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sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 3/12/2008 8:55 PM (GMT -7)   
Just wondering if anyone has had an MRI to check for Crohn's status, inflammation etc?
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 18, Dx: Crohn's, amitriptyline 50mg, Forvia, AZA 150mgs
 
 Husband with treatment resistant depression:   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/12/2008 10:18 PM (GMT -7)   
I have. What would you like to know?

Ivy
Co-Moderator Crohn's Forum.


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 3/12/2008 10:53 PM (GMT -7)   
dear sweeterthanhoney;do mri'd work to show crohv's? also what is zolparine? flexeril is muscle relant, right? does it help? i have crohn's and cfs and am so frustrated by lack of treatment that works;the 2 diseases seem to go together;i read that ppl w/crohn's are 80% likely to develop cfs. have you heard tthis? i would appreciate any info you have..very much.thanks, artpainter44

hi, i am artpainnter44, a female freelance artist with  many physical problems. i live in a simple manner regarding philosophy;the only thing in the world i can control is my own reaction to things that happen.
    there is such a freedom in that, it's incredible;i give up wanting to control things & other people(you can't);i am learning to keep my old reactive ego reactions out of the present;it is not easy, it is simple;it takes practice & you will still hurt, cry, etc. but it's a whole different perspectine on life;i think it saved mine. thanks, painter


munchkin81
Regular Member


Date Joined Jul 2007
Total Posts : 73
   Posted 3/13/2008 7:35 AM (GMT -7)   
I had an MRI to look for inflammation. They made me drink a bunch of barium and gave me a shot of something (can't remember what) to get my intestines to stop moving. They got some info from it but not great because I threw up most of the barium. I had an MRI because I had had quite a few CT scans and they didn't want to keep exposing me to radiation.
Munchkin 81
26 year old female.  DX June 2007.
abscess Nov. 2006 - drain and surgery
currently taking 800mg Asacol 3xday, 5mg Prednisