Prednisone Question.... how long till it works?

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hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/4/2008 9:20 AM (GMT -7)   
I started on prednisone last week... Everyone has been asking me if I feel better, but I haven't noticed much change. I was just wondering how long it takes for this dreaded crap to start working? I was hoping I could quickly taper off of it since it's my first real time on it (I was on it 2 other times, both just rapid tapers where I only take it for a 6 days & started tapering immediately...)
Live for today, for tomorrow you might just get hit by a semi.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/4/2008 9:26 AM (GMT -7)   
Usually I start to feel better about 3-4 days after I start it. Most people with Crohns have to take it for at least 4-6 weeks. So I wouldn't think you are ready to even start tapering yet.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 3/4/2008 1:46 PM (GMT -7)   
It took 3 weeks at 40mg (when I only weighed 92 lbs) before I finally started to get better.  I felt pretty awful from all the prednisone side-effects by then though, so although you might feel icky and want to get off the prednisone, be patient and give it a few weeks and it ought to help a lot.  My problem (and from what I understand, the problem for many with CD) is that I can't seem to stay un-sick without the prednisone, the stuff works really well :P

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/4/2008 2:39 PM (GMT -7)   
My GI said to call if I don't feel better in 3-4 days of starting the prednisone. It's been 5 & I still feel crappy. Only now I have side effects from the prednisone mixed in with my other problems, lol.

I am just so tired of this all. There is NO way I can handle this for the rest of my life.... not in this condition. It's not worth it. : (
Live for today, for tomorrow you might just get hit by a semi.


Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 3/4/2008 2:47 PM (GMT -7)   
Hi hukleberrie,

I'm so sorry to hear you are in pain. I know how you feel - my first stint with Prednizone i had to wait a whole 10 days for even the slightest amount of releif. My GI said 10 days - and it was exactly that. But the wait was excruciating and I had to leave work for a while.

I know its so hard to deal with this, but try to focus on getting better and try to stay positive. I know - easier said than done, especially when rolled in a ball waiting for releif. But I can say from my experience with pred, as much as I hated the side effects - it was the best drug for CD I ever had, once it kicked in. I would have stayed on it forever if it didnt have so many darn side effects.

Now I'm on Humira, and experiencing a state as close to my 'prednisone days' as I guess I'll get. I hope you start to feel the good effects of the prednizone soon, and I wish you luck.
Diagnosed with UC 8 years ago/Diagnosed with Crohn's 6/26/2007
Canasa / 1 per day
Azathioprine / 100 MG Day
Colazal/ 9 per day
Entocort/ 3 per day
Humira
 
Tried:
Asacol / 12 per day
Levaquin 1 per day
Flogyl 1 per day
Rowasa / 1 per day
Prednizone / 40 MG Day( finished taper!!!) 
 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 3/4/2008 3:06 PM (GMT -7)   
You did not say how much pred you are on and that definetly makes a difference in how long it takes to feel relief. I am really sensitive to prednisone (In a good way I never have short term side effects) so I always start to feel better within 12 hours but then it can take 30 days to feel completly normal with energy and everything.
Sj

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/4/2008 4:09 PM (GMT -7)   
I am on one 20 mg prednisone a day along with three 500 mg azulfidine pills per day, but I have been on the azulfidine since October. (It seemed to work the first 30 days, but my surgeon wanted me to stop taking them to see if I continued to lose weight, which I did. So back on the azulfidine a couple weeks later, which never seemed to work like it did in the beginning, so prednisone was added.) Hopefully it will work. Hopefully I won't have to modify too much.

The thing is it seems that the prednisone is messing with my cycle. I am constantly bleeding/spotting & I was put on progesterone to get it to stop, which it did for a couple days, but now it's back. So I am going to call & see if I can either get rid of the period or stop with the prednisone.

I have this pain in my hipss/pelvis/groin/pelvic area that are really still bugging me so much. Now stabbing pains once in a while. I am annoyed.
Live for today, for tomorrow you might just get hit by a semi.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 3/4/2008 4:12 PM (GMT -7)   
Pred messes with my periods to-as in they get delayed when I start pred and then start early when I drop the dose.
20mgs seems like a low start dose so it may take longer for it to work. I was started on 40 mgs.
Sj

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/4/2008 4:23 PM (GMT -7)   
Huh. Mine won't stop. I am wondering if this spotting is caused by something else, but a friend of mine said that taking prednisone could cause it. Should I worry about this? I have had bleeding 18 of the last 30 days....
Live for today, for tomorrow you might just get hit by a semi.


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 3/4/2008 6:03 PM (GMT -7)   
I think it's not a normal response, and perhaps some of your problems are directly related to a problem with your menstral concerns. Of course I'm not a doctor, but it sounds like a lot of your pain is related to some sort of feminine problem and not higher up in the bowels. As you've indicated, you definitly have IBD, but you could also have another problem that's occuring at the same time. I'm sure you've told your PCP about the menstral bleeding and the pain in your hips/groin area. A follow-up might be necessary.

