being tired all the time

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Bionic
New Member


Date Joined Feb 2008
Total Posts : 7
   Posted 3/2/2008 6:11 PM (GMT -7)   
A quick question. When I have a flare up and it lasts more than a week I seem to get extremely tired and I don't really know how to fix this.
Regards Bionic.

nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 3/2/2008 7:18 PM (GMT -7)   
Me, too--and I don't know what to do about it, either. It could be malabsorption; it could be exhaustion from all the diarrhea; it could be dehydration; it could be the total fatigue you get from "fighting something off," with your immune system in overdrive. My exhaustion is exaggerated, too, because I get edgy with flares and stay up really really late, trying to numb my mind at the computer until I'm falling asleep in my chair. Anybody got any suggestions?

stuckonyesterday
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 3/2/2008 7:21 PM (GMT -7)   
Yeah I get this too. And now I'm getting headaches but one Tylenol seems to help that. Other than that I just try to take a nap during the day and if I can get my work done early I try to get to bed asap instead of staying up to watch tv or do something that's not necessary.
Female. 18 years old. Symptoms began 8/1/07. CT Scan clear. Chest X-ray clear. Endoscopy on 12/1/07 showed some gastritis; colonoscopy on the same date showed Crohn's in the biopsy. Symptoms include: pain in the gut, mouth sores (not present currently), excessive gas, a sore bum, anal skin tag, a Crohn's fissure, and a cough that's lasted for months (possibly related to acid reflux). No menstrual cycle present since 7/17/07 (& am not sexually active). Am currently on: Asacol, Flagyl, Protonix, and Prednisone. Am anemic. Current main problem: constant diarrhea.


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 3/2/2008 8:20 PM (GMT -7)   
Chronic fatigue has ruled my life ever since my Crohns started getting bad about ten years ago. I've pretty much been fatigued and mostly depressed since then.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


Malibu05
Regular Member


Date Joined Sep 2007
Total Posts : 98
   Posted 3/2/2008 8:51 PM (GMT -7)   
Everybody always asks me what the worse part of my disease is I always tell them that its my constant fatigue. Its always there. I take B12 injections that help a little but it sucks so bad.

Courtney L.
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 3/3/2008 10:27 AM (GMT -7)   
I second that - or 92nd that!!  I get soooo tired and I feel like such a slacker!  Then I have no excuse because I'm up in the middle of the night!  I also take B12 shots (1 ml ever 2 weeks!)  As I'm sitting here (at 11:30 am) I am exhausted!!  aaaahhhhhh I have no idea what to do!  But I totally sympathize.

Married, 34 with a 5 year old daughter,
 
Diagnosed 8/96, 2 bowel resections, many hospitalizations, CD only in terminal ileum. Currently on Azathioprine, Wellbutrin & sometimes Xanax!! 


Travisr6
Regular Member


Date Joined Feb 2005
Total Posts : 192
   Posted 3/3/2008 11:27 AM (GMT -7)   
I agree with this...I get to feeling so "weak" and tired...Sometimes I just feel like my body is giving out. This always accompanies my flare-ups.
:O(
-------------------------------------------------------------------------------------------------
Travis
Crohn's- Dx'd Sept.16th 2004

"Whatever tomorrow brings, I'll be there
With open arms and open eyes"


stuckonyesterday
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 3/3/2008 11:55 AM (GMT -7)   
Don't you just hate when you sleep for like an entire day and you get up and are still exhausted and not even refreshed sad
Female. 18 years old. Symptoms began 8/1/07. CT Scan clear. Chest X-ray clear. Endoscopy on 12/1/07 showed some gastritis; colonoscopy on the same date showed Crohn's in the biopsy. Symptoms include: pain in the gut, mouth sores (not present currently), excessive gas, a sore bum, anal skin tag, a Crohn's fissure, and a cough that's lasted for months (possibly related to acid reflux). No menstrual cycle present since 7/17/07 (& am not sexually active). Am currently on: Asacol, Flagyl, Protonix, and Prednisone. Am anemic. Current main problem: constant diarrhea.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/3/2008 12:01 PM (GMT -7)   

I agree that the fatigue is a major issue with CD.  I have watched my hubby lose weight, suffer from fatigue and even from memory loss and he is only 60.  This disease takes it's toll on all.  I have to admire my hubby for his constant battle in not giving in to the fatigue.

Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 3/3/2008 12:37 PM (GMT -7)   

I get really tired all the time too.  Sometimes I have to sleep for 12 hours straight and I can't wake up at all otherwise.  Even with the alarm clock that's louder than a smoke detector going off, I'll sleep right through it when I'm tired enough.  Unfortunately I live alone so that means I miss work or go in late and I wish I could do something about it.

I keep hearing people mention getting your B12 checked, would that be in the routine blood tests they do to check for anemia and inflammation or would they have to specifically check for B12 in another test?  And is getting shots the only solution to low B12 or is something like emergen-c going to maybe help?


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 3/3/2008 5:05 PM (GMT -7)   
I ditto everyone so far. I'm so TIRED of being TIRED all the time. Physically and mentally it makes me feel like a loser because I don't get anything done. It took major will power today just to go to the grocery store after work when what I really wanted to do was go home and sleep. And I think the Crohn's causes fatigue, but the depression that has come along with the CD for me ALSO causes fatigue, too. So even when I'm not flaring and I'm getting enough rest at night, I STILL feel tired throughout the day. I haven't felt like doing anything in months. I needed to call the Terminix guy today but I was just too tired!!!
Diagnosed in October, 2003 at age 31.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 3/3/2008 8:19 PM (GMT -7)   
I as well deal with chronic fatigue even befor being diagnosed with crohns.There are times when it worse and then there are day's its not bad.
Curley
.........
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 3/4/2008 11:36 AM (GMT -7)   
multivitamins really help me when I'm feeling drained of energy.
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


vidoska
Regular Member


Date Joined Sep 2007
Total Posts : 37
   Posted 3/4/2008 12:24 PM (GMT -7)   
B12 shot help me for one day only, next day I am completely exhausted. It seems that I have entered a new stage with fatigue - long sleep and deep sleep is ancient history, now I wake up every hour or two during the night. Two days ago, I had a sudden 'exhaustion attack' so terrible that I was shaking from time to time.

38 years old female, Dx'd July '06, Crohn's collitis and terminal ileitis,

Used Meds: Cipro, Flagyl, Sulfasalazine, 5ASA, 5ASA Enemas, Probiotics,B12 and Iron shots, blood transfusion, Urbason 60mg, Prednisone 20mg - Irigography, X-Ray Intesinal Passage, Colonoscopy in April 06, July 06, Hospitalized - Symptoms long before diagnozed (diarrhea, weight lost, fatigue, exhaustion, pain, subfebrile temperature, joint pain, especially knees)

Current meds: probiotics, prednisone tapering 30mg, sulfasalazine 3x1g, B12 shots, folic acid, omeprazole, xanax 2x0,25mg, alternative: royal jelly, tea mixture,

No surgery so far- History of Graves-Basedow disease in 1995


map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 3/4/2008 1:35 PM (GMT -7)   

Vidoska, you sound just like me.  I am exhausted all the time and get attacks of shaking and extreme weakness.  I don't know about you but I get that whenever I go to the bathroom, makes me really weak afterwards and I feel like I am going to faint, it's like having my insides move around is just too much exercise to deal with.  Sometimes I also get the shaking/weakness attacks out of nowhere and I have to sit down for about 10 minutes before I can function again.

You mentioned you are sleeping badly and waking up every couple hours, I get that from the prednisone and I wonder if maybe that's what is making it difficult for you to stay asleep also.  It seems to help a little to keep myself as cold as possible, I have the heat only at 55 degrees and have a fan blowing on me and I don't wake up as often as I used to.


kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 3/4/2008 7:23 PM (GMT -7)   

I can totally relate. I feel like I need to do more and I should be able to work more than 8 hours a day. All I can do is get up and go to work. I am lucky to have such a great husband. He cleans, cooks, and cares for my kids when I am flared. Being tired is the hardest thing for me. It is nice to know so many people can relate and I am not alone.

Kgirlie


Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 5:56 AM (GMT -7)
There are a total of 2,735,804 posts in 301,336 threads.
View Active Threads


Who's Online
This forum has 151439 registered members. Please welcome our newest member, owillie.
235 Guest(s), 5 Registered Member(s) are currently online.  Details
Rebel_runner, Loutucky, mrs. george, Steve n Dallas, teddydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer