Energy Bars Help

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lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/5/2008 11:59 AM (GMT -7)   
I'm a cyclist and try and train as much as possible when not flaring. Unfortunately I am going through a mild flare now and feel like my entire winters worth of training had gone down the toilet! My question is, I have problems with normal energy bars (like Cliff Bars, PowerBars, etc) when I need to "refuel" after riding for like 1.5-2 hours. Does anybody have any suggestions on what type of energy bars I should buy that won't aggravate my Crohn's?! PLEASE HELP! Any and all suggestions are more than welcome!! yeah
Battling w/ CD for 2 years...
Osteopenia in the spine caused by prednisone
Currently on Remicade


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/5/2008 12:22 PM (GMT -7)   
Here's an easy recipe from the book "Food and the Gut Reaction"...

1/4-1/3 cup of butter
1/2 cup honey
1/2 cup raisins
1/2 cup unsweetened grated coconut
1 cup coarsly chopped nuts (almonds, pecans or walnuts)
1/2 tsp salt

In a saucepan, stir butter and honey over low heat until melted and blended.
Remove from heat and add remaining ingredients, combining well. Spread mixture in an ungreased square 8" baking pan and bake at 350 F for about 25 minutes until set...cool and cut into squares.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


belleenstein
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Date Joined Feb 2007
Total Posts : 1010
   Posted 3/5/2008 12:33 PM (GMT -7)   
Lilturbo what kind of crohn's do you have and where is it located? If it is in the terminal ileum and involves strictures or inflammatory narrowing, I would suggest you take tiny baby steps if you introduce this bar into your routine. Try a little, wait a day or so, and take a stepped approach. The thing I always have to remind myself of, is that even when I get away with eating something like cashews or pecans(my favorite) it doesn't make it safe. I know my gut is a ticking time bomb with a faulty detonation switch. It will go off, but there's no way to predict when. The only safe bet for me is to stay away from those things that have the potential to cause me trouble when I am in a flare.

If I was in a flare one of the last things I would touch is coconut -- only popcorn is worse in my opinion. I realize there are some people out there able to tolerate this kind of roughage, but I think on balance the vast majority of crohn's patients, when their diseases are active, would be tempting fate to use this type of food source as a staple. Please correct me if I'm really one of the minority.
Belleenstein:

30+ years living with Crohn's.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/5/2008 12:42 PM (GMT -7)   
Many, many people with IBD use coconut macaroons to bring them out of flares and swear by them, coconut is not hard on the intestines if anything IBDers should be drinking coconut milk/juice on a regular basis because of the benefits it has to the GI tract...google coconut and health benefits...all IBDers need some fibre, whether they go with a little or a normal amount and shredded coconut is one of the safest and healthiest forms of fibre even if just a small amount is eaten for those who do low residue, something is ALWAYS better than none at all. How eles do you ever expect your stools to change from D to formed.'


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 3/5/2008 1:25 PM (GMT -7)   
Yes indeed! A while back we had a coconut macaroon thread going here. I think that's where I got this link about the benefits of coconut which is really interesting:

http://www.coconutresearchcenter.org/

Also, Crazy Harry posted some of his favorite bars on that thread that was edited as spam. They look like they might be good ones!

I've recently purchased a bar that was new to me. It's by Dr. Andrew Weil. They are just fruit and nuts--no sugar or artificial sweeteners. We like "Banana Manna", but I think they're all pretty good. The main fruit is dates. How can you go wrong with dates? Naturally very sweet! Kinda pricey, though. about $2 for a 2 inch bar! Yikes! (okay, maybe it's a bit longer than 2 inches!) I think some of them have coconut in them, too. Here's a link for those bars:

http://www.drweil.com/drw/u/id/PAG00346

I think I'll try that recipe you posted, pb4! They look really good! Do you think I could substitute dates for raisins? For some reason, I'm the only one in the house that likes raisins...
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/5/2008 2:50 PM (GMT -7)   
I think you can makes substitutions virtually where ever you like in this recipe so long as it holds together.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/5/2008 4:22 PM (GMT -7)   
I have a couple I love but I don't know if they fit into the category you are looking for. I eat the balance yogurt peanut bars that have a nugget like texture so there are no full nuts in there. There is no chocoloate either. Although they do have sugar they have a lot of protein and thus have a low glycemic index = they keep you full longer. I also like the salty/sweet balance yogurt nut crunch bars. Those have more whole style nuts in granola and a yogurt coating on half. They are super good and surprisingly I digest them well even though I don't digest normal nuts well. I just tried the one coated in peanut butter instead of yogurt and felt it was a little too creamy to be safe for me. I hope you find one you like!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/5/2008 7:35 PM (GMT -7)   
here is my posting from the other thread emom mentioned:

