Prometheus Test? I've already been diagnosed

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Cyborg Ninja
Veteran Member


Date Joined Jan 2006
Total Posts : 660
   Posted 3/3/2008 6:54 PM (GMT -7)   
A new GI gave me a slip to get a Prometheus Test done at the hospital. However, I've already been diagnosed with Crohn's Disease and that's what it is, without any doubt. Even saw it during surgery. If it were a NOD2/CARD15 test, I'd be much more interested. Even more unfortunate is somebody wrote all the regular blood tests I need to get done (ESR, B12, CBC, etc) on the Prometheus Test slip (not a normal lab form). So why else would a doctor want me to get a Prometheus IBD Serology 7 test?
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia
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sjkly
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Date Joined Dec 2007
Total Posts : 2113
   Posted 3/3/2008 6:57 PM (GMT -7)   
Doctors like data I have been RF positive for thirteen years and they still run the test every six months to a year. So they may just be adding one more check to the check list.
sj

Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 3/3/2008 8:45 PM (GMT -7)   
Supposedly the Serology 7 test also can give an indication if one is at risk for an aggressive form of the disease. Also it identifies patients with complicated CD (eg, small-bowel, internal perforating, and fibrostenosing disease)

Hope this helps.
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CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Sharann
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Date Joined Sep 2005
Total Posts : 778
   Posted 3/3/2008 9:38 PM (GMT -7)   
I would tend to agree that it is a redundant test theat is used to line the pockets of the promethius lab.
IF you were not diagnosed with a great deal of finality I would not hesitate to take the test. Sounds like you know.
This may be used for research purposes without your knowledge, even though they aren't supposed to do it.
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CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 3/4/2008 8:29 AM (GMT -7)   
Sounds wierd to me, too. My question is: have you had the test before? If not, I would go ahead and do it--IF the insurance pays for it and if you are having some difficulty keeping your CD under control. And I would definitly ask about why they put routine tests on the promethius slip.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/4/2008 10:08 AM (GMT -7)   
my GI went to school with the doc who invented the promethius test and won't recommend it at all. he says there is way too much margin of error to make it worthwhile.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Cyborg Ninja
Veteran Member


Date Joined Jan 2006
Total Posts : 660
   Posted 3/4/2008 10:37 AM (GMT -7)   
"Doctors like data I have been RF positive for thirteen years and they still run the test every six months to a year. So they may just be adding one more check to the check list."
Is that just checking the erythrocyte sedimentation rate? If so, that's pretty routine and can tell if your condition has gotten worse.

I've never had the test before. I have had an appendectomy though, so it was very obvious when the doctor saw my terminal ileum covered in a layer of fat (only happens in Crohn's disease... or I guess any disease that attacks the terminal ileum throughout its entire cell wall). Plus I had a colonoscopy, two SBFT's, and one barium enema. Never was any doubt from the moment it was discovered.

It is interesting if the Serology 7 test can indeed tell between the different types. Has this been people's personal experience, though? I used to think the test just looked at your basic blood tests, came up with an algorithm and crunched some numbers, and told you if you likely had Crohn's or not. The only real test I am confident with in telling what kind of Crohn's you have is a NOD2/CARD15 genetic test.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia
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