Help with diarrhea? Just got out of the hospital.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

stuckonyesterday
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 2/29/2008 9:56 PM (GMT -7)   
Hey everyone, I haven't been on here in awhile and I forgot how much it was helping me emotionally; I've been having a tough time lately so I thought I'd get my little Crohnie butt back here :P My signature gives a brief overview of my situation, but I'm going to talk about my latest flare in hopes that someone might have a suggestion. Last Friday it snowed a lot so my college closed. I live close to home but I was so weak I couldn't get out of bed; my mom had to drive up to come get me. Since around February 7 I have been having no solid bowel movements--the stool is always very watery and mushy, and it seems like I have to go everytime I eat. Always in the morning and usually 2-4 times a day. So that night I just slept the rest of the day and was shivering and couldn't eat. The next day was more of the same, and more diarrhea as usual. I finally got half a sandwich down, and then threw up. My mom was worried I would be dehydrated so they called the ambulance. The people came and carried me out of my room, down the back steps, and put me on the stretcher to go to the hospital. Soo scary. Anyway, it turns out I was severely dehydrated. They gave me lots of IV fluids (gosh, isn't it annoying waking up every hour in the hospital to pee because of those fluids??), and did a lot of bloodwork. I was there Saturday until Thursday night around 8pm. Oh when I came in I also had over 102 fever I think. They gave me some Tylenol for that I believe and medicine through the IV for the nausea. I was watching Forrest Gump by the way that first night lol. Anyway, then the next day or two I was on a clear liquid diet. I was supposed to have done a small bowel/upper GI series but I hate drinking that contrast stuff..I'm really bad keeping down liquid stuff like that. At least when I had the CAT scan I could sip it over time. But those rock candy type things with water that makes you want to burp made me so nauseas, and then I started drinking the barium and they're like "you have to drink it continuously" and I couldn't do it. My body just wouldn't let me..I wanted to throw up so bad. So we just stopped the test..my gastroenterologist thankfully said it wasn't really imperative to finish the test right now. Hmm what else..so then I was starving and finally got on a soft bland diet..the food was actually really good at the hospital. They were giving me my Flagyl through the IV...and umm what else? They gave me these huge pills since my potassium was low..I choked on one and like spit up..nobody heard me coughing so thank god I managed to get the thing out of my own throat. Also they started me on Protonix (which is really helping my cough YAYAYAY!) and on the Prednisone (now that I'm home I have it orally, I thinkkkkk we started at 40 mg..to be tapered by 5 mg every 5 days). They also continued giving me my Asacol. And they had me drink some of this powder that turns orangy when mixed with water to add bulk to the stool and bind me a little..honestly it was nauseating me so I only ever finished the entire cup once. The stool finally seemed to be better than diarrhea..it was less watery and sort of formed..so I was happy. I was finally discharged and came home last night after meeting with a hemotologist and getting an iron infusion (he also wants to prescribe folate I think and give me weekly shots of iron I guess?). I was having a good morning but I think I was a little too optimistic. I had a formed bowel movement (sort of) this morning, and then later on 3 separate bouts of that all-too-familiar mush/liquid =( The doctor said not to worry..it's going to "be up and down." BUT...what do I do about this diarrhea/mush?! Any suggestions? It's so inconvenient and embarassing..I feel like I can't go anywhere. Does anyone know of anything to help bind you? I need to find out the name of that powder from the hospital, I think it started with a C. But really, if anyone knows any binding stuff..let me know. I tried Immodium but I don't know that it really helped..maybe I just didn't take enough. Pepto Bismol didn't help...and before the hospital I'd started Lomotil for a day...only 1 pill and I had this dizzy spell where I almost passed out..so I guess I can't take that. Any suggestions would be great, thanks so much!!!!
 
Also...does Prednisone really make you gain weight? Because I'm crazy thin and I really NEED to gain some weight. I'm kind of around 89-91 pounds now ugh.
Female. 18 years old. Symptoms began 8/1/07. CT Scan clear. Chest X-ray clear. Endoscopy on 12/1/07 showed some gastritis; colonoscopy on the same date showed Crohn's in the biopsy. Symptoms include: pain in the gut, mouth sores (not present currently), excessive gas, a sore bum, anal skin tag, a Crohn's fissure, and a cough that's lasted for months (possibly related to acid reflux). No menstrual cycle present since 7/17/07 (& am not sexually active). Am currently on: Asacol, Flagyl, Protonix, and Prednisone. Am anemic. Current main problem: constant diarrhea.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 2/29/2008 10:24 PM (GMT -7)   
I'm so sorry that you have had such a rough time lately! It sounds like your medical team in the hospital really tried to work on the issues making you so ill.

I have a question ~~ Before, when you first got sick, prior to taking any meds for the Crohn's, did you have constant diarrhea then too? Reason I ask is that is some people, Asacol can actually make diarrhea worse. Be mindful that it is only a small percentage of people that have this problem, but it does occur.

Now to the question about things to "bind" you up. The powder they gave you in the hospital was likely cholestyramine resin . It is the component of several products that do help stools to form up. The thing about cholestyramine products is that it can take a while to get the "right" amount - too little and you still have diarrhea or mush and too much and one gets constipated. With the cholestyramine products it is key to "work up" to the dosage that works best for you.

Prednisone tends to increase the appetite. Most people complain of weight gain when they take it. Often though the weight gain is in the form of fluid retention. So watch that your feet and legs don't swell. Make sure you drink lots of liquids so you don't get dehydrated again.

I'm sure other with better suggestions will be along soon to offer up some comments. Please take care of yourself!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


stuckonyesterday
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 3/1/2008 10:53 AM (GMT -7)   
Thanks for your reply, I appreciate it!
 
