question from a UCer for my friend with crohn's

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hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/1/2008 1:33 PM (GMT -7)   
hello all!
a good friend of mine with crohn's just ended up in the hospital and asked me about asacol.
i use it and it works for me for maintenance, but didn't know if it would work for crohn's.

a brief history of my friend...
she has had (the doctors think) both crohn's and UC since she was about 8 years old.
had a colectomy in high school.
has been up and down with crohn's ever since.
i know that flagyl has helped her feel better in the past but for the last several months she has been on no meds. she was doing well like that for a while but obviously not any more.

in the hospital she is on steroids, antibiotics, benadryl (she's got some kind of virus at the moment) and IV for nutrition as her weight is very low.

anyway, so i guess my question is does asacol work for crohn's? or what else is out there as a maintenance drug?

thanks!!
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


Megera
Regular Member


Date Joined Feb 2008
Total Posts : 92
   Posted 3/1/2008 2:16 PM (GMT -7)   
It depends where her Crohn's is... I was on Asacol until they figured out my Crohn's was in my small intestine and switched me to Pentasa. It's basically the same thing except it releases the medication where my small intestine needs it unlike the Asacol which would release the medication in my large intestine.

Hope that helps :)
Current:
Dx: Crohn’s Ileitis as of 22/02/08
Rx: 4g Pentasa (2 pills 4 times per day)
9mg Budesonide (one capsule 3 times per day for the next 6 weeks)

Pre 22/02/08: 2.4g Asacol (discontinued due to Crohn's Diagnosis)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/1/2008 2:32 PM (GMT -7)   
Since she no longer has a colon (because of her colectomy in high school) then there's likely no need for drugs like asacol or imuran which are targeted to reach the colon/large bowel/large intestine...her CD accting up is likely in the small bowel region and she needs meds that will target that area.

The same meds used to treat UC are used to treat CD if the location is the colon or the rectom (with rectal meds)...I have crohns-colitis which is what it's referred to when CD is affecting the colon...proctitis is inflammation of the rectom from either UC or CD, CD can affect the entire GI tract from mouth to anus, UC is limited to the colon/rectom area.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 3/1/2008 2:47 PM (GMT -7)   
Just wanted to jump in here to clarify about imuran, if you don't mind.

Imuran is an immunosuppresant and not a maintenance drug, it's actually pretty potent because it targets the immune system itself.

My crohn's is in the terminal ileum and they put me on pentasa because of the region. A relative of mine has been on pentasa for years as a maintenance drug (since surgery more thn 10 yrs ago) and she's been in complete remission ever since. Pentasa didn't help me at all.

Pentasa works for some ppl, not for others. Like all drugs, I guess.

Hope your friend gets better soon.

Post Edited (Roni) : 3/1/2008 2:54:55 PM (GMT-7)


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/1/2008 2:53 PM (GMT -7)   
thanks!
i thought that was the case with asacol (that it dissolves in the colon and not the small intestine) so obviously that won't work for her.
i know she won't want to do any immunosuppressants.
i'll let her know she'll have to look around.
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 3/1/2008 2:56 PM (GMT -7)   
i've been on imuran for years. It hasn't actually put me in remission tho, but my doc says that he's seen it burn out the crohn's eventually.
It's actually a good drug for steroid dependant crohnies and UCers.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 3/1/2008 10:36 PM (GMT -7)   
I too have been on Imuran for a few yrs. My dr says it is a good maintenance drug. Susie


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 3/1/2008 10:46 PM (GMT -7)   
LOL. I guess any drug can be a maintenance drug if it keeps you in remission. :-)
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