Prednisone duration question

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hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 2/28/2008 4:16 PM (GMT -7)   
I was just put on prednisone. I was wondering the normal first dosage to treat new CD.

Thanks.
Live for today, for tomorrow you might just get hit by a semi.


PaloPalo78
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Date Joined Feb 2008
Total Posts : 42
   Posted 2/28/2008 4:26 PM (GMT -7)   
HI there
 
My first dose was 20mg for 3 or 4 weeks then tapered down to 15mg for 3 weeks and so on until no more prednisolone .  What dose have you been given ?
 
I often found that i would need to go on a short course of a few months ( from 20 or 15 mg and then slowly reduce ) to control things ,and this normally worked wonders in no time at all.
However recently the pred did not help and i had to try other things .
good luck with it and bear with the mood swings etc - personally i dont mind taking it although in the evenings i found myself getting angry or touchy ! and got slight headaches which i think was the pred wearing off . In the mornings i would feel happy and slightly europhic !!

ALI9
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Date Joined Jan 2008
Total Posts : 95
   Posted 2/28/2008 4:27 PM (GMT -7)   
My first dosage was 60mg .

hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 2/28/2008 4:45 PM (GMT -7)   
20 mg. is what I was given. 3X a day for 3 days, then 2X a day for 5 days. That's it. Is that normal? I guess I am supposed to get back to my doctor & find out how long they want me on it. There is no taper. My PCP wrote it & didn't know what my gastro wanted to prescribe, but wanted to get me the script since I was waiting for a call back for days & I have been having so much pain.
Live for today, for tomorrow you might just get hit by a semi.


upt0106
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Date Joined Dec 2007
Total Posts : 47
   Posted 2/28/2008 5:27 PM (GMT -7)   
120 while I was in the hospital (3 days)
60 when I was sent home
40 about 2 weeks later
30 about 2 weeks later
plan to go to 20 after about 2 weeks...then probably go down by 5mg week or two

Lady G
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Date Joined Sep 2006
Total Posts : 321
   Posted 2/28/2008 7:01 PM (GMT -7)   
dosages differ....one of my first dosages was 50 mg then a taper for two weeks or so, a really quick hit....this time I started on 40mg and taper for monthes instead of weeks...so its always differend depending on the situation.


26 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.


hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 2/28/2008 7:08 PM (GMT -7)   
Well how do they know? Is it just a wait & see approach? They don't know what my ileum looks like because they didn't look at it or biopsy it or the cecum, which seems to be the area of question, during my colonoscopy, so I don't really know what is going on in there.
Live for today, for tomorrow you might just get hit by a semi.


sjkly
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Date Joined Dec 2007
Total Posts : 2113
   Posted 2/28/2008 8:30 PM (GMT -7)   
Keep in mind that prednisolone, prednisone and methylprednisolone are all different drugs and will have different normal dosages. Some of these posts were prednisone some prednisolone.
I was started on a mederol dose pack (60mgs of methylprednisolone) by my PCP while I waited to see a specialist and thought it was a psychological torture devise-you start on 60 and go down by 10 a day-by day 3 I was as sick as I was before starting-I had to go back and beg for more steroids and was given 30mg a day of prednisone-that was in october-I'm down to 5mgs a day now but may be on it for a long time.

whaley
New Member


Date Joined Feb 2003
Total Posts : 15
   Posted 2/29/2008 5:37 AM (GMT -7)   

Hi,

Last year I flared and in September 07 my Dr put me on Prednisolone for 6 weeks.  I started on 30mg for a week and each week I tapered down 5 mg.  The Pred kicked in after a day and for those 6 weeks I felt amazing, often euphoric.  I was very lucky not to suffer from some of the horrible symptoms you can get with Pred.

Unfortunately, as soon as I came off the Pred I crashed straight back into a flare much worse than before. I went on holiday to Mexico for 2 weeks and while I was out there I becase so dehydrated and anemic that I could barely walk somedays.  I couldn't go to the hospital there as my travel insurance doesn't cover pre-existing medical conditions and I was in a bad way.

Luckily the day after I got back home to London I had an appointment with my Consultant and he put me straight back on the Pred.  This time 40mg, tapering every week by 5mg so treatment lasted 8 weeks.  It took much longer to kick in (approx 2 weeks) this time and I suffered from really bad insomnia and night sweats every evening.  However, the Pred still worked and managed to get my inflammation under control.  In the last weeks of my taper I was prescribed 75mg Imuran to take over from the steroids.

So far so good off the Pred.  For me, Pred is a wonder drug and the 3 times I have taken it, it has been amazing -so much so I was really scared to come off it but then I've been really lucky with the side effects.  Sleeping pills managed to sort out my insomnia which was awful until I had the pills.  Imuran seems to be OK although I have noticed D creeping back to 5 a day and my hair keeps falling out (but luckily not in patches -just a malting!).  Also -feel tired all the time but think that's down to being anemic, still dehydrated, working full time and letting body recover from a proper battering by the CD.

I wounldn't say I'm in remission yet as got a funny feeling it's still lurking about but feel so much better than in 07.  Main thing now is to traet my anemia and get all my energy back.

Good luck to you all from London

 


DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 2/29/2008 7:17 AM (GMT -7)   
40mg of Prednisone starting off for me
 
40mg X 2 weeks
30mg X 2 weeks
20mg X 2 weeks
10mg X 2 weeks
5mg X 2 weeks
2.5mg X 2 weeks
Done
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/29/2008 7:50 AM (GMT -7)   
20 and began tapering right away. when I was down to about 5 started a new doc and then I was on 80 with a long taper following. there certainly doesn't seem to be much rhyme or reason to this. I weighed 100 lbs at the time, so it sure isn't by weight!
more importantly, how are you feeling on it? be sure to take it in the morning. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/29/2008 8:48 AM (GMT -7)   
I just took my first pill this morning. I am to take 1 20mg pill 3 times a day then 2 times a day starting monday. No info on the taper yet. Just 2 times a day for 5 days.

I was on a super quick taper the first time back in January. Only took it for 6 or 7 days back then.

I can't wait for the pain & fatigue to go away.
Live for today, for tomorrow you might just get hit by a semi.


DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 2/29/2008 2:30 PM (GMT -7)   
Only 6 or 7 days? Thats probably why you are back on the Pred now, with Crohns, 6 or 7 days of Pred isnt going to do much, give you a little rest from the inflammation for a couple days while you are on it, but thats about it, your intestines are like anything else, takes time to heal, think for example if you get a cut or blister, its not healed over completely and gone in a couple days. Personally i am a little confused by your dosing pattern since most GI's would only recommend taking Pred in the early morning due to its adverse effects on the adrenal glands, especially if you are taking 60mg, i would ask your GI about that one.
hukleberrie said...
I just took my first pill this morning. I am to take 1 20mg pill 3 times a day then 2 times a day starting monday. No info on the taper yet. Just 2 times a day for 5 days.

I was on a super quick taper the first time back in January. Only took it for 6 or 7 days back then.

I can't wait for the pain & fatigue to go away.


 


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/29/2008 4:35 PM (GMT -7)   
I did. I called the GI & she said 20 mg. a day. Once a day. They seemed miffed about what my PCP put me on but she didn't know what the GI wanted to put me on & I was whining pretty bad so she wanted to call me in the script. She told me to follow up with my GI, so I did. The nurse just said that my GI put in there 20 mg once a day. So that's what I am going to do. That's what I told the nurse. She just wanted to get me on something. But it seemed like the nurse thought the PCP overstepped or something? I just don't care who gives me the script as long as I get one. The only thing I don't have information about is the duration. She didn't have that down. I don't know what to do. I would hate to call & bug them again. It seems like every day I am calling or bugging them somehow. What a pest I have become.

