness regardless of how many doctor's notes I give him or internet articles or brochures I hand him.  I know how being looked down upon for missing work feels despite how hard you try not to be gone, and how being treated poorly for being sick feels, it's really horrible and I feel bad for you.

What has made me feel better was that yesterday I talked to my very smart and caring friend.  He said it sounds like the problem is with my boss, since a couple other employees here have crohn's too and nobody treats them like that.  He wondered if I spoke to the boss's boss about it and I said yes, and that they are being a bit more accommodating with me missing work from being sick or for doctor's visits but they are a bit hostile about it, and that when I mentioned that it seems like the problems are related to this one boss guy not believing me, his boss's reaction was to say "well hopefully we won't have to force you to go on disability".  I felt like that was a threat, i.e. "hopefully we won't have to fire you" but my friend said "Disability?  That's great!".  He explained to me that disability is 60% of your income, tax-free, so basically like getting paid to be at home.  He also said that whenever your employer treats you differently in a negative way due to a medical ailment that you can sue them and either win a big compensatory judgement or just have them settle out of court quickly with you for a decent amount of money.  He said it sounds like I have the potential to be very rich due to mistreatment.  I would say the same goes for you, since disability/equal opportunity is a federal law.  Let them treat you like dirt, you can hit them in the pocketbook for it later, and they can't fire you, they can only force you out on disability and you pretty much get the same salary you make now since it's 60% but no taxes.

Hope that cheers you up, I know it's not exciting to look forward to disability pay or to put up with poor treatment and get a monetary settlement in return, but it's good to know you won't be in a financially bad situation if things don't go well with your job.  Concentrate on feeling well with your health and finding things that keep you happy!  I know it sounds weird but I buy little stuffed animals or figurines or look at kitten pictures on the internet when I am sad, even little things like that can turn around a bad day and help you forget a little about feeling sick :-)

Speaking of kittens, if you like them http://kittenwar.com is thousands of adorable cat and kitten pictures!


SKR
Regular Member


Date Joined Oct 2007
Total Posts : 42
   Posted 2/29/2008 10:30 AM (GMT -7)   
Thanks for the replies guys...has helped!
xxx

spuddie
New Member


Date Joined Mar 2008
Total Posts : 8
   Posted 3/1/2008 2:41 AM (GMT -7)   
Hey there understanding employers wow what are they. Here goes something that may make you smile. I have just resigned as I am fatigued have swollen lymph nodes under my arms and generally feel like the morning after a huge night!! Besides this the steriods are not working or working real well ( masking symptoms) My hubby is on my back to return to work within 4 weeks because he does not aknowledge that I am sick. Just use meditation it helps !!!!!!!
 
 
48 yo female DX 1996 resections inflixamab oh hell to many to list from Western Australia. yeah

Post Edited (spuddie) : 3/1/2008 2:44:56 AM (GMT-7)

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