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sickagain
New Member


Date Joined Nov 2006
Total Posts : 12
   Posted 3/4/2008 10:12 AM (GMT -7)   
I am wondering if anyone else has found it hard to maintain your B12. I believe mine is very low because I have no energy, always cold, and I have no balance. My balance issue is so bad I lost my balance and fell threw my glass coffee table. I did this on 3-03-08 4 days before my 37th birthday. What a b-day gift to myself right?  Well I would really hear from anyone who has also dealt with this problem currently or in the past. I would like to know what your doctors did for you.

EmmyT
Regular Member


Date Joined Oct 2007
Total Posts : 75
   Posted 3/4/2008 10:15 AM (GMT -7)   
I had most of my terminal ilieum removed where B12 is digested, so I never get B12 by eating food or taking a pill. I either use weekly B12 nasal spray or get a monthly injection (either need to be prescribed by a doctor after a blood test to diagnose).

Jillybean1887
Regular Member


Date Joined Jan 2007
Total Posts : 56
   Posted 3/4/2008 10:21 AM (GMT -7)   
I too have had my terminal ilieum removed. I have just started (3 months ago) the B-12 injections. I have seen that people can get them bi-weekly, so that is something that I may inquire about as I do not notice any difference. Good Luck.

Jill
Diagnosed with Crohn's Disease in 2000
Bowel Resections 6/05, 11/05 & 7/06 (removal of terminal ileum and appendix)
Humira 40mg. every week
Percocet 10/325mg
Codeine 30 mg.
Cymbalta 30 mg.
Xanax 0.50mg
Phenergan 25 mg.
Zofran 8mg.
Hydroxine 25mg.
B12 Injections monthly


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1566
   Posted 3/4/2008 10:50 AM (GMT -7)   
If you've had your TI removed, you should be tested for low b-12 levels. I've been on injections for over a year and they really help. When was the last time you had a CBC done? It might be time to call the doctor and have a general check up.
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18191
   Posted 3/4/2008 1:25 PM (GMT -7)   
My doc discovered after I complained of tingles and numbness in my fingers that my blood levels indicated very low B12, so he started me on shots then weaned me onto pills...havn't had any issues since and this was at least 8 yrs ago now...I'm still taking the pills (1200mcg, timed released, one/day in the evening with food for best absorption).

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 3/4/2008 1:39 PM (GMT -7)   
Crohnnie, I would suggest you talk to your doctor. Most of us have B12 issues and like me are on monthly or bi-weekly shots.

B12 deficiency can get serious if left unchecked, and in some cases effects, are irreversible...
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 3/4/2008 2:39 PM (GMT -7)   
Is there a special test to check B12 levels or would it be included in tests your GI would routinely order to check anemia/cbc/inflammation levels?

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/4/2008 2:49 PM (GMT -7)   
The Schilling test is performed to check vitamin B12 absorption.

 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 3/4/2008 4:22 PM (GMT -7)   
Your PCP can do it as a routine blood test, you do not have to see you GI...
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


sickagain
New Member


Date Joined Nov 2006
Total Posts : 12
   Posted 3/4/2008 4:42 PM (GMT -7)   
I have had the whole right side of my colon removed. I was told by surgeon that he took everything attached to that side of colon and I know that is where the ileum is so it is gone. Never been on b12 supplements or injections but also haven't seen a doc for this in 12 yrs.

RA+CDhouse
Regular Member


Date Joined Nov 2007
Total Posts : 80
   Posted 3/4/2008 9:13 PM (GMT -7)   
Would it be benficial to take B-12 anyway, even if the blood tests came back OK?  If so, would a pill, or a sublingual suffice?
 
--t
Learning can only happen when a child is interested.  If he's not interested, it's like throwing marshmallows at his head and calling it eating.  Make him interested!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18191
   Posted 3/4/2008 9:41 PM (GMT -7)   
I don't think there would be any point in taking it if you're not lacking it, it seems it would be a waste of money since there'd really be no benefit.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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