I went ahead & made the appt. for the colonoscopy. I can't believe I have to do it again. Ugh.
Live for today, for tomorrow you might just get hit by a semi.


njmom
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Date Joined Apr 2006
Total Posts : 1884
   Posted 2/29/2008 8:35 PM (GMT -7)   

My daughter was given 60 mg IV Solumedrol once every 24 hours in the hospital...three rounds. And then dropped to 40mg oral pred. Dropped by 5 mg every days and used Entocort to taper off pred. Introduced one pill Entocort while on 20 mg pred, then two pills Entocort while on 15 mg pred. The day she reached zero pred, she went up to three pills Entocort. 


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/1/2008 5:27 AM (GMT -7)   
It's all so confusing to me. Seems like everyone is different. I don't know how long I have to take it or anything. I am going into this blind, but I guess that's normal. I'm lost...
Live for today, for tomorrow you might just get hit by a semi.


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 3/1/2008 7:30 AM (GMT -7)   
When do you see the GI? If it's within 2-3 weeks it would not be uncommon for you to stay at the level you're at until then and then she'll re-assess you and may begin the taper (or increase if necessary). If the appointment is months away, then yes, then you'd need to know when to begin the taper. I don't think you need to call the GI if your symptoms improve and you're going to see her soon anyways.

Good luck,

Bev

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/1/2008 7:59 AM (GMT -7)   
I don't see her until May. So I will probably have to call. I don't want to be on this for too long....
Live for today, for tomorrow you might just get hit by a semi.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/1/2008 8:52 AM (GMT -7)   
I haven't noticed much of an improvement yet. I did finally have a good BM (as hard as it was, lol) today, so that's good. Lost 5 lbs overnight. That was weird. I am sure it was just water weight or something. I am just really really tired. Is that normal with prednisone? When should I start to feel better?
Live for today, for tomorrow you might just get hit by a semi.


DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 3/1/2008 1:25 PM (GMT -7)   
hukleberrie said...
I haven't noticed much of an improvement yet. I did finally have a good BM (as hard as it was, lol) today, so that's good. Lost 5 lbs overnight. That was weird. I am sure it was just water weight or something. I am just really really tired. Is that normal with prednisone? When should I start to feel better?

Everyone is different with their experiences with Crohns, just like how no one can give you a duration of how long you are on each dosage level, because it all depends on how fast your body reacts/heals. I personally fell better (almost 100% minus the Pred side effects) within a week of starting Predisone, however my GI is a little more aggressive and has me start at 40mg for all my Pred runs. This past taper was a bit of a pain and will most likely take me about 4-4.5 months to get off due to some complications between 15mg-->10mg, had to go back to 15 and go down in 2.5mg increments instead...my first two runs on Prednisone i started at 40mg and followed the tapering i showed above, so i was only on Pred for a month or two. Prednsione, like most ppl will give you a whole bunch of different things you will be asking "is the normal" about, so dont worry. Being tired is probably more due to your CD running down your body then the Pred.
 


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/1/2008 1:45 PM (GMT -7)   
I don't think mine is that bad. I have been mostly tired & have lost weight (50 lbs). I was having trouble digesting food, that's about it. Then the frequency happened & then I finally got D (then dehydration a couple times, etc.) But lately it just has been this horrible pain in my pelvis/hips/low back area. Of course everything is thrown off (my cycle & such, just picked up a prescription for progesterone). That's what I am hoping to fix mostly is the pain & the fatigue. But my SBFT didn't show any strictures, just pooling of contrast in the cecum/ileum, so I don't think I have anything but a mild case. Especially since the biopsies of the colon from the last colonoscopy back in October (they didn't do any of the ileum or cecum or even look at the ileum-that's why I have to have another colonoscopy) showed inflammation & active colitis with only mild crypt distortion. I don't think much was happening then, & I think I am pretty lucky & caught it early enough & it's mild enough it should be fixed no problem pretty quickly. I hope.
Live for today, for tomorrow you might just get hit by a semi.

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