A new beginning. I have questions....

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 3/4/2008 7:25 PM (GMT -7)   
Okay, Im 4 weeks post op 63 cm bowel resection. (illieum) I went to the surgeon and he said he was able to leave 5 inches if the TI...I guess thats a good thing. Its weird though because my GI told me he couldnt get the scope in the TI due to inflimation. I guess I cant go back now. Maybe this will be problems to come.
 
I go back to the OR Thursday morning to have kidney stones removed......Life has sucked the past month..
 
Anyway when the stones are out I feel this will be a fresh start for me.
 
 
What do I need to be aware of as a post resection patient?
What nutrients/ vitimans / supplements shoul dI take to replenish things I wont get naturally.
 
Should I take a preventitive medication for CD? To try and hold off a flare?
 
Also, Prior to surgery I never had D, post surgery I have not had a normal bm yet!! I go 5-6 times a day very loose sometimes watery. The surgeon says this is NOT normal.... I guess I should go back to the GI,
 

WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 3/4/2008 8:11 PM (GMT -7)   
Redspot, I had my resection 8wks ago and I have nothing but diarrhea. At least 5 times per day sometimes 10. My surgeon and Gi both say this is normal as my body learns to adjust to its new plumbing.
31year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Unable/Unwilling to use immunosuppressents due to Melanoma history in 2000.
Illeocolonic Resection 1/08  (18 inches of terminal illeum, illeocecal valve, right colon and appendix)
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin, Flagyl


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 3/4/2008 8:45 PM (GMT -7)   
Redspot, don't worry about your Ti. At the best of times, you can only get into the very distal end of the Ti with a scope. (they call it the small bowel for a reason. If you can get through the ileo-cecal valve where the small and large bowel meet then you are lucky. To go further into the small bowel is risky because it is so much smaller in diameter and so much more kinky that the risk of perforation greatly increases. I'm sure, you have had all the strictured part of your T1 removed. Doesn't mean the inflammation and scarring won't re-occur at the site of your resection, but I don't think your surgeon left a strictured part of your Ti inside you.

As for the diarrhea, you will eventually find a new norm as your bowels adjust, but because you have lost a good chunk of your TI might want to ask your GI about fat-malabsorption. Do your stools seem greasy in the toilet? Do you have to use the bathroom fairly quickly after a high fat meal? You might have some bile acid issues, which can easily be managed with a powder called cholestyramine. But give your body some more time to adjust. Things will probably settle down more.
Belleenstein:

30+ years living with Crohn's.


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 3/4/2008 9:02 PM (GMT -7)   
WantRelief said...
Redspot, I had my resection 8wks ago and I have nothing but diarrhea. At least 5 times per day sometimes 10. My surgeon and Gi both say this is normal as my body learns to adjust to its new plumbing.


I just want to assure you that this is normal. It make take some months for the diarrhea to go away. You should, in the meantime, try eating low-fiber foods (overcooked white rice is good) and avoid known irritants to the intestine (caffeine, hot spices, milk - if you're lactose sensitive).

I have found that vitamin A really helps control my diarrhea (fish oil type, not beta-carotene). Not sure why, but it does, though it takes a week or two to kick in. I take just one capsule a day - don't overdo it, as an overdose of vitamin A is toxic.

regards,
Robert
Crohn's since 1988
3 resections


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/5/2008 8:14 AM (GMT -7)   
Definetly take maintainence meds? I enjoyed a 20 yr remission with no Crohns meds and ended up having to have a emergency resection due to obstruction. I take only Asacol for my Crohns now and it helps to keep the inflammation down and has no side effects. Good Luck to you!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 3/5/2008 8:24 AM (GMT -7)   
Yes to maintenance meds -- surgery does not "cure" Crohns. It almost always recurs in another area. Also, you may want to check vitamin B12 levels in the future, as B12 is absorbed primarily in the terminal ileum. B12 deficiency can be serious and lead to anemia and even permanent nerve damage. Many patients who have undegone TI resections need to take B12 supplements by injection.

redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 3/5/2008 1:44 PM (GMT -7)   
Thanks guys!

redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 3/5/2008 1:45 PM (GMT -7)   
I go to surgery in the morning to have these stones removed.

Wish me luck!
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