YogaProf, Adhesion Surgery Questions

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Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 3/2/2008 7:58 AM (GMT -7)   
YogaProf, Can you tell me about your adhesion surgery? I just would like to be informed about what type of surgery, recovery .... before my appointment with my doctor. I always like to have as much info as possible before I go in so that I can ask as many questions before I leave. I hate thinking on the way home, why didn't I ask....

Things like what is the recovery time, how long before you can lift anything? I assume it was laproscopic? I'm not even sure they will even consider it for me yet, but this is getting out of hand. I have been out of commission for a week this time. Everytime I so much as eat a cracker things get twisted back up. I am spending some part of every day this week just waiting for the waves of pain. Even my normal safe foods, aren't safe.

Thanks for any information.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 3/2/2008 4:55 PM (GMT -7)   
Bump
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 3/2/2008 5:39 PM (GMT -7)   
Zanne: I notice your last resection was 97. Where were your resections? Can they easily visualize the proximal side of the anastamosis? Are you sure that there is no stricture there? As far as the surgery itself, if you can have it done laproscopically then recovery should be very quick. I would expect you'd be out of hospital within a day or so and able to pick up the threads of your life within a couple of weeks, maybe not heavy lifting for a bit longer, but most things. But are you sure with three major surgeries in your past you are a good candidate for laproscopic surgery. That is something I'd want to discuss.

I recognize that with multiple surgeries we can become surgical cripples and that adhesions have a role to play in our level of pain and even in causing obstructions. However, because of my history, before i consented to an adhesion release, especially if it were an open surgery (laparotomy) I would want to know for sure that my symptoms were not being caused by a stricture.

I learned the hard way after I had emergency surgery in 2002 for an obstruction that wasn't clearing. I expected to wake up to a resection, but instead the first thing I learned when I came to was the the doc had decided against the resection and only did an adhesion release. His decision was based on my history -- none of my sbft had been able to really visualize the site of my first resection and on colonoscopy everything up to the anastomosis looked great. Just couldn't get through it. My blood work had always been relatively good, so for the previous decade since my first resection, my health providers weren't too concerned about what was going on in my belly. I got good at ignoring symptoms too.

The surgeon was convinced that the dozens of obstructive episodes I had endured in the previous four or five years were due to the bowel getting twisted from adhesions. He assured me that, externally, my bowel looked good and that the problem was solved. Despite my initial panic I wanted to believe him.

On the basis of that prognosis I changed careers, left a job I loved and had had for 20 years and accepted a new position in a career that would give me more regular hours, better money etc etc. A new beginning! A week before i was to start in my new position, less than five months after surgery, I had the worst obstructive episode ever. And I felt like my world was crumbling. The surgery had solved nothing.

I managed to tough it out for three years, before going back under the knife to get rid of the obstruction, but I knew that night that my initial misgivings after learning what the surgeon hadn't done, had been validated. In my case it was wasted surgery and significantly complicated the situation in my tummy. For sure no surgeon would touch me now laprascopically. It's just too much of a mess in there.
Belleenstein:

30+ years living with Crohn's.


crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 3/2/2008 5:47 PM (GMT -7)   

Hi,

I am also interested in the surgery you speak of, I have gone full circle with crohn's and after 4 major surgeries I suffer with constant pain. I have been seeing a pain management Dr. for about 4 years and I feel it is becoming less efective as the days pass. I have spoken to 2 surgeons so far and it has been very hard to find someone who will follow behind 4 other surgeries ( I think there is a large risk of problems) so far I have been told if I choose to have the surgery that It is possible that the surgery could escalate into opening up the whole abdominal cavity, and it is not foolproof. Knowing that so far has kept me away. I would like to know more so I can make a better decision when the time comes.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/2/2008 7:42 PM (GMT -7)   
Ballenstein, I don't know if I would be a candidate for laproscopic surgery. I just know that this is happening all too often for my comfort level. As far as the trouble being at the anastamosis, they have done so many colonoscopies/endoscopies/SBFT/CT/MRI and every other test imaginable in the last 2 years (more than 12 colonoscopies most with endoscopies thrown in for good measure) that they are pretty sure there is not much active disease and no strituring. The last time I spoke with my GI about these episode, he told me to keep track of how often they were happening and that I really didn't want to be having more than 5 or so in a year. This week is 4, 5, and 6 in 5 months. The fact that they happened so quickly together and that one happened while I was out of state and had to drive home was a little bit of a wake up call. This can't continue like this.

