Last year I flared and in September 07 my Dr put me on Prednisolone for 6 weeks. I started on 30mg for a week and each week I tapered down 5 mg. The Pred kicked in after a day and for those 6 weeks I felt amazing, often euphoric. I was very lucky not to suffer from some of the horrible symptoms you can get with Pred.
Unfortunately, as soon as I came off the Pred I crashed straight back into a flare much worse than before. I went on holiday to Mexico for 2 weeks and while I was out there I becase so dehydrated and anemic that I could barely walk somedays. I couldn't go to the hospital there as my travel insurance doesn't cover pre-existing medical conditions and I was in a bad way.
Luckily the day after I got back home to London I had an appointment with my Consultant and he put me straight back on the Pred. This time 40mg, tapering every week by 5mg so treatment lasted 8 weeks. It took much longer to kick in (approx 2 weeks) this time and I suffered from really bad insomnia and night sweats every evening. However, the Pred still worked and managed to get my inflammation under control. In the last weeks of my taper I was prescribed 75mg Imuran to take over from the steroids.
So far so good off the Pred. For me, Pred is a wonder drug and the 3 times I have taken it, it has been amazing -so much so I was really scared to come off it but then I've been really lucky with the side effects. Sleeping pills managed to sort out my insomnia which was awful until I had the pills. Imuran seems to be OK although I have noticed D creeping back to 5 a day and my hair keeps falling out (but luckily not in patches -just a malting!). Also -feel tired all the time but think that's down to being anemic, still dehydrated, working full time and letting body recover from a proper battering by the CD.
I wounldn't say I'm in remission yet as got a funny feeling it's still lurking about but feel so much better than in 07. Main thing now is to traet my anemia and get all my energy back.
Good luck to you all from London
My daughter was given 60 mg IV Solumedrol once every 24 hours in the hospital...three rounds. And then dropped to 40mg oral pred. Dropped by 5 mg every days and used Entocort to taper off pred. Introduced one pill Entocort while on 20 mg pred, then two pills Entocort while on 15 mg pred. The day she reached zero pred, she went up to three pills Entocort.