To answer your first question, I did not have any diarrhea before the Crohn's or medications. My problem actually started around August 1, 2007 with chronic constipation..go figure, right? I have been on Asacol since December 1, 2007. The diarrhea started around February 7..which was about two or three days after I started taking Flagyl..but none of the doctors seem to think the Flagyl is causing the diarrhea.
 
Oh wow that name does sound familiar, that's probably it! Thanks! I'm horrible with drinking stuff down like that..powders and things, but if it will help I can try as much as I can tolerate. Do you need a prescription for that or can you just get it over the counter? My gastroenterologist said I could try Lomotil again with just one pill to see how that goes, but I'm a little scared since I took that last week the day before ending up in the hospital and had a horrible dizzy spell and felt like passing out, and it didn't really even help at all. I'm going to see what goes on with my system today and then maybe I'll try it and see what happens.
 
I don't think I have any swelling right now..my legs are a bit sore but I think it's because I'm not really used to walking around since I was in that hospital bed for a week. Are the signs of swelling usually obvious? And yes I am trying to make sure I drink lots of water.
 
Thanks for all your help! :-)
Female. 18 years old. Symptoms began 8/1/07. CT Scan clear. Chest X-ray clear. Endoscopy on 12/1/07 showed some gastritis; colonoscopy on the same date showed Crohn's in the biopsy. Symptoms include: pain in the gut, mouth sores (not present currently), excessive gas, a sore bum, anal skin tag, a Crohn's fissure, and a cough that's lasted for months (possibly related to acid reflux). No menstrual cycle present since 7/17/07 (& am not sexually active). Am currently on: Asacol, Flagyl, Protonix, and Prednisone. Am anemic. Current main problem: constant diarrhea.


gardenrat
Regular Member


Date Joined May 2007
Total Posts : 82
   Posted 3/1/2008 4:07 PM (GMT -7)   
Questran, yup! I use it for diarhea and it's a godsend. It is a prescription, but it's about the safest thing I've ever used for by problems. And it's true that you pretty much play around til you find the right dose that works for you. I wish I'd have known about it 5 years before I did! Would have saved me a LOT of pain and suffering, to say nothing of making my TP bill lower. ;)

stuckonyesterday
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 3/1/2008 4:39 PM (GMT -7)   
Questran? Ohhh okay, I'll tell my mom and maybe we can ask my gastroenterologist about that. My system has been pretty kind to me today, actually. I've gone all morning and through breakfast and lunch with no BM! I'm expecting something after dinner but hey, if I can get away with only going once or twice right now I'll be happy.
 
On another note...I know it's different for everyone, but I was wondering for those of you who have flare ups of constant diarrhea how long it usually lasts before going away? I've been having mine since around 2/7 and the doctor says not to worry, that it will probably be going up and down. But I keep holding on to how all the doctors say that many Crohn's patients go for long periods of times without symptoms, sometimes even years! I hope that will be me at some point haha cool
Female. 18 years old. Symptoms began 8/1/07. CT Scan clear. Chest X-ray clear. Endoscopy on 12/1/07 showed some gastritis; colonoscopy on the same date showed Crohn's in the biopsy. Symptoms include: pain in the gut, mouth sores (not present currently), excessive gas, a sore bum, anal skin tag, a Crohn's fissure, and a cough that's lasted for months (possibly related to acid reflux). No menstrual cycle present since 7/17/07 (& am not sexually active). Am currently on: Asacol, Flagyl, Protonix, and Prednisone. Am anemic. Current main problem: constant diarrhea.


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 3/1/2008 8:53 PM (GMT -7)   
try marshmellows or arrowroot biscuits thats if u get them where u live. ive jst had my illeostomy reversed so i gt bad d atm its bloody annoying
dx 17th August 2007,after 2 years of syptoms 20 yrs old 100mg azamun,40mg,losec,3000mg pantasa,20mg prednisone,9mg entocort


stuckonyesterday
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 3/1/2008 11:15 PM (GMT -7)   
Marshmallows..really? Wow I've never heard of that one, thanks!! I'll definitely give that a shot. It always helps when you can try to eat something to aid your problem rather than take some gross medicine. I've also been trying to eat banana every morning, and rice when I can. I was eating a lot of bagels but I haven't really had one since I've been in the hospital. Mmmm now I'm hungry lol.
 
I actually was a bit lucky tonight...only two BM's late in the day. Not all diarrhea..the first actually seemed to be an improvement, the second more of the runs. But hey, it was only twice and it seemed a little better so I'll take it!
Female. 18 years old. Symptoms began 8/1/07. CT Scan clear. Chest X-ray clear. Endoscopy on 12/1/07 showed some gastritis; colonoscopy on the same date showed Crohn's in the biopsy. Symptoms include: pain in the gut, mouth sores (not present currently), excessive gas, a sore bum, anal skin tag, a Crohn's fissure, and a cough that's lasted for months (possibly related to acid reflux). No menstrual cycle present since 7/17/07 (& am not sexually active). Am currently on: Asacol, Flagyl, Protonix, and Prednisone. Am anemic. Current main problem: constant diarrhea.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 7:24 PM (GMT -7)
There are a total of 2,732,817 posts in 301,057 threads.
View Active Threads


Who's Online
This forum has 151209 registered members. Please welcome our newest member, Old Editor.
328 Guest(s), 18 Registered Member(s) are currently online.  Details
Wdan, Psilociraptor, trader758, Tick41, Pratoman, Lynnwood, Alice22, Buzzlymeyear, ks1905, Ed Ski, lynn421, Red_34, Ggrlsav, The king, Old Editor, Sue*Nash, Sissy63, Peter A


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer