GI ? for young crohnies

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lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 2/28/2008 9:41 PM (GMT -7)   
Just wanted some advice on Dr's.  My daughter is 15 and sees a pediatric gastroenterology specialist.  Being new to this, I thought....can't get any better than that?!  This is the only pediatric group around here, so obviously very crowded, busy.... blah, blah, blah.  Does she need to stay with pediatrics or would she be fine, perhaps better off, moving up with the big kids?
Mother to 15 yr old daughter diagnosed w/CD 9/07.  Had col & endo in 9/07, small bowel follow through 11/07, surgery for abcesses 11/07.  Curently taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, entocort-x3, 6 mp 50mg-x3.....still not doing well.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/28/2008 10:13 PM (GMT -7)   
well i loved my pediatric gastro! and he kept me until 16, he said there was only so much he could do being that he did specialize in children and i was reaching adolesence, in which case, my menstrual cycle was becoming a cycle and vaginal issues and so forth. Mayb u should ask her doc and see what they feel comfortable with...
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
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Temp Ileostomy performed 1/29/08
Still Adusting
 
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MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 2/28/2008 11:08 PM (GMT -7)   
Some Adult GIs might not want to treat a teen until they are about 18. My Daughter was diagnosed at 17 right before her 18th Birthday and we were so new, uneducated and literally scared about having to switch so soon to an Adult GI that her Ped GI offered to treat her through her College years which turned out to be wonderful because she really liked him and was comfortable with his care. He kept her on for awhile after she graduated College too, from age 17 to 23. Not all Ped GIs would do that, but a few do.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 2/29/2008 8:50 PM (GMT -7)   
Pediatric GIs might use different tools, like pediatric scopes for colonoscopies. Also, they can be more used to working with parents.

Post Edited (njmom) : 2/29/2008 8:53:07 PM (GMT-7)


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 2/29/2008 9:03 PM (GMT -7)   
I was taken on at 17ish and always with adult gastros....the advantage would be someone who can look at you both young and old without having to switch halfway through treatments of course, but do whatever your happy with right now, it shouldnt' be a problem either way really.
26 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.


jellybean1887
Veteran Member


Date Joined May 2005
Total Posts : 1362
   Posted 3/1/2008 8:02 PM (GMT -7)   
I saw my peds GI through age 22 and just recently switched (I am still 22). Honestly, I would stick with the peds GI doctor. I find that many pediatric doctors are so much more compassionate than the adult doctors. Since I have switched to adult care, I have had nothing but problems. I have been in an uncontrollable flare for over six months, and I actually had two adult doctors tell me I didn't have IBD. I actually had to go to the Cleveland Clinic to get "rediagnosed" with IBD. It has been so horrible. I definitely wish that my pediatric GI doctor could still be treating me. Anyway, just my experience. Take care!
aA
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Current Meds include:Lialda, Prednisone, Canasa, and Zofran


geogal84
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/4/2008 10:12 PM (GMT -7)   
I would stick with a ped as long as possible. Mine treated me through my college years, until I was 21.
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