Entocort side effects?

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knottedup
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 3/11/2008 1:16 PM (GMT -6)   
I've been taking Entocort for two weeks now and am wondering if my symptoms could be a side effect of the drug...  My Dr put me on it (along with Pentasa) because I was continuing to have intermitten bad cramping and some stabbing pain in my lower right abdomin. No D or C, just cramps and pain. That pain has stopped, but now I have pain in my upper abdomin, sometimes aching in my sides, and have a lot more gas.  Side effect of the Entocort? or Something else? If it's a side effect, will it get better? 
 
 
 
 

leny3332
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 3/11/2008 2:08 PM (GMT -6)   

Hi,

I also started on Entocort 9mg about a month ago.  I have noticed a significant increase in gas.  Soon I will be driving my family out of the house.  Everytime I let one go at work, somebody seems to come in my office. 

Lenny


knottedup
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 3/11/2008 2:56 PM (GMT -6)   
Lenny, I keep hoping my co-workers think that I'm moving something around in my office... lol

leny3332
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 3/12/2008 7:54 AM (GMT -6)   
Ha, exactly.  I should get a pet so I could blame it on him.  The troubles we have...

Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 266
   Posted 3/12/2008 11:20 AM (GMT -6)   
Well, itf it helps any I read the fresh Pineapple is suppose to help with gas problems !!  I might have to start Endocort tomorrow and have had the same symptoms as above... the cramping and sharp stabs...  not nice at all.  Now I know what I have to look forward too  ;o)  pewwww

Ulcertive Colitis Diagnosed May 2004
Asacol 400mg 3 times per day
currently experiancing a flare up... increased Asacol to 6 times per day and may possibly add ENTOCORT 3 taken 3 times per day


leny3332
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 3/12/2008 11:30 AM (GMT -6)   
Thanks, I may have to try pineapple.  Good luck with your symptoms.

Megera
Regular Member


Date Joined Feb 2008
Total Posts : 92
   Posted 3/12/2008 1:50 PM (GMT -6)   
I've been on Entocort for close to 3 weeks now and haven't experienced the gassy side effect. If anything I have less gas.
I still have pain (left and right side) though.

The only out of the ordinary symptom I've noticed is I got cold-like symptoms for one day last week and I've been having night sweats. Not sure if it's the Entocort or the Pentasa though.
Current:
Dx: Crohn’s Ileitis as of 22/02/08
Rx: 4g Pentasa (2 pills 4 times per day)
9mg Budesonide (one capsule 3 times per day for the next 6 weeks)

Pre 22/02/08: 2.4g Asacol (discontinued due to Crohn's Diagnosis)


knottedup
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 3/12/2008 2:30 PM (GMT -6)   
I'll have to try pineapple, too. Wish it would help with the pain, too.

Lenny-- never thought of the pet..that would solve a lot of problems!

Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 3/12/2008 4:46 PM (GMT -6)   
I have been on the Entocort for about three weeks. I have had the sore abdomen, gas(that really sucks especially when u share office space....hold it in and hope no one makes you laugh or sneeze). I have put on weight which I am NOT happy about, even though I haven't changed my eating habits. Anyone else gain weight from the Entocort? I also don't sleep well
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.


misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 3/12/2008 6:46 PM (GMT -6)   
I have officially been on Entocort for one week now. So far, NO side effects, no gas.. thank goodness!

I really hope I don't gain any weight from it either!
26 y/o, diagnosed at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, tired all the time (except when on Prednisone), occasional abdominal pain
Weigh loss, but scared that once I start the Entocort where will be lots of weight gain :(


formedstooler
Regular Member


Date Joined Aug 2007
Total Posts : 39
   Posted 3/12/2008 6:49 PM (GMT -6)   
I took entocort when I was first diagnosed and didn't get any side effects.....this stuff is much nicer than Pred.
DX AT 39 (2005)
PENTASA 4000 MG
FOLIC ACID
B12
 
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 266
   Posted 3/12/2008 9:57 PM (GMT -6)   
One of the first things my Dr said about the Entocort was that if you are on it for a long period of time there is a good possibility of weight gain. I have to decide tomorrow whether or not to try the Entocort.. I will probably fill the prescription after reading the comments here.. it doesn't seem so scary now, lol. These boards are very helpful, thank you all !!

Do any of you miss alot of time at work when you have flare up or typical pains? I work fast food and have been off for a little over a week now. I still have symptoms from my bad flare up last Monday.. but feel guilty not working. ?? I am really uncomfortable at work and drowsy during these times of pains and what not.... I guess what I am saying is.. I dont know when it is "ok" to go back to work. I mean.. how long do symptoms from a flare up last?? Sigh......

Asacol 400mg 3 times per day


<FONT color=#ffa500>currently experiancing a flare up... increased Asacol to 6 times per day and may possibly add ENTOCORT 3 taken 3 times per day


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 3/13/2008 12:18 PM (GMT -6)   
Hello, Today is my 7th day with Entocort. I have had no problems so far. My second day on the meds, Pentasa as well, my abd. pain that I have had forever went away. Sometimes my lower lip feels tingly. I have been on Pentasa in the past and didn't feel this so I think that it is from the Entocort. Hope this helps. Kay

 I Love MY Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa and now Entocort.    


knottedup
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 3/13/2008 12:27 PM (GMT -6)   
I so appreciate this board! Thanks everyone!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/13/2008 6:39 PM (GMT -6)   
I *think* gas may be an indication of the state of your intestines, rather than a side effect of the medication.

I
Co-Moderator Crohn's Forum.


clavman
Regular Member


Date Joined Sep 2007
Total Posts : 39
   Posted 3/13/2008 9:17 PM (GMT -6)   
I love this forum! It's nice to know that when you have a question or just want to vent, this outlet is available. I was about to ask a question about entocort, but all I had to do was browse through the topics and find that my question has already been asked and answered. My GI just put me on a startup dose of entocort for the same nagging right side discomfort that some of you have described. He thinks it is a mild flareup at the terminal ileum where I was diagnosed with CD last year.I just hope the side effects are less than the prednisone side effects. I remember that the prednisone gave me night sweats, memory problems, mood swings, insomnia, and a host of other side effects, but it sure did work. I hope the entocort can help me with fewer side effects.
PS-I have occasional gas, but I have had that long before I had CD. I try to blame it on the dog but my wife doesn't buy that one too often.
Bob
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 3/22/2008 7:10 PM (GMT -6)   
Started Entocort three days ago and have been on Pentasa for almost a year now. Not noticing gas - my daughter will sure love that one, though. :)

As for the pain - not helping yet. Hope it knocks it out soon. I have a real jerk for a boss. If I miss work I am told I have an attendance issue; if I go into work and even grab my gut once, I am told I am unprofessional. sad

Thanks for all the info on Entocort. I was wondering the same. Love this forum!! Great folks!

-Leslie

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1883
   Posted 3/22/2008 10:53 PM (GMT -6)   
My daughter was a tad constipated while on 9 mg Entocort, but it wasn't as bad as when she was on pred.
 
At 6 mg Entocort, no side effects except a tendency for colds to turn into throat infections, plus after 5 months, slowly rising blood sugar levels. 
 
At 3 mg no side effects so far...been at 3 mg for nearly a year and in full remission. Been on Entocort since July 2006 and no plans to get off it any time soon. The last flare was when she tried to quit it.

Gabrielle
Regular Member


Date Joined Nov 2003
Total Posts : 108
   Posted 3/23/2008 6:21 AM (GMT -6)   
I was on Entocort for 2+ years after being on prednisolone for about 4yrs.

I prefer Entocort anyday. No side effects at all. No weight gain. No swelling, no moon face etc

Entocort pushed me into remission and azathioprine (imuran) maintained it.

Gabrielle

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 3/27/2008 7:34 PM (GMT -6)   
Okay. This medication is starting to make me very very agitated. I am snapping at people and am starting to not to be able to sleep well. My family members are noticing this ugly change. I went by the pharmacy to visit with a pharmacist about this because I was wondering after reading this post and posting earlier this week. Don't know how much longer I can go on like this. My nerves are just shot.

So nobody has experienced this?? The pharmacist pulled up the med specs and said these were common side affects to this. I feel like I am turning into the antichrist.

devil

Texan with Crohn's

CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 3/27/2008 8:13 PM (GMT -6)   
Yup, the Entocort (and *especially* the prednisone) did the same thing to me. I adjusted to the Entocort rather quickly, though. The gas, abdominal discomfort (and noise) went away after about a week. The mood swings and insomnia went away after about three weeks. When the only steroid I'm on is Entocort, I don't even notice any side effects from it at all anymore. If you ever have to take prednisone, expect to have the same side effects, only worse. The mood swings and anger it gave me made it intolerable. I had to go off of it fast. Then I ended up having to take it again just over a month later. Surprisingly, I tolerated it much better the second time around. I'm currently taking 20 mg of prednisone and 9 mg of entocort every day, and I'm not having any mood swings at all. I'm not, I'm not, I'm not! tongue The insomnia still sucks, though. Lunesta doesn't even touch it.
 
