Hi guys, thanks for the replies.
Krica, my symptoms are severe bloating which never eases, D in the morning (accompanied by pain) and throughout the day (less pain during the day) but it's getting more frequent as the weeks go by. I also have that distended feeling most of the time and my stomach makes very loud & embarrassing gurgling noises. Plus there's the tiredness that accompanies all of the above. I've never heard of endoscopic enema steroids, what are they exactly? I'm really hoping that the medication helps the stricture as i feel so bad taking time off work for all these hospital visits, and the last thing i want to be facing is another surgery. My boss would have a heart attack if i told her i needed a month off. Plus i really love my job and don't wanna risk losing it. Good to hear you have no side effects from the Imuran. Good luck on Monday, & keep us up to date on how you get on with your Doctor.
Belleenstein, they think the stricture is near the point of anastomosis from my first resection so it's either in part of what's left of the TI or else at the beginning of the large bowel. I was a little confused after seeing my GI because he was saying that it could very well be caused by scar tissue, and at the same time he was saying that it's very likely that it's inflammation (even though my bloods showed everything to be perfect and no sign of inflammation). But anyhow, yes i'm just taking the Entocort for 8 weeks then i will taper off it completely whilst i will keep taking the Imuran. Thanks for the tip about the tissue thinning, maybe i will ask my GI to wait a while before attempting the dilatation. It would be so amazing though if the medication worked and i didn't need the dilatation. I read one of your previous posts about how you were in denial about your condition. I think i am quite similar in that way. I can't even bring myself to tell my boss why i'm going to the hospital all the time, she just knows i have some sort of problem that's stomach related, and she just doesn't ask questions. But i find that no matter how much pain i might be in or whether i'm about to keel over from exhaustion, i will not give in to it and i keep going like nothing is wrong. I know this is not good for me but i can't imagine dealing with it any other way. I even avoid getting into relationships as firstly i am paranoid about my scar from the 1st resection and secondly i can never bring myself to tell guys about my condition, so ironically enough i end up being the one who breaks hearts. Only because i don't want to be the one to suffer rejection. Jeez i hate this disease so much. Sorry if i sound like a moaner, it just feels like life is passing me by sometimes and i'm letting it happen because of fear. Anyhow, i start my new meds today so i'll be crossing everything and praying that they help in some way. Thanks for the good advice........Lila
That's amazing that the balloon dilatation held for such a long time. That's as long or longer than surgery might hold! Were you having really bad bloating before you had it done. It seems that everything i eat at the moment is causing severe bloating. Even on the Entocort and Imuran. And if you did suffer bloating did it ease off after the dilatation?