Herbal remedies and other questions

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Becca-Boo
New Member


Date Joined Feb 2008
Total Posts : 11
   Posted 3/4/2008 5:13 PM (GMT -7)   
Has anyone ever tried any herbal remedies or seen a Holistic MD?  I wonder what they say about Crohns.  I've heard that Fish Oil is good or Flaxseed oil, but that's all I know.  My daughter is also on VSL which I don't know if that makes a difference.
 
Also, my friend is a reflexologist and she worked her magic on my daughters feet.  She said that she thinks that my daughter gets headaches at night and that every once in a while has lower back pain.  Does anyone else have this?  Since she has been dealing with this since she was 18 months old, I think that she's just used to it, but I don't want her to be in pain.  Any thoughts on the subject would be great.  I just think that when they are 3 they can't tell you what hurts.
 
We have her second colonoscopy on Thursday and so tomorrow will be her "all liquid" diet day.  Wish us luck.  I'm going to try to stay as positive as possible, but I know how much she loves to eat!  It'll be hard!
Mother to daughter (3 yrs) who has either CD or UC (Ped GI hasn't officially diagnosed her yet because she's so young)
She has taken Prednisone (20 mg and lower)- successful, but we could never wean her without it reflaring
Asacol 3 times a day-unsuccessful
Colazal 3 times a day- unsuccessful (made it worse)
VSL, Flagyl, Xifaxin
No meds right now
Thinking about starting 6 MP


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/4/2008 6:37 PM (GMT -7)   
I take bee propolis, infact it's been almost 5 yrs of taking it daily..I started with the liquid form which tasted just awful but it absorbs faster, then when I quickly noticed improvement from it, after I finished the bottle of liquid I bought cap form (the best is from puritans pride online)....after one whole day of taking it (the liquid) 3 times, the next day it stopped all my bleeding and terrible lower back pain (which I would get during all of my 30 BM's/day and I'd be in tears from the pain), cut back on my 30+ BM's/day to around 15/day....bee propolis is a natural anti-inflammatory and my GI strongly encourages me to take it every day for the rest of my life, he says it's non-toxic and it's a great nutritional supplement on top of how well it's helped my symptoms, after all, no more bleeding, pain, cut back on mucus and frequency and so quickly with no side effects, you can't lose...but if you're allergic to bees you're suppose to avoid all bee products.

Then I added fibre supplements as ordered by my GI, also to take every day for the rest of my life and that just helped even more, cutting back on frequency again (so then I started going 10X/day, no more mucus at all and completely formed BM's, sometimes when I wipe the TP is clean because they come out so formed.

I added omegas 3-6-9 daily too, my skin is better and my mood improved greatly, it's also anti-inflammatory so I'm sure it's a benefit as well, but when I added the last thing, probiotics one called primadophilus reuteri made by natures day (one/day) that's when I finally got down to going 5 or less times a day.

I also take vitamin B12, A, C-Calcium ascorbate.

So you see, the natural route can be a huge benefit, often it takes more than one thing to get good results, but I AM NOT on any oral RX used for crohns, just the natural things I mentioned above and I have NO SIDE EFFECTS, and pay alot less money a month than if I was taking oral RX.

I've also altered my diet, no junk of any kind, especially sugar, no processed crap either....I drink water and chamomile tea (also a natural anti-inflammatory) everyday and nothing eles...I exercise regularly with cardio and weights, as exercise is crucial for normal functioning bowels.

I have crohns-colitis, so my CD is affecting my colon (going on 17 yrs now), when I first got sick it was also in my small intestines, colon, rectom and anus (still in my anus with perianal crohns skin tags which had surgery on them because they were mistaken for hemmies, that's where my CD first started, not internally but externally with my perianal crohns skin tags.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 3/5/2008 5:49 PM (GMT -7)   
I saw a homeopathic Dr. last year. He said I did not have crohn's and that I was just prone to abscesses. he tried several remedies but nothing worked. It got to be too expensive for me so I stopped going.  I was very hopeful at 1st but it didn't work for me....
I really hope you can find some relief for your daughter. Keeping her in my prayers.
37 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (29 surgeries including abscess I & D, exploratory surgeries, 4 C-ton drains and 1 fistula plug) Have also had several self bursting abscesses.
1st Remicade infusion 6/5/07-still taking it.  Praying I'll get better soon so we can have a baby.
Ginger :)


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 3/5/2008 9:16 PM (GMT -7)   
Hi Becca and welcome! I do wish you luck tomorrow!!!

We do lots of supplements too. I think they're all listed in my signature. Also have made drastic dietary changes. It's really been worth it.