I'm just trying to make sure I know what my options are before I meet with my doctor on Tuesday. My "regular" job is pretty easy and I can pretty much tailor it to my needs and I only work one day a week, but I just started helping a friend by watching her 4 month old a couple of days a week. So, if I can't lift things for a period of time, she will have to make other arrangements. I hate when my issues cause problems for other people. Based on all of your posts, I would have to say, I am a bit like you. I refuse to let CD change the way I live my life. I can watch a baby even if I am in pain, maybe not if I have a complete blockage, but you get the picture.

I just want to know what my options are and at what point I need to start pushing for something more than wait it out.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 3/2/2008 8:26 PM (GMT -7)   
Does prednisone help resolve these episodes?
Belleenstein:

30+ years living with Crohn's.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/3/2008 5:47 AM (GMT -7)   
Not at all, another clue that it isn't active disease.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 3/3/2008 7:21 AM (GMT -7)   
So why does your doc have you on prednisone?
Belleenstein:

30+ years living with Crohn's.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/3/2008 12:22 PM (GMT -7)   
hey, I was out of town and am working right now, but will get on and comment in a bit. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/3/2008 1:24 PM (GMT -7)   

Hi Zanne, Now I have a minute to respond. I am so glad I checked a page back on the list of posts and found your question. yes, both my surgeries were laparoscopic. I didn't do much the first week, but was up and around the second. I don't do much lifting, anyway, so I don't recall instructions about that. I was back to yoga after about 3 weeks. i was sore, for sure, for a couple weeks. I actually worked within a few days, but that was just lecturing a couple of hours and then back to bed.

to recap for others, this decision was made because after initial positive diagnosis of crohns, latter tests didn't show active crohns, but I was in horrible pain daily. my GI believed it was caused by adhesions (although some docs don't see them as a cause of pain). my bowel was stuck to the inner wall and folded over itself, so the surgeon cut it away, and it did help with pain. the pain has never been totally gone, still, but the surgery helped and the past two months of being gluten-free has helped as well. 

the crohns, who knows what happened with that. i am just focusing on symptoms and living my life.

ask me more, Zanne and take care, Betz



48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/3/2008 4:38 PM (GMT -7)   
Yoga, did they do any testing first, or was the laparoscopy exploratory to see what was going on? I mean did they know they were dealing with adhesions? Were both surgeries for adhesions?

I'm not sure what my GI will have to say in the morning. When a blockage put me in the hospital in September one doctor was gung ho to talk about surgery, my GI didn't even want to discuss it as an option. Frankly I didn't either. I think one of the reasons my GI is so against any surgery is that it can create more adhesions, but, I just wasn't really paying attention to how often this was happening, and this week has really freaked me out. I've had repeated blockages, or they haven't fully cleared, not really sure, since I won't go to the hospital unless I'm dehydrated. I've been in constant pain and can't eat anything except full liquids, and even that is causing some issue. I just know that I am reaching a point where I want to at least know what my options REALLY are. If I am not a candidate for this, I want to know. If there is anything else they can do, then I want to know about that too. But the percocet just isn't cutting it, and I'm not willing to go to the ER to get anything stronger, cause that will mean they will admit me for several days of IV. I have better TV's at home thank you very much!

Ballenstein, I'm on a small prednisone dose because I can't seem to get off of it. I've been on it for so long that I have become steriod dependant. I've been tapering by 1mg for the last 7 or 8 months and I'm down to 4mg at the moment. Maybe by the end of the year I'll be off of it! Its the lowest I've been in about 14years.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/3/2008 6:49 PM (GMT -7)   
the first one was looking, the second was cutting. they can't tell if it is adhesions without looking...a pretty vicious cycle! my GI felt that was the problem because it was so difficult to do a colonscopy on me; nothing moved!
your appt is tuesday morning? tell me what happens! Betz
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/4/2008 4:34 PM (GMT -7)   
Just as I suspected, MORE tests. I'm scheduled for a SBFT on Tuesday next week, had more blood work done today even though I just had blood work done 2 weeks ago and then I go back on April 1st. But at this rate I will be down another 10 to 15 lbs that I really can't stand to lose. So needless to say, I'm a little frustrated. Anything more than full liquids and I get in trouble.

My last set of tests was only 6 months ago and all was reasonably fine with only minor active disease. No stricturing and at the time he thought the blockages were adhesions. Now he wants more tests, again. Just a bad day. I'm not even sure what I wanted to come out of my appointment. I just want to move forward and instead I feel like I'm stuck in a holding pattern.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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