What should someone know about Crohn's that is new to them!

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lovabul28
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/12/2008 11:21 AM (GMT -7)   
Hey everyone I have been newly told that i have Crohn's by my Doctor for about a year now. What kind of things should i do or stay away from? I guess i can say that the first symptoms i had was in December of 06 and i went to the hospitals ER with lower abdominal pain, vomiting, fever, cold chills. once i got in there they did a CT scan and gave me some anti vomit meds oh and cant forget the blood work. I was then told by the doctor that that i had colitis and was and was given Cipro and metronitazole to take at home and then was given instructions to go see a specialist and when i did he did an endoscopy and found that i had stomach ulcers. told me to stop taking the antibiotics and gave me something for the ulcers. and after in moved back home in march of 07 where i was with my family. I then had the same symptoms and then some added ones like knee pain. quarter size red painful to the touch welt looking things all over my lower legs, and my calfs swelled to twice there normal size in June of 07. At that point i had been into the ER 3 different times with in a month because they all cam on at different times. after that i had a appointmet with a different specialist to where i had a colonoscopy and found out that i had crohn's. I have been on meds for it. the first med i was on was Lialda for about 3 months that was working great but i was loosing my hair and decided to stop taking it. after that i switched to Sulfasulizine (sorry i know i spelt it wrong). and after a few months that was not working because i started to get a flare up and went into the ER not i am on Asacol I hope this one works. and each time i got a flare up and sometimes no flare up i would get these painful blister like things on my anus and they hurt like Hell. Anyone with any advise please let me know.



Thanks.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/12/2008 4:39 PM (GMT -7)   

Hello and Welcome to the Crohn's Froum.  I am Kitt.  You may want to look at this site as it has tons of info that may answer some of your questions.  Also there is a wealth of information in the posts here in the forum.

http://www.ccfa.org/

Again a warm welcome.
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 3/12/2008 7:48 PM (GMT -7)   
Lovabul28,

There is no one thing we have not eat or only eat. Best thing to do is make a journal & record what foods hurt you. Which might have hurt, & which are safe. Trial & error I'm afraid.
BTW, Welcome to HealingWell, but I'm so sorry you must be here.

Sincerely,
Matthew

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/13/2008 6:23 AM (GMT -7)   
welcome! sorry you are here, but keep asking questions. I would say to anyone diagnosed with anything--find a doctor you trust, take anything you need to help with symptoms, and don't panic as this takes time to sort out and things change along the way.
take care, yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/13/2008 7:01 AM (GMT -7)   

Yoga, that was a great answer, I will remember that one.

Thaks
Kitt


Mike in NJ
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/13/2008 1:37 PM (GMT -7)   

lovabul28,

Sorry to hear your jumping medications around.  Have been on the Asacol for quite some time now. Was declared back in 2004 and havebeen on it ever since.  Seems to be pretty stable in my case but I know everyones different.  Good luck and hopefully it will work out well for you.

 

 


 
Mike in NJ.
 

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/13/2008 7:00 PM (GMT -7)   
Hello Love- Sorry, I couldn't resist! READ UP on Healingwell, keep a food journal and be very patient. It's gonna take some time to figure out what your triggers are. Even with jumping around on meds for awhile I found that every time I started to flare I would back off the food and go to a liquid diet for the first 24 hours. Then I would slowly graduate to puree foods and then to solids. Each and every one of our cases are different but you will find what works for you. Get plenty of rest and keep those stress levels as low as you can. This site will become your lifeline and there are a whole lot of great people here...welcome to our family or (peeps) if you prefer. By the way, I must ask, what came of the whole broke out leg thing? Do you think that was CD related?
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


lovabul28
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/14/2008 7:46 PM (GMT -7)   
Broomhilda---- to answer your question about that whole broke out leg thing i was told that it was from the CD or as my Doctors refure to it as Nonspicfic colitis.

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 3/15/2008 6:51 AM (GMT -7)   

Be patient, it takes some trial and error with meds to get the right ones for you.  I immediately backed off of milk and found I was lactose intolerant.  Avoid seeded foods.  Carry a change of clothes in your vehicle and learn where all the restrooms are located.  Reduce the stress in your life.  Put yourself first if you normally don't do that.  Don't be afraid to go get a second opinion.  I travelled to the University hospital to make sure I was on the right track.  I avoid many foods, peanut butter, sugar, nuts, milk products and could go on and on.

 

Crohn's 7 years

Remicade, Nexium, Cymbalta


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 3/15/2008 9:10 AM (GMT -7)   
Hey, and welcome to the forums! I am new here as well and have found a great abundance of info both here and in the Colitis forum. AS everyone else has said.. the best thing you can do is keep the journal and trial and error. I find popcorn and corn really bothers me.. as well as processed meats like pepperoni on pizza's. Anything spicy is also a no no and drinks like beer are often slight triggers. What stood out to me about your post was the troubles you had with your legs!! Before I was diagnosed with colitis I was having break out sort of like hives all over my legs.. it seemed to have something to do with standing for long periods of time <on the bus for example.> When I brought it up to my doctor he said it was probably from crossing my legs when I sat down and cut the circulation off. Even tho I made it a point to stop crossing my legs when I sat.. it didn't make sense to me since the break outs would happen when I was standing!! I never did get an answer to this break out phenomena but maybe, as you stated, it had soemthing to do with the colitis I had not yet been diagnosed with..... interesting and thanks ! Good luck with your symptoms!!! :O)
Ulcerative Colitis Diagnosed May 2004
400mg Asacol 3 times per day.... increased to 6 400mg per day Mar.11
Entocort 3 pills once a day
Daily Vitamin for Women

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