It's interesting your reflexologist mentioned she thinks your daughter gets headaches at night. My son used to get terrible headaches at night. I think he was in second grade when they were the worst, but he had them in first grade, too. We had his eyes checked, went to the doctor, etc., etc., and nothing showed up. No lower back pain, though....

As for seeing a holistic doc, we haven't yet, but we may in the future. We have used a chiropractor for many, many years. He reminds me constantly of the importance of digestive enzymes for Crohn's. He calls them "proteolytic enzymes" though, and wants to sell me the brand he carries. Right now we're simply using Ultra-Zyme by Nature's Plus. I've used them for 15 years or so for myself.

You may have already looked into this, but probiotic strains for little ones are supposedly slightly different than those for adults. I just don't know what that age cut-off is and can't remember the difference in strains. Something to look into in all your spare time eyes

I will be thinking of your little one tomorrow! :-) Do let us know how it goes!
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 3/6/2008 9:08 AM (GMT -7)   
I have had Crohn's Disease for nearly 15 years.  I have been treated with Chinese herbal medicines for almost 14 years.  I am not cured, but the herbs help keep my Crohn's in control.  I am not taking any western medicinces.

Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 3/6/2008 2:22 PM (GMT -7)   
Erudite,

Which Chinese herbal meds are you taking?
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 3/6/2008 3:08 PM (GMT -7)   
MishBall2 said...
Erudite,

Which Chinese herbal meds are you taking?

This doctor in China gave me an herbal prescription which consists of some 16 different herbs.  They are mixed together and I boil them for about 1.5 hours.  I drink the herbal water (like tea) for 3 days and take a break for 1 day (no medicine).  Then start another 3 day therapy....
 
I have been doing this since 1994.  The herbs that I have consumed thus far can be truckload - literally.
 
 
 
 

Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 3/6/2008 3:19 PM (GMT -7)   
Wow...too bad we don't know what they are. Does this stuff taste good? Like tea at all?

Is your Chinese doctor here in the U.S. and do you buy your herbs from him/her?

I know a chiropractor who went to China for 3 years to study Traditional Chinese Medicine (TCM). I believe what she uses is largely herbal, though she also uses acupuncture. Someday maybe I'll ask her what herbs she would recommend for CD.
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 3/6/2008 6:03 PM (GMT -7)   

I asked my 4 year old to try my herbal drink, for just one sip.  He didn't like it at all.  nono    But I have been drinking it for over 10 years, so I am used to it.  I have no problem drinking it at all.

My Chinese herbal doctor is in Beijing, China.  I fly there twice a year to see him, because every time I see him, he will make some minor adjustments to my prescription.  I am worried about his health and wellbeing, since he is very senior in his age.

According to TCM theory, everyone should have his/her own prescription, since everyone have different symptoms, even for the same underlying disease, and different symptoms warrant different herbal treatments.

 


Diagnosed with CD in 1994;

Have being treated with Chinese herbal medicines for over 10 years.


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 3/6/2008 6:33 PM (GMT -7)   
My GI has never endorsed herbs but has always been interested in what I've tried.

I've been taking MSM (do a search for MSM and Crohn's), flax seed oil soft gels, glucosamine chondroitin only if I am having shoulder or knee trouble (as many of us crohnies do). I think the MSM has made a very big difference. If I am having a bad flare, I take more MSM. I take in a good deal of mint tea (mint is a natural anti inflammatory herb) and chamomile tea. I have one that is chamomile and lavender flowers. Another tea that's mint and lemon verbena. Mostly I try for soothing teas. If I am feeling really blocked up with stuck gas, I will drink red zinger or raspberry zinger which seems to help move things along without causing D.

As for vitamin supplements, I take a multi, e, selenium, a B complex, chromium, C with rose hips, zinc if I am sick. Usually tums for calcium but I should get back to my calcium and D. When my health was better, I didn't take the above on a regular basis. I'm back on them all. The supplements I take are all by GNC b/c they are dairy, lactose, and wheat free. However, they are found in any pharmacy and with many different labels.

As always. it's best to check for allergies--ie. chamomile is related to the daisies.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 3/6/2008 6:56 PM (GMT -7)   
eyes  I just found this site yesterday, and I find it helpful "hearing" what each of you has experienced or is currently experiencing.  I was told by my gastro that I do not fit either teh Crohns profile or te colitis profile,.,,,I have bite of both. I have been on the Azulfidine for over a year after being on Asacol.  I am gettign ready to start Humira, and by doing a web search to learn about it, I found this site.  I have had a great experience with VSL3, which my gastro doc suggested as a last ditch effort when the traditional meds were not working.  I went a good year with out a flare up, but now I have started back up with the bleeding, D , and pain.  As far as other herbals I also take flaxseed oil, liquid, Barlean's Highest Lignan from Vitamin store has the most bang for your buck.  I also take the laundry lst of calcium, glucosamine, iron for anemia, and prenatal vitamins for the folic acid deficiency for Azulfidine.  Have any of you guys with Crohns/colitis combo had a good response from Humira? I am nervous about taking the next step to teh injectibles, but if it has worked well for others, I am ready to have more energy, less achy joints, and no more "sore rear" yeah
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.


staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 3/30/2008 8:29 AM (GMT -7)   
I have had crohns for about 15 yrs and had a BAD flare up beginning in November 07.  I had to go on Humira shots which I hate and have no intention of staying on.  Prior to this I was on Immuran for 2 years with great luck til Nov.  I found out about an accupuncturist who also practices Chinese Medicine.  I started the humira shots early Feb and saw him late Feb so it was too late to stop the shots because I wanted to see if the shots were going to work.  Anyway,  the chinese medicine guy is waiting on me to say that I am ready to start his herbs.  He is so confidant that he can help me.  He changed my diet also.  I have went off of gluten, dairy, and reduced sugar.  I am not gluten free like someone who has celiac though.  He said for someone who has colitis or crohns that those three things are like pouring battery acid into your gut.  I can say that when I eat those things I get miserablely bloated.  He also believes in eating according to your blood type which I have also been doing.  You can find it online.  I go to his office twice a week for accupuncture and I love it.  I have so much more energy when I leave.  My only problem is my GI would never even listen to any of this and I don't know if the herbs he will give me will conflict in any way with taking Humira.  I want to remain on Humira and start herbs then go off Humira and see If I can remain in remission. 

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 3/30/2008 10:25 AM (GMT -7)   
Mellie I didn't see your question about Humira. I saw results after 7 injections. I don't have any real side effects I am just really tired for a couple of days. Also on your joint pain, I had to go to the hospital because my knees hurt so badly. They gave me pain meds and my gi said I could not take them so I went to a chiropractor and I was out of alignment and after he put me in alignment my pain went away. A couple of times after that I went out again and I knew it because my joints started to hurt again and he put me back in and pain went away. I told my GI what I had done and he said yes that would help my problem. My chiropractor uses equipment I'm not sure what it is called. He doesn't pop and crack you with his hands and body. There aren't many chiropractors that use this device in the US.

Brig
Regular Member


Date Joined Apr 2008
Total Posts : 33
   Posted 4/10/2008 9:29 PM (GMT -7)   
Hi I am new to the site. I have been lurking about trying to read up on all the info posted in the past. I was diagnosed with CD Dec 07 and have been on prednisone since. I will hopefully be off in 10 weeks time and have started 6MP as of yesterday. I have been reading up on these drugs and hope to learn more but I am more aware of natural medicines. I take supplements such as calcium, zinc, multi vitamin, probiotic, fish oil and flaxeed oil, but I also take slippery elm, apple cidar vinegar and psyllium husk before dinner. I make teas with camomile, peppermint, rosemary, ginger or a herb called malva vulgaris and I avoid sugar, fat, processed foods, dairy, wheat and gluten. Although I feel good I don’t know how much of an impact this is all actually having because of the prednisone but I have had bad days when I couldn’t resist bad foods and haven’t felt as good on those days. The information I received from the herbalist about the disease, my body, the gut as well as instructions to stick to the above was great at a time when no one else offered too much info. The herbalist has only instructed the above at this stage because I am on the GI’s drugs and she says these drugs are so powerful that they will knock anything she gives for six.

weedlewub
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 4/11/2008 11:46 AM (GMT -7)   
I went to a holistic doctor in January. He did a stool sample and some other tests and took all of the individual symptoms that are wrong with me, that collectively are treated as Crohn's and gave me suppliments for each. The stool sample showed high levels of yeast, so I took a suppliment for that. I had low digestive enzymes, so I took one for that. I took another to heal ulcers, one to aid with gas and bloating, etc. I also had drops of live bacteria to put under my tongue in the morning and night. In all, there were about 12 suppliments I was taking. They were costing me about $250 a month. I couldn't afford it anymore, so I stopped taking them.

On top of it, while taking them I experienced the worst flare of my life and now am in the process of tapering off prednisone as a result. I don't know if the suppliments caused the flare or not, but I think a few of them contributed. I have read from others on the UC board that they cannot tolerate the specific type of suppliment I was taking - Standard Process.

There are several of them that I am going to continue to take - the digestive enzymes primarily. I am a firm believer in alternative medicines, I just think you have to sometimes shop around until you find the right doctor or treatment for your specific body make-up. Obviously this last doctor wasn't helping me.

I am now trying the Maker's Diet. Hopefully it will help.
Crohn's Colitis
Currently taking Asacol and Prednisone
Recently started the Maker's Diet

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