the bars i recommend are:

lara bars (it isnt organic but the ingredients are solid)
garden of life bars
perfect food bar (this is not a GOL bar, a totally different brand)
raw organic food bar
raw revolution organic live food bar


imho, you want a bar free of refined sugar, processed ingredients, trans fat, gmo ingredients, minimally processed. i try to avoid soy as much as possible. if there is no dairy then it is vegan. i try to get raw, live, organic bars if possible.

the ones i listed above meet my criteria for the most part. some have some kind of sweetener, be it honey, evaporated cane juice, agave nectar, brown rice syrup, etc. i make sugar though that it does not contain artificial sweeteners or processed sugar. a little of what i just listed wont kill you. and i'd like to add that i only eat them very sparingly.

imho, bars work best when in a pinch or when traveling. a good bar will cost you close to $2 plus. anything for a buck or less is junk and not worth the money. most bar foods are over glorified candy bars, so you have to really pay attention to the ingredients. that is key imho.

bars should be a snack, not a meal.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/5/2008 8:13 PM (GMT -7)   
Thank you SO MUCH everybody! All comments definitely help! Bellenstein to answer your question, my Crohn's is both in my small and large intestine but I do not have any strictures or inflammatory narrowing. I think my large intestine has a bunch of tiny ulcers but my small intestine has huge ulcers (they looked scary after my capsule endoscopy). I am currently going through a mild flare and can't seem to stay in remission w/ out the use of prednisone-definitely annoying!
Battling w/ CD for 2 years...
Osteopenia in the spine caused by prednisone
Currently on Remicade


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 3/5/2008 8:47 PM (GMT -7)   
While you are in a flare is it possible to exchange the energy bars for a liquid meal replacement? There are low-glycimic, high protein drinks available that should meet your energy requirements without risk of exacerbating your symptoms. Keep looking and you will find something that supports your fitness goals and is easy on your bowels. No matter how much the disease takes you backward in your training, everytime you can get on that bike, it is taking you a step towards wellness. Good for you!

If you have ulcerations and are in a flare that is causing diarrhea and/or pain you might want to restrict the amount of insoluble fibre (skins, peel of fruits, nuts, coconut, popcorn, raw fruits and vegetables etc) this type of fibre is difficult for the body to digest and it tends to hasten bowel movements (and cause a lot of pain for anyone with strictures.) It's the soluble fibre that can accomplish what Pb4 was talking about. Soluble fibres (the kind of fibre that absorbs water) do break down in the bowel and form a gelatinous mass that actually can slow down and bulk up the stool, easing diarrhea. If you don't have a stricture, the extra bulk shouldn't cause you pain. Just about all plant sources of food have both kinds of fibre in some degree or another, but things like oatmeal and whole wheat are among the food sources that have high levels of soluble fibre, whereas popcorn, coconut, lettuce, etc have high levels of insoluble fibre and tend to actually hasten the passage of food through the system.

Think of what you have described is going on in your bowel, angry large ulcers. Now imagine undigested chunks of carrot, popcorn kernels, nuts etc scraping against these sores as they are being carried through your bowel. Compare that with the thought of a gelatinous mixture of oatmeal or peeled apple.. If you had a bad blister on your hand, would you moisturize with a foot scrub made of peach kernels?
Belleenstein:

30+ years living with Crohn's.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 3/6/2008 9:10 PM (GMT -7)   
I like Pria bars. They don't have the nuts or whole oats that give me problems and are in other bars. Chocolate mint is my favorite. Only 110 calories in each though.
Currently in remission!


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/7/2008 3:42 PM (GMT -7)   
belleenstein...I didn't know oatmeal and whole wheat was full of soluble fiber! I love whole wheat bread and wasn't sure if it was good for me or not, but now I know!

Thanx to all for your comments!
Battling w/ CD for 2 years...
Osteopenia in the spine caused by prednisone
Currently on Remicade


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/7/2008 5:10 PM (GMT -7)   
lilturbo :)

Balance is key, one needs BOTH soluble and insoluble fibre as they both benefit the GI tract and the body in general. Oatmeal has many health benefits, to find out more you can google it.

