When I was first diagnosed 10 years ago, I had a great doctor and surgeon at Lahey Clinic. He was the head of the department, but unfortunately went to Albany, NY. I think that the level of care dropped considerably.
Currently I have a Dr. at Beth Israel and he is great. He always gets back to me right away. He is on the CCFA and teaches at Harvard as well.
I feel that responsiveness and the ability to listen is almost as important as how intelligent/experienced a doctor is.
Great responses and sharing. I am thrilled that you all seemed to have found good physicians. The physician/patient trust issue is so important with this disease.
Take care allKitt