After Prednisone... What Next?

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kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 3/6/2008 8:29 PM (GMT -7)   
Hi Everyone,
I am still on prednisone after four weeks and it is still not working. I want to get off if it because I hate the side effects and it is not helping. What would be my next choice of medication? I have been on entocort and now pred, so what next? I have a GI appt in two weeks and I am ready to not be sick anymore. I can only work. I can't really do much else. What do you all think. Please let me know.
Kgirlie
Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 3/7/2008 3:42 AM (GMT -7)   
I feel your pain. I have only been on it 1 week & I hate it too. It doesn't seem to be helping me either...
Live for today, for tomorrow you might just get hit by a semi.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/7/2008 8:22 AM (GMT -7)   
Personally I would ask about either Remicade or Humira. I'm sorry to hear that steroids aren't helping! The side-effects are really bad, though. I understand all about that!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05
--1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone
--tried Prochymal in Phase III study (can't wait til it's approved!)
--waiting to start Tysabri
--single mom to 10-year-old girl


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 3/7/2008 1:42 PM (GMT -7)   
My doc said that if you don't respond to prednisone, you likely won't respond to the the 6MP or the biologics---I don't know if he is right. Have you had your stools tested? If you have C difficile or an infection in your stools the steriods won't work, and you may need antibiotics.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/7/2008 9:27 PM (GMT -7)   
gumby - I don't respond well to Prednisone, but I DO WONDERFULLY with my Remicade, but that's just me... Prednisone should be a short-term fix, in my opinion, as the long term effects are quite terrible for some of us.

In fact, Remicade is about the ONLY crohnie med that I've tolerated thus far.


kgirlie - depending on the severity of your symptoms - maybe it's time to talk to your doc about a biologic (like Remicade or Humira), or maybe something like Purinethol or Imuran?

If the symptoms are more minor (I can always hope), maybe some changes to your daily routine would help? Like adding a probiotic, exercise... things that don't SEEM like they would make a big difference but really do...

Just thinkin' out loud. Good luck to you!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 3/8/2008 8:07 AM (GMT -7)   

Thanks for your responses. My dr wants to see me Monday to discuss other medication choices. I will ask her about my options.

Kgirlie 


Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/8/2008 6:13 PM (GMT -7)   
Hi Let us know how things go there are times when we all have wondered what next for meds so hope you and your DR. find something that works for you. lol gail

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 3/8/2008 6:33 PM (GMT -7)   
If you hate side effects, make sure you read up on the potential side effects of remicade and humira. They can be extremely serious. I had a bad reaction to remicade and am unable to go on them. If you have any neurological symptoms, don't go on them.

Some people respond well though.

Check out their websites for more info:

http://www.humira.com/
http://www.remicade.com/remicade/global/index.html
Imuran is another medical option. It's an immunosuppresant that takes a few months to kick in. Of course, there are potentially dangerous side effects for this one too. It's just the way it is with some medications.

Aside from the next big drugs, you can always try a diet like The Maker's Diet or Specific Carb. Diet.

Post Edited (Roni) : 3/8/2008 10:17:09 PM (GMT-7)


Mark Mac
Regular Member


Date Joined Mar 2008
Total Posts : 41
   Posted 3/9/2008 11:51 AM (GMT -7)   
Kgirlie,

Sorry to hear you're having a hard time, but don't wait to hear what drug your doctor wants to put you on next. I'm sure you've heard about all the alternative therapies that can be of benefit in combating crohn's including but not limited to acupuncture, probiotics, exclusion diets (I avoid dairy, fried foods, and raw vegetables), and massage seems to help too (expensive though). I too have had a hard time identifying drugs that I respond to. Prednisone worked well, but after discovering osteopenia in my hips and spine, I will never take it again. Good luck.
Diagnosed CD in 93'. Currently taking Humira, and darvoset for pain. Also getting acupuncture and chinese herbs as well as a massage when I can afford it. 107 lb

"I cannot promise that change will make things better, but change must occur if things are to become better"


kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 3/9/2008 2:19 PM (GMT -7)   

I go tomorrow to the dr. Thanks for your responses. I have tried alternatives such as massages and acupuncture and I was sick from both of them. THey massage killed my arthritis and the acupuncture was for migraines and was unsuccessful for me. I will keep looking for alternatives. I just want to be in remission and stick to my pentasa. Isn't that what we all want. I will elt you guys know and thanks for the input.

Kgirlie


Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  

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