This is probably unrelated, but I tried a birth-control product (depo-provera) where I received an injection to stop my period. Unfortunately I was one of the 2% that responded with the exact opposite symptoms. I ended up with my period in its full glory for 4 months (including my wedding day which is why I took the shot in the first place!). Sometimes things go competely wrong with our systems with this disease.
Has your diarrhea slowed and your cramping, urgency to go and bleeding from your bowels been reduced? That would be more indicative of your CD being helped by the prednisone. I'm sure others will contradict me, but I've never had hip/back pain and prolonged menstral bleeding from this disease or prednisone.
Good luck,

Bev

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/4/2008 7:06 PM (GMT -7)   
I have already had a pelvic ultrasound recently. Two, actually, and one within the last month. I have some ovarian cysts that they are watching, but that's it. Nothing that would cause me pain they say. I have told the GI about it & showed her where my groin/pelvic pain was & she said it was from the IBD. I have told my PCP about the prolonged bleeding. She was the one that prescribed me progesterone (provera) to stop the bleeding. She did not believe the pain is female related.

I was on the depo shot too back years ago before my hubby got fixed. What the doctor told me was that when you first start taking it, it will make you have prolonged period, which I did, and they prescribed me a quick round of progesterone (provera) which fixed the problem immediately. From then on, I didn't have a period until I quit to get pregnant.

I haven't had much D. That's why the doctor's were so confused. Pain, feeling like I had to go, frequency & sometimes bleeding (but not often, or at least not often visible) & weight loss & fatigue are my prominent symptoms. I have had D, but not often. Just frequent movements that wake me up at night. Of course, I was always on the other end of the spectrum normally (I used to only go 2 times a week), plus I am on pain meds, so maybe that firms me up. So I don't know really what to gage improvement on. It's the pain, that is the main symptom I want rid of, so I am hoping the prednisone will get rid of it. The GI seemed to think it would within a few days of the prednisone. But I would just rather take more pain pills to deal with the pain & have a normal cycle than a constant period—if the prednisone is causing the cycle problem...

But if you all think that it should be the other way around, that it stops your period, then I think I have another problem somewhere.... I guess I had better call my PCP again. Ugh. I am such a pain. I bug her all the time.
Live for today, for tomorrow you might just get hit by a semi.


RA+CDhouse
Regular Member


Date Joined Nov 2007
Total Posts : 99
   Posted 3/4/2008 7:43 PM (GMT -7)   

My DH has pain in the exact areas you describe!  And of course, he's not female, LOL.  Prednisone did not help him with this pain; and he remains on percocet.  We are now at one year (as of 3/8) since all of hubby's problems began.

Our next step is going to be remicade; we are in the process of the clearance blood tests and whatnot. He has had some chest tightness going on since beginning pred, and at first we thought it was the cold he caught at around the same time.  The cold is long gone and chest stuff (and sometimes fast beating heart) continue.

We've had: inhalers, chest x-ray, pulmonary function test, and EKG; Thurs he goes for stress test.  Everything is normal; if stress test is normal, then we will start remicade as soon as he can get a TB test....

His disease is the fistulizing type, and he has the pain that you describe.  Doesn't really have that much D, but then again he's taking all that percocet...

Well, wrote a book to say that maybe the pred won't do for you what you want for the pain, but hang in there, and hopefully you'll have better luck than we did!

-t

 

 

 

 


Learning can only happen when a child is interested.  If he's not interested, it's like throwing marshmallows at his head and calling it eating.  Make him interested!


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/5/2008 4:17 AM (GMT -7)   
Thanks newcrohnswife for the info. I started to think that maybe my pain & problems are not at all related to the IBD, which made me feel like I was starting from scratch again & that I may never feel better. I'm not glad your husband has the same pain because I am having problems dealing with mine so I don't wish it on anyone, but it sure is nice to know that someone understands.

I am beyond tired of all of this. Maybe I am a bit depressed, maybe just frustrated. It's too tiring & I just don't care anymore. I don't want to live like this. I honestly wish I would just keel over dead, it would be so much easier.

I just don't know where to go or what to do anymore. I don't know if I bug my doctors, and if I do, which one? The GI? The osteo? or my PCP? I am to the point where I just don't think I am ever going to feel better....
Live for today, for tomorrow you might just get hit by a semi.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/5/2008 3:59 PM (GMT -7)   
Well, I did hear back from the GI about how long with the prednisone... she says 6-8 weeks.
Live for today, for tomorrow you might just get hit by a semi.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/12/2008 2:35 AM (GMT -7)   
I guess I have to take it until my colonoscopy. I was hoping I could taper down sooner.

Still not much improvement, but I have learned that my ovarian cyst is getting rather large, so that along with my inflamed bowels is what is causing the pain....
Live for today, for tomorrow you might just get hit by a semi.

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