It is a rubber seton. And the surgeon did describe the tightening as "cutting it out" technically like the ice cube example someone just said. Eventually "squeezing" it into the wall to choke it off I guess?? I just don't understand because I had 2 other setons before that were rubber but were never tightened and healed on there own after 3-7 months or so. I do need to have an answer to WHY and I'm very consciously "putting off" my next doc appt. I received a voicemail from his nurse the other day just stating "it has to be done if you ever want this to go away."
It wasn't bad to actually have it tightened, but 10 minutes later as I'm walking to my car it started throbbing pretty intensely, actually drawing tears to my eyes (it was VERY hard to drive home, I was by myself) and then after 12 hours it was excruciating. Who signs up for that again?? and get this, I begged my husband to take me to an ER to have that stitch removed where it was tightened so I could stop the pain. (the resident on call told me to because I couldn't pee, my stomach was distended and the abscess seemed like it wasn't draining anymore). The ER doc in a local suburban hospital looks at it and goes "what IS that?" So I pulled up my pants and said, "yeah, we are outta here" and drove 2 hours to the university hospital were my doc is. (THAT was scary, although it's not like every day you see a drain in someone's bum!) By the time I got there and waited 4 hours to even see a nurse, the pain was subsiding and codeine had worn off so I could pee and they said, "well, looks like you are okay now".
So how many of you tell people what kind of procedure you actually had done? My husband and I keep saying I had a "procedure" and leave it at that, but closer friends ask for more details, since it seems like a bigger deal than a small procedure and they are concerned, but they can't fathom how it all works. It's hard to explain, but it's a comfort to have you all who have been there done that. Thanks for the support!
Hello all. My surgeon said the type of fistula you have dictates the treatment and the seton. If the fistula is "high", meaning above or in the sphincter muscle, then advancement flap surgery or plug surgery are your options. You get a ring seton that just keeps the fistula open so it won't plug. If you were to cut the fistula open, it would heal BUT the sphincter muscle wouldn't be strong and you would be immediately incontinent.
If the fistula is "low", meaning closer to the anus and no sphincter muscle is involved, then they can either 1) cut it open and let it heal or 2) use a cutting seton. A cutting seton cuts through the tissue as it is tightened, and the tissue heals in behind it. So if you felt like you we being cut -- you were right!!!
Mine are "high" so my options are advancement flap surgery or learn to love them! My disease is active -- abscess and fistula/seton in January and continuing inflammation. I can't have surgery until the inflammation is gone. But considering the advancement flap surgery is only 70 - 80% successful in CD people, I'm not liking the surgery anyway. I'm allergic to Remi and Humira, so "learn to love 'em" is my option at the moment!
So that is what my Dr told me. Does this mesh with what others know??
Post Edited (already_sickofit) : 4/17/2008 12:22:48 PM (GMT-6)
I appreciate the luck! I could use a little of the good kind for a change. As much as I long for an explanation of WHY I've had to deal with these uncomfortable situations, I hope that the non-Chron's diagnosis is accurate. I don't think I have the temperment to deal with this for a truly long time. It's been 4 years since my first abcess started draining spontaneously, not very long, compared to some of you. I have the utmost respect for those of you who do deal with this.
I try to maintain a positive attitude, but a world of uncomprehending co-workers, active 6 (almost 7, daddy!) year old daughters, community swimming pools, car shopping with seating comfort a priority, and the drainage... sometimes it gets to be a little much. I have a supportive family and friends. They keep me centered and keep me going. I don't know what I'd do without them.
And now I've found you guys. While I don't completely understand everything that you have to deal with, you have an understanding of what *I* am dealing with. Being understood means a lot, and I'm thankful to be where I am.
Post Edited (FallColors) : 4/17/2008 5:13:59 PM (GMT-6)
Good afternoon! Just thought i'd post an update to my condition. The doc decided my seton wasn't progressing as fast as he'd like, so i'm scheduled to go in and re-open my fistula (should all be low, now, and a small, shallow incision). the weight i had for traction came untied last friday, so i have had near a week of happy relative pain free days and nights. The surgery is scheduled for the 10th of july. Doc said it'd be a tiny incision just about a cm long and about that deep, as well. nothing, in comparison to my other surgeries. i was hoping for it to pull all the way out and avoid the surgical solution, but if that gets me healthy and 100% again, all the better.
4 months of a lead anchor dangling from my insides is enough suffering for me.