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Sharann
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Date Joined Sep 2005
Total Posts : 778
   Posted 2/28/2008 6:29 PM (GMT -7)   
That extreme fatigue is not caused by Crohns. So why am I so tired? He doesn't know.
He said it can't be from CD, and I am off the 6MP for a week now, so it isn't that. All CBC labs
are normal, livers normal. So it must be in my head.
So he did some labs for lupus but I bet they are normal.
I am a Certified Doxie Lover(Weinerdogs)


MaryS
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Date Joined Jan 2003
Total Posts : 1668
   Posted 2/28/2008 6:44 PM (GMT -7)   
I do not believe it is in your head at all. My Daughter suffers the same and has since before diagnosis 8 years ago and no one can pinpoint the cause. Her B levels and iron are checked all the time. Hormonal levels were checked, Adrenals checked. Everything keeps coming back normal, normal, normal. She has had every blood work imaginable done and no answers.

Fatigue has been there before diagnosis, not in remission and in remission. No other health issues going on so that pretty much leaves Crohn's as the culprit if you ask me. It's been the same no meds, or almost any meds she has been on. Only time she wasn't fatigued is when she was on Prednisone. She hated being on Prednisone, but she loved that she was not fatigued on it! The fatigue would return once she got down to 10mg though.

Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 2/28/2008 6:59 PM (GMT -7)   
have you gotten your vitamin b12 levels checked, that is something us chronics lack a lot and it can cause fatigue when missing, I know when I dont' get my shots I get SUPER fatigued, so check that too if you haven't already.
26 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.


Sharann
Veteran Member


Date Joined Sep 2005
Total Posts : 778
   Posted 2/28/2008 7:12 PM (GMT -7)   
Hi MAry and Lady:)
I actually got a B-12 shot from the GI doc. It was his idea. He said it may be psychological he doesn't know but it helps some people.
I said shoot away, it cant hurt more than the fatigue feels.
Take care. I am just tired all the time with no reason for it. This is not norm for me, I usually don't feel SLEEPY and pooped constantly like the last 2 weeks. I am sorry your daughter has this too MAry
I am a Certified Doxie Lover(Weinerdogs)


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 2/28/2008 7:19 PM (GMT -7)   
Umm...in many books fatigue is listed within the disease description! Where in the heck did this doc. go to school?

Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 2/28/2008 7:30 PM (GMT -7)   
6 mp makes me feel tired. How is your iron level?.
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/28/2008 7:45 PM (GMT -7)   
yes fatigue can b a symptom of crohns especially in a flare! o and i have severe anemia which also contributes...so sugar marie's question is vital, u should definitely have ur iron checked
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/28/2008 7:55 PM (GMT -7)   
Fatigue is a symptom of this disease...I agree where did this doc go to school.
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...


ALI9
Regular Member


Date Joined Jan 2008
Total Posts : 95
   Posted 2/28/2008 8:03 PM (GMT -7)   
I totally agree fatigue has been a symptom for most of us that suffer with this disease, Time to check out a new Dr !!!!!!!

Sharann
Veteran Member


Date Joined Sep 2005
Total Posts : 778
   Posted 2/28/2008 8:09 PM (GMT -7)   
I wonder where he went to school too sometimes although he has actually been one of the brightest GI docs I have yet to meet. He is the one who recommended Fish oil and seems smart. I just don't think he is A Crohns doc, but few are to tell the truth. If I go back to Cedars I KNOW I will end up in some crazy research project and I am not feeling well enough for that!
I have low irons but not too bad, it is now 10% saturation. I have been as low as 2 or 3% before. I was never th is tired even with the low irons.
I feel like I need sleep even though I just slept 12 hours, I need 2 more hours by noon.
Thanks again for the support.
I am a Certified Doxie Lover(Weinerdogs)


upt0106
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 2/28/2008 8:14 PM (GMT -7)   
Fatigue is most definitely a symptom of Crohn's disease. Here's just a few reputable sources supporting the fact:

From the Mayo clinic: http://www.mayoclinic.com/health/crohns-disease/AN01434
Fatigue is a fairly common symptom of Crohn's disease and can have many causes. Treatment depends on the underlying cause. During a flare of Crohn's, you may experience fatigue and lethargy as your body fights the disease. In such cases, treatment is directed at the active Crohn's disease.

