TOUCH enrollment

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Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 3/4/2008 10:17 PM (GMT -6)   
Well, I did it.  I filled out the enrollment forms for Tysabri.  My doctor is not yet certified to infuse (says beginning of april) but I should be able to hit up the local hospital for my first dose.  I don't know when, but I hope soon.  I am scared, but I can't do this any more.  Tonight I'm at 100.4 again.  I laid around all day -- it was a horrible day, losing control, pain, the whole nine yards.  Oh, I managed to not throw up, though.  That was good...  But I can't keep this up.  It's surgery or this, so here I go...  I'll let you guys know how it goes.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 3/4/2008 10:20 PM (GMT -6)   

I wish you all the best  and I hope this is the miracle cure for you.  I am sorry you are feeling so lousy but I understand your depression and the feeling of beng afraid of the unknown.

Do not give up hope and we are praying for you.

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 3/5/2008 4:51 AM (GMT -6)   
Hi I hope the Tysabri works for you when you start it. My prayers will be with you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

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