New to forum-my story

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

leny3332
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 3/5/2008 7:21 AM (GMT -7)   
Hi all,
 
I am new to this forum but wanted to say hi and provide a little of my background. 
I am a 35 year old male.  about 10 years ago I became very sick and the doctors could not determine what the issue was.  I had a fever that would not go away.  I was treated for just about everything.  2 months later I had an upper GI and it was determined that I had Crohn's disease with fistulas.  I was admitted and within a week having an operation.
 
Fast forward to the present.  I have done great since my surgery.  The doctor's always noted that my CD was atypical as it came on so quickly with no history of stomach issues.  about a month ago my entire family was sick with the stomach flu.  I came down with symptoms and had a fever and stomach issues.  Within a day, I started to trow up and could not keep anything down.  I decided to go to the ER and a CT scan revealed that I had a bowel obstruction.  I was admitted and placed on the fun bowel rest.  This completely took me by surprise.
 
It did settle down and now I am on Entocort 9mg (first time on steroids).  I did avoid any surgery, at least for now.  I will be seeing My GI in about 6 weeks.  I always thought that when my CD came back, that it would be in the form of fistulas again.  The pain from an obstruction was something that I couldn't believe. 
 
I did not really have any AE's from the Entocort.  I do have major gas but not sure if that is from the medicine.  My stomach feels a little odd, but it is difficult to explain.  Oddly enough, I do not have diarrhea anymore.  This is very unusual for me.  I am not sure if this is the Entocort or what. 
 
Sorry to put any of you to sleep.  I just felt the urge to post, say hi, and share my experiences.
 
Warm regards,
Lenny

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 3/5/2008 7:31 AM (GMT -7)   
Welcome, Lenny. I'm sorry to hear of the rough time you've been having. You'll find here, though, that a lot of people have been experiencing the same thing you have so it won't feel nearly as lonely once you find out there are others who are dealing with what you are, too.
Diagnosed in October, 2003 at age 31.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/5/2008 7:38 AM (GMT -7)   

I'd like to extend a warm welcome to you on your first visit to Healing Well! To help you get the most out of the Crohn's  Forum please take the time to browse our threads .  I am sure you will find tons of useful info and meet others who have gone through the same scenario as you have.

I am glad you went to an ER and that they did the CT Scan to see what was going on with you.  It is often easy to blame the sx on the flu and that could be the cause for some but it is better to make sure.

Stay with us and keep posting.
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


leny3332
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 3/5/2008 7:50 AM (GMT -7)   
Thanks to all for the warm welcome.  I look forward to the road back to health.

bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 3/5/2008 6:08 PM (GMT -7)   
I just wanted to say welcome Lenny! Your case sounds really interesting the way you describe how fast things have come on for you. Hopefully everything will settle down again for you soon.

Take care,

Bev

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 3/5/2008 8:28 PM (GMT -7)   
Welcome!! I just signed up too!!

After months of not really being able to find a good place to "talk" about stuff going on with my Crohn's, I stumbled across this website. I LOVE that I can come here and feel soo normal!!!! :) Everyone else has Diarrhea ("D") too and thats ok! haha

And since I'm new, I didn't know, what does "AE" mean in your post?
26 y/o, diagnosed at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, tired all the time (except when on Prednisone), occasional abdominal pain
Weigh loss, but scared that once I start the Entocort where will be lots of weight gain :(


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 3/5/2008 8:53 PM (GMT -7)   
Well, I'm a little late, but welcome to HealingWell!

Sincerely,
Matthew

leny3332
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 3/5/2008 9:41 PM (GMT -7)   
Hi,

Thanks to all for the posts and understanding. AE stands for Adverse Event. Sorry, I work in clinical research. Hopefully I will get a chance to work on a Crohn's study in the future.

Take care,
Lenny

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 3/6/2008 3:23 AM (GMT -7)   
Hi Lenny, Welcome to HW,
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 4:22 PM (GMT -7)
There are a total of 2,735,541 posts in 301,315 threads.
View Active Threads


Who's Online
This forum has 151417 registered members. Please welcome our newest member, porkdot.
307 Guest(s), 12 Registered Member(s) are currently online.  Details
ewafromwarsaw, Gemlin, House_rocker, Serenity Now, Loutucky, LG13, NiceCupOfTea, Dmc695, U B Tough, LymieWriter8, rcmark, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer