I agree that the fatigue is a major issue with CD. I have watched my hubby lose weight, suffer from fatigue and even from memory loss and he is only 60. This disease takes it's toll on all. I have to admire my hubby for his constant battle in not giving in to the fatigue.
I get really tired all the time too. Sometimes I have to sleep for 12 hours straight and I can't wake up at all otherwise. Even with the alarm clock that's louder than a smoke detector going off, I'll sleep right through it when I'm tired enough. Unfortunately I live alone so that means I miss work or go in late and I wish I could do something about it.
I keep hearing people mention getting your B12 checked, would that be in the routine blood tests they do to check for anemia and inflammation or would they have to specifically check for B12 in another test? And is getting shots the only solution to low B12 or is something like emergen-c going to maybe help?
38 years old female, Dx'd July '06, Crohn's collitis and terminal ileitis,
Used Meds: Cipro, Flagyl, Sulfasalazine, 5ASA, 5ASA Enemas, Probiotics,B12 and Iron shots, blood transfusion, Urbason 60mg, Prednisone 20mg - Irigography, X-Ray Intesinal Passage, Colonoscopy in April 06, July 06, Hospitalized - Symptoms long before diagnozed (diarrhea, weight lost, fatigue, exhaustion, pain, subfebrile temperature, joint pain, especially knees)
Current meds: probiotics, prednisone tapering 30mg, sulfasalazine 3x1g, B12 shots, folic acid, omeprazole, xanax 2x0,25mg, alternative: royal jelly, tea mixture,
No surgery so far- History of Graves-Basedow disease in 1995
Vidoska, you sound just like me. I am exhausted all the time and get attacks of shaking and extreme weakness. I don't know about you but I get that whenever I go to the bathroom, makes me really weak afterwards and I feel like I am going to faint, it's like having my insides move around is just too much exercise to deal with. Sometimes I also get the shaking/weakness attacks out of nowhere and I have to sit down for about 10 minutes before I can function again.
You mentioned you are sleeping badly and waking up every couple hours, I get that from the prednisone and I wonder if maybe that's what is making it difficult for you to stay asleep also. It seems to help a little to keep myself as cold as possible, I have the heat only at 55 degrees and have a fan blowing on me and I don't wake up as often as I used to.
I can totally relate. I feel like I need to do more and I should be able to work more than 8 hours a day. All I can do is get up and go to work. I am lucky to have such a great husband. He cleans, cooks, and cares for my kids when I am flared. Being tired is the hardest thing for me. It is nice to know so many people can relate and I am not alone.