From the American Academy of Family Physicians: http://familydoctor.org/online/famdocen/home/common/digestive/disorders/810.html
Symptoms include stomach cramps and pain that comes and goes, diarrhea, and blood in your stool. Other symptoms include losing weight, feeling sick to your stomach, having joint pain and feeling tired.

from Crohnsonline.com: http://www.crohnsonline.com/about/Default.aspx
Commonly reported symptoms include the following:
* Persistent diarrhea
* Abdominal cramps and pain
* Fever
* Fatigue
---
-Male, age 31
-Diagnosed with Crohn's 2002 - 5 surgeries for peri-rectal abscess in 2002-2003
-Started Makers Diet 26 Jan 08
-currently on prednisone taper after landing myself in the ER with a partial obstruction


Sharann
Veteran Member


Date Joined Sep 2005
Total Posts : 778
   Posted 2/28/2008 9:11 PM (GMT -7)   
Wow, thanks upT0106. I appreciate that info alot.
Take care
I am a Certified Doxie Lover(Weinerdogs)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/28/2008 9:43 PM (GMT -7)   
Your GI is wrong...my GI says this (he is the Dear Dr. for the CCFC) and wrote this in response to a question about fatigue...he is one of the top lead researchers for crohns and colitis in Canada.

Fighting fatigue

DEAR DOCTOR: I’m a 53-year-old male who was diagnosed with Crohn’s disease in 2000. My intestine was blocked and 12 inches of my bowel was removed. My biggest problem now is that I’m always tired. My only medication is a B12 shot every three weeks. Should I be taking anything else?

DEAR CCFC MEMBER: Fatigue is a common complaint of patients with Crohn’s disease, even when they are in remission. In general, fatigue can be explained by nutritional deficiencies from either active disease, previous surgical resection or bacterial overgrowth. This includes vitamin B12 deficiency or iron deficiency.

Many patients with a chronic disease (especially chronic inflammatory diseases) will experience fatigue because of the underlying chronic inflammation and the struggle of your body to try to control this inflammation, thereby expending “internal” energy.

Other causes of fatigue, which may not be directly related to Crohn’s disease, such as depression, thyroid problems and hematological problems should be explored.
My bum is broken....there's a big crack down the middle of it!  LOL  :)


MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 2/28/2008 11:13 PM (GMT -7)   
Thyroid is definitely an area that needs to be checked and crossed off the list of possible fatigue if it checks out fine. That is one the tests my Daughter has had done several times.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/29/2008 6:28 AM (GMT -7)   
Regardless of how much you may or may not like this doctor, I would be inclined to find a couple of good scientific journal articles listing fatigue as a symptoms of Crohn's and mail or FAX them to his office if I wasn't scheduled to see him very soon or take them w/me to my next appointment if I was scheduled to see him in a short time.
 
I even have a front license plate that says: "I LOVE it when I'm right!" *wicked grin* My husband says that is because I'm more often wrong. *sigh* (What does he know, he's only a man).


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 2/29/2008 6:33:28 AM (GMT-7)


map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 2/29/2008 10:03 AM (GMT -7)   
Hey pb4, can you post a link to the article that you partially quoted?  It sounds like something I really ought to read.  I have fatigue really frequently and if there's more to the article, it did mention some things that I hadn't read about fatigue yet so I am curious to read more!

Sharann
Veteran Member


Date Joined Sep 2005
Total Posts : 778
   Posted 2/29/2008 10:22 AM (GMT -7)   
Ok, let me clarify that he said that this severe fatigue isn't from CD.
I am sure he is wrong. He has been wrong many times like all of us.
I am not overly fond of him, he is just one of the less dangeous ones I have found!
I am a Certified Doxie Lover(Weinerdogs)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/29/2008 12:18 PM (GMT -7)   

Here you go map lady (just so you know I did copy the entire Q about fatigue that was written to the Ask the Doctor) but here's the link to the page for you anyway.

 

 

 
 
:)



My bum is broken....there's a big crack down the middle of it!  LOL  :)

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