Eat what YOU can handle, don't go by what others may have issues with, everyone with IBD is different...and that's important to remember.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 3/7/2008 7:09 PM (GMT -7)   
Like PB4 says, you have to be governed by what your body can handl and not by what others are promoting or avoiding.

Some people with crohn's can handle almost no fibre, others need fibre to relieve constipation, still others can add fibre when they aren't flaring and have to cut back as their disease activity increases. My advice to you was simply to point out that within the spectrum that there are types of fibre that have been found to be less irritating and more beneficial to those with crohn's that involves strictures and inflammation in the TI. I think it is important to acknowledge PB4 that your experience with crohn's is atypical for this disease -- sort of the exception that proves the rule. I know that all of us take inspiration from your experience. You give hope to the newly diagnosed that they too may not have to give up many of the health promoting foods that they love. But that hope has to also be tempered by the reality that for many people with crohn's eating the kind of diet you are able to eat would produce very uncomfortable symptoms and could prove lethal. As you say, it is about balance.
Belleenstein:

30+ years living with Crohn's.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/7/2008 8:03 PM (GMT -7)   
I totally agree, there are those with issues of strictures and obstructions that need to take extra care in what they eat, I just speak in general terms for those that don't have those issues that fibre is definitely a friend since it aids with both D and C.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/8/2008 10:21 AM (GMT -7)   
belleenstein and pb4...thank you both very much for your inputs! I guess right now I'm not quite sure what I can and can't eat. Every time I have flared in the past my doc put me back on prednisone, but unfortunately after two years on and off of prednisone it caused osteopenia in my spine. This is the first "true" flare that I have not been put back on prednisone so I'm trying to feel out what I can/can't eat. I have been on a low residual diet for the past two weeks (chicken, white rice, white potatoes, rice krispies, rice chex, animal crackers, white crackers) and haven't been able to calm my bowel down! I guess now I'll try maybe spinach and leak soup or something? I wanted to stay away from veggies or high fiber foods b/c I was scared of it making my flare worse, but at this point I guess it is all really trial and error! I was so frustrated I wanted to give up and go eat a pizza, but then was reminded that I would prob be on the toilet for the entire day. My doc called me back and said if I was willing I could go on peptamin for a month and see if that helps, but I'm just not sure what to do! I have been fighting this disease for two years and just not sure what works or what doesn't for me b/c everytime I've flared I've been put on evil prednisone! I definitely DEFINITELY appreciate all of your inputs...it helps me with my trial and error process!

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/8/2008 10:31 AM (GMT -7)   
Oh one last thing! bellenstein, when I am healthy enough to ride long distances again I will try and use a meal replacement liquid and see if that holds down my hunger. I've always been hesitant of eating cliff bars, etc even when in remission b/c I'm afraid it would aggravate my Crohn's. It seems like even when I'm in remission I'm paranoid to eat a lot of things b/c I'm afraid it will make me flare.

I guess that is why I'm very frustrated right now b/c I thought I was doing everything right (eating healthy, plenty of steamed veggies, fish, chicken) and I still flared! I don't know what, other than prednisone, will keep me in remission! Or is it normal to have bloody poo for the rest of ones life? I just don't know what to do or what is "normal" and not! I'm on remicade and it's not doing the trick! Entocort is keeping me from getting worse but not helping to put me in remission. I just have no idea what is going on or what to expect!!
turboemma.blogspot.com/


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/8/2008 10:37 AM (GMT -7)   
Again, thank you all so much for your comments yeah
http://turboemma.blogspot.com/


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/8/2008 11:13 AM (GMT -7)   
Best of luck to you lilturbo in finding a way to deal with this DD so that it doesn't completely interupt your life. Good luck with the meds, I hope you find relief soon and a long lasting remission.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/8/2008 5:38 PM (GMT -7)   
Hi No bloody poo isn't quite the norm for CDer's or at least not all of us. Hope they can find some meds that work for you I have been on the pred. for a long time and after a resection am now weaning off it .I am back on the Imuran for now . There are lots of meds other then pred. although it is used to get things from flaring I guess. Ensure and boost are good drinks for vitties and I really like the boost. I still avoid nuts and cook my veggies until very soft and chew foods really well. I stick to mostly low fibre foods and avoid seeds, corn ,and eat white bread as it is easy to digest. I know it is hard sometimes to deal with CD but at times nothing seems to help but that was when I had a stricture ,since my operation for that I feel alot better. Hope you get things going better for you soon. lol gail

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/8/2008 8:46 PM (GMT -7)   
Thank you so much gachrons!
turboemma.blogspot.com/

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