I found this forum while searching out of desperation. I'm really hoping I can find some help here. My 12 month old baby seems to have something wrong with him that no one has been able to diagnose. I suspect that it is something GI related and Crohn's may be a good fit. However, I can't find any information to show me that Crohn's can exist in a baby his age. I'm looking for any advice on what I can do to help out my son. I have a pediatrician appointment later this week so I will have this discussion with the doctor, but I'd like to get some information myself because it seems like a mother's concerns are always downplayed by a pediatrician. I'm going to bore you with the novel that is my son's medical history...
He was born at 38 weeks (full term) weighed 6 lbs 9 oz and was declared healthy. Projectile vomitting soon ensued which led to a dairy free diet. This helped with the vomitting, but he was still very fussy and spit up a lot. At two months he was diagosed with GERD (reflux) and was started on Zantac. Painful feedings and colicy behavior continued and the projectile vomitting returned at 3 months. At 4 months, an upper GI series was done and the reflux was severe during the studies, so we then started Prevacid. He seemed to improve and was eating better and with less pain, but he still was miserable anytime we tried to lay him down for a nap or bed. The colic, screaming at night was insane and we did multiple night feedings as if he were a tiny infant. During all of this, his growth was slow but he did grow. Although he was eating a lot more than recommended because he ate every 3-4 hours day and night, while most 5-12 month olds don't feed at night. He's always been sick too. Lots of upper respiratory viruses and a few stomach viruses too. Just after New Years, we took him to the ER because he was vomitted and lethargic. We were shocked to find out he was severely anemic and needed immediate blood transfusions. The diagnosis we got was that he was slightly anemic to begin with and then a virus supressed his bone marrow leading to the severe anemia. Then two weeks after that hospitalization, he's admitted again with bronchiolitis suspected from RSV infection. During all of this time, he is fussy all the time and screams at night. After getting him home and healthy, he is still very fussy and screaming 3-4 hours of every night. He'll go to sleep and then wake 30-60 min later screaming. He'll scream for about 90 minutes and then pass out to sleep for maybe an hour before doing it all over again. Despite the peditrician telling us not to, we're giving him an 8 oz bottle of milk at 1-2 and another one around 5AM. He eats really well with solids. His daycare teacher calls him her piggy and he's the youngest in the room. He usually has 2-4 BMs per day and they aren't watery, but definately aren't formed. And he's on Iron supplements, which make his BMs dark black. Despite all of the eating, he falls just under the 10th percentile line for weight and is 75th percentile for height at 12 months. Despite all of the reflux issues and other health concerns, we've never been referred to a pediatric gastroenterologist. I plan to ask about that later this week, but would appreciate any advice any of you could offer.
I forgot to mention... my father has Crohn's and I seem to have a gluten sensitivity. I don't have the Celiac antibodies based on bloodwork, but I definately have issues when I eat food w/ gluten. My official diagnosis is IBS.
BTW, a 12 month old baby usually does not have formed stools. They are still quite soft and it is very common to go more than once a day. It will take at least 2 -3 years for their bowels to come up with a routine.
I would definitely get your baby tested for food allergies ASAP if you haven't yet. His symptoms sound a lot like my son's, who was allergic to soy (as well as dairy). My son had all kinds of gi problems, occasional bloody stools, excessive spitting up, not gaining weight well; plus he had congestion, runny nose, wheezing, and just general ill health. Fortunately, he was diagnosed at 2 months, and he was like a different baby once we changed his diet. It is a lot easier to get the skin tests done at an allergist's office than to keep trying different foods on your own. With Celiac being in the family, he should definitely be tested for that as well! I find it is helpful to TELL the pediatrician specifically what you want your child tested for, or what specialist you would like for him to see. Never assume the doctor knows more than you, and do not let him assume it either. If he is uncooperative, find a new pediatrician! It is easy for the physician to see the child as just another patient to see that day, rather than the precious child that he is to you.
I signed up for this forum specifically to respond to your message. I hope your son gets a diagnosis soon, and gets better.