Give it some time. Make sure you let the people around you know that you are not in complete control of your emotional state right now, and that you don't mean most of the things you say.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 266
   Posted 3/28/2008 7:07 AM (GMT -6)   
Well, I have been on Entocort for two weeks now... the main side effects I have noticed are... inability to sleep thru the night!! I take 3 pills at about 7pm each day and find they keep me awake well into the night. Might switch to taking them during the morning hours instead. I also find that they make me forgetful, especially the next morning. For example, I was looking for my cordless phone one day and then realized I was talking on it !!! I have also found myself to be much more emotional and prone to higher levels of anxiety. Gas.. yes.. lots of gas....
Ulcerative Colitis Diagnosed May 2004
400mg Asacol 3 times per day.... increased to 6 400mg per day Mar.11
Entocort 3 pills once a day
Daily Vitamin for Women


youngrick
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 3/28/2008 11:06 PM (GMT -6)   
I am 39 years old. Have had Crohn's since I was in 5th grade. Wasn't diagnosed until my freshman year in college. Crohn's stunted my growth. In the beginning I would go 1 week, maybe 2 before a BM. Felt like concrete coming out and was bloody. The end of my freshman year in college I had horrible pains; kidney infections; bladder infections. Found out I had a hole in my bladder brought on by a hole in my intestines. Had 18 inches of upper ileum removed. Grew 6 inches and gained 40 pounds in about 6 months after my surgery. Went almost 20 years with chronic D but no medications required. Just toughed it out. Valentine's Day 2007 was spent in the hospital for a week. Horrible stomach pains and threw up blood and had some blood in stool. Was my second trip to the emergency room in a week. Scar tissue from the 1988 surgery -- coupled with inflammation from CD -- closed my intestine enough to cause gas buildup that led to vomiting. Went on prednisone for about 5 months. Started out with 20 mg daily, then 15, 10, and 5. Have to say at first I never felt better when I started Prednisone. It was the first time I ever had normal BMs since I was a CHILD! Incredible experience. But the side effects were horrible. Turned into an instant emotional jerk. Did NOT sleep more than 3 hours a day. Also took Pentasa but it did nothing for me. Quit taking Pentasa about 3 months after prescribed. Weened down to 1 Prednisone and 3 Entocort pills daily; then 3 Entocort; then 2; then 1 entocort for about 4 months. Gained a little weight, remained a wee-bit irritable, but all-in-all Entocort was MUCH better than prednisone as far as feeling SANE and less emotional. Two weeks ago I came off of steroids all together and all went well for 1 week. On the 8th day I awoke to swollen ankles. I was scared to death that I had heart, kidney or liver problems that had been masked by the anti-inflammatories I had been taking for 13 months. Doc says my adrenal glands have gone on vacation due to the fact that the steroids were doing all the heavy lifting for them. Legs are tight, especially the inner thigh and hamstring area. Am told that it may take 4 to 6 weeks for the adrenal glands to get back to normal. Wearing TED stockings to increase circulation in blood and keeping feet elevated at night when going to bed. Sleep is wonderful again. Your body produces cortisone naturally ... from the adrenal glands ... and taking such a large dosage for one full year and one month has caused the swelling of my ankles and tightening of legs. Hope this post helps people with their own CD problems ... and with people who have been on steroids a long time. My gastro doc said Entocort shouldn't cause problems with sleep, but it DID! Glad to see other people had that problem, too ... Thought it was all in my head. My wish now is there was something that could help with scar tissue in my intestine from the 1988 surgery. I have to avoid beans, peas, etc., because the gas pains are horrible when I eat them. Milk also isn't good for me. Drink cranberry juice for vitamin C and take vitamins every day.

Megera
Regular Member


Date Joined Feb 2008
Total Posts : 92
   Posted 3/29/2008 12:33 AM (GMT -6)   
I've been on 9mg of entocort for a month now (2 months left!!). I've noticed night sweats, acute mood swings and inability to sleep through the night (mostly because I'm getting up with the urgent need to pee!!). I'm also having random leg pains and I had a really painful leg cramp over the weekend.
I brought this all up to my doctor and he said that none of it was related to my medications? I personally disagree but since I'm not a doctor... *sigh*
Current:
Dx: Crohn’s Ileitis as of 22/02/08
Rx: Salofalk 4g/day (26/02/08)
9mg Budesonide (one capsule 3 times per day for the next 6 weeks)

Discontinued meds:
Asacol 2.4g
Pentasa 4g


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/29/2008 3:20 AM (GMT -6)   
I've had increased urination with steroids. Don't know if that helps you, Megera...
Co-Moderator Crohn's Forum.

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