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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 3/10/2008 12:02 PM (GMT -7)   
First has anyone tried the specific carb diet and does it work?
 
2nd......has anyone had any gallbladder problems or pancreatic issues with your crohns..I have been having really severre nausea and stabbing pain in my upper abdominal area..just curious cuz my crohns is in my colon not anywhere else

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 4wks, 20mg Pred, Asacol, 75mg Imuran, etc.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 3/10/2008 12:17 PM (GMT -7)   
Can't answer the first one, but gall bladder disease is more common in Crohns than in the general population. Pancreatitis is more likely a side effect of the 6mp/imuran medicationc, but can be seen in Crohns absent those. Gall bladder pain tend to localize slightly to the right of midline, right under the bottom ribs, while pancreatitis is more centered and often radiates through to the back.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 3/10/2008 12:38 PM (GMT -7)   
I had my gallbladder removed before I was diagnosed with Crohn's (since that took about 8 yrs).  Was told my gallbladder wasn't functioning properly and that was their best guess at the problem.  Having it removed did help with some pain, but not all of it.  
 
I had an ERCP done in September due to elevated liver enzymes.  Was told AFTER the test that pancreatitis was a possible complication.  Ended up with it and was in the hospital for 3 more days, missing my sister's baby shower, which I was the hostess of.  The pain from pancreatitis was the worst thing I have ever experienced.  I threw up 28 times that night (yes, I counted).  My abs contracted so badly that I was bent over and could not straighten up my body.  The max amount of morphine they would give (which was supposed to be a BIG dose) brought my pain level to a 6 that night.  
 
So, in my experience, the pancreatitis pain is not something you can have and go on with your life...you are in the ER, extremely sick.  Gallbladder pain was bad at times, but was almost always bearable and I could still function.     
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/10/2008 8:43 PM (GMT -7)   
Re: your first question...

I've heard of numerous people succeeding on the Specific Carb Diet. I think it is an intelligent, if hard to follow, diet.

I, myself - I couldn't do it. I was in a terrible flare, and EVERYTHING I ate had terrible effects, so after three weeks strictly following the diet with no relief - I gave in and had some pasta. I haven't even tried the diet now that the Remicade has me in remission. I think it would be considerably easier to follow the SCD if you're healthy, and can consume fruits and veggies without trouble.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 3/13/2008 1:25 PM (GMT -7)   
I just am at a loss for what this pain is..thx for your replies BTW....but I just keep having bad bad nausea and upper centered abdominal pain..dont want to go to the er again for nothing but I can hardly eat a thing without pain..laying down doesnt help and walking makes it worse

any ideas?????????

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 4wks, 20mg Pred, Asacol, 75mg Imuran, etc.


koltron
Regular Member


Date Joined Oct 2003
Total Posts : 23
   Posted 3/13/2008 3:21 PM (GMT -7)   
Hi there.
sounds like pancreatitis to me, a blood test will show elevated amtlys and lypys witch could be a side effect of a medecation or the crohns desease acting up, i found once my crohns got better the pain was less, also if it is pancreatis try avoid fatty foods.

Hope You Feel Better Soon
Ron

P.S. please ignor my poor sqelling
 


misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 3/13/2008 5:45 PM (GMT -7)   
I have books on the SC diet and have tried it, but its very hard to follow. I mean, you basically can't eat ANYTHING!!! I wandered around the grocery store for hours just aimlessly looking at food on the shelves trying to figure out what kind of sugars it had in it. Maybe I'm stupid, but I just had a really hard time with it.

I find myself to be like PatientSpiders, I have problems no matter WHAT I eat, so I would rather eat what I want and be sick, then eat bland food with the same effect. However, I have stopped eating red meat, and was tempted not to long ago at Outback to have a steak. I paid for it the rest of the night. You have to find what works best for your body, not so much following a diet, but following a "what works for you" diet.
26 y/o, diagnosed at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, tired all the time (except when on Prednisone), occasional abdominal pain
Weigh loss, but scared that once I start the Entocort where will be lots of weight gain :(

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