First stay in the hospital...Thanks to Crohn's

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ImaKeeper
Regular Member


Date Joined Nov 2007
Total Posts : 51
   Posted 3/11/2008 1:43 PM (GMT -7)   
Well this was the day that I hoped would never happen...but after dealing with an entire night of the worst stomach pain I have ever had I gave up and went to the ER..thankfully my Dr wanted me comfortable first before starting any tests and after a few hours the sentence I didn't want to hear was said to me "we are going to admit you to the hospital", my first thought was I can't stay here I have kids and my husband works and now he will have to take time off for all of this....my mind absolutely raced. Once I was admitted and my doctor came to see me he said that after looking at the scan it looked that both my small intestine and colon were inflamed but no blockage, so I was ordered to stay for 6 days while they gave me steroid through my IV and slowly allowed food(if thats what they want to call it) so I have been home for 4 days now and am still on jello, popsicles, ensure, and cream of rice cereal...My doctor said that in the next couple of days I could try to add some soft food but I am absolutely terrified to eat anything I don't want the pain to return. I am again also on my lowering dose of pred YUK and feeling just nasty from it as im sure that you all know to well...I go to see my doctor on Monday to find out more about my next options and from what it sounds like its going to be remicade, and that also makes me nervous fear of the unknown I guess....well thats about all to my story just thought I would share it with some people who knew what I was going through..take care everyone and thanks for any advice in advance weather it be remicade or just getting over trying to eat again....Laura
currently taking

pentasa and one week off prednisone
and advair for asthma


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/11/2008 1:48 PM (GMT -7)   
Sending you hugs! Most of us have been there, not wanting to go to the hospital, yet thats where we end up. My first stay, I was packing for a vacation with my husband, and instead, I spent my vacation in the hospital. But it sounds like your doctor has plans to try to get things under control and that is what is important. So take some time and try to rest so that you can heal and get better.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


coyotegirl
New Member


Date Joined Jan 2008
Total Posts : 17
   Posted 3/12/2008 7:19 AM (GMT -7)   
So sorry to hear about your hospital visit. I have had a couple of those myself and I very clearly remember the fear of eating when I got back home. I was pretty careless back then, and I love to eat, so after soft foods for a few days I returned to normal. I always avoided salads and citrus fruit. I had a small bowel resection after my last hospital stay because the buckets of medicine didn't help any more. Since then (1993), I have not taken any med's. Over time I have given more thought to what I eat and the fact that I still have Crohn's disease. I like to read about what helps others (such as Healing Crohns the Natural Way by Virgina Harper). Try Miso soup, bananas, and rice. Try making soups and puree some. What about a juice extractor to make drinkable vegetable mixes (romaine, kale, lemon, and apples). All fiber is removed. Peppermint tea works great. Someone once told me to try peppermint extract drops before meals. I also stay away from garbage, you know the tasty stuff (meat, dairy, sugar, packaged stuff, breads, etc). Most importantly, don't beat yourself up with worry and stress. Stay positive and get outside as much as possible. Take the medicines but also find natural ways to heal yourself, to get to the root (if possible) of the disease. It is hard to find time for taking care of oneself, especially with work, kids, etc.

Hang in there and smile! tongue

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/12/2008 8:27 AM (GMT -7)   

Hey there, good morning.  Sorry to hear of you hospital stay but look at it this way, you now have experience and I pray you never have to be admitted again, but your whole attitude about your stay was positive.

You are unstoppable.

Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
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nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 3/12/2008 1:22 PM (GMT -7)   
ImaKeeper
Sorry to hear about your recent hospital stay. Did the steroids and liquid diet work? Did you get out of pain?? I hope so...just curious at what dosage they give steroids IV. I have been on petnasa and entocort and still in pain. My doc will not prescibe prednisone. I just want to get out of pain. Did the steroids stop the diarrhea too? How long does it take??
Thanks
Chris

ImaKeeper
Regular Member


Date Joined Nov 2007
Total Posts : 51
   Posted 3/12/2008 1:34 PM (GMT -7)   
Thank you all for your support!!!! I still have my days where I feel very down since Im still just doing the liquids...I may have a try at a banana later on when my hubby gets home..as to answer your question Chris I'm not sure how much of the steroid I was given in my Iv but I am now on 10mg tablets I take 4 at once (40mg) until Thursday then three for a week then two and so on until Im on a half then done...so far it has not stopped the diarrea I am hopeful that it will get better once I am able to add more "food" to my diet ...when I was put on it back in November it did stop it and I think that it took a couple of weeks...so I am keeping my fingers crossed...good luck with your health and thank you all again....Laura
currently taking

pentasa and back on the tapering dose of prednisone after hospital stay.
and advair for asthma


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/12/2008 1:37 PM (GMT -7)   
I had my first hospital visit last June. Just like you, I had never been afraid of food until after that. I spent a week on full liquids and was afraid to add foods when I got home. My doctor advised me to just keep a low fiber diet, saying that the less I 'exercised' the bowel, the more it could rest to heal. So, I avoided raw veggies, skins (potato, etc) and stuck to mostly cooked carrots/zucchini, chicken, fish and seemed to do alright. I have to admit that I am still far more aware of food than I ever was before the hospital. But, maybe that's alright... I told my daughter just this morning that I miss "pgging out!" I guess I just try to eat little thinking less in, less out. Within reason, that is!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05
--1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone
--tried Prochymal in Phase III study (can't wait til it's approved!)
--waiting to start Tysabri
--single mom to 10-year-old girl


nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 3/12/2008 2:16 PM (GMT -7)   
SR5599-
What is prochymal? Is it a new drug for crohns????
Thanks
Chris

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 3/12/2008 7:45 PM (GMT -7)   
Sorry to hear it. Of course, if you have this DD in anything more than its "mild" form, the more you try to outlast, deny, or ignore symptoms the hospital is where you end up anyway...
Anyway a huge <<<<HHHUUUUGGGG>>>> for you. Please take care & take it easy getting back to real food. Try pudding, mac & cheese, or other things like that first. Just don't be so afraid you never eat again!

Sincerely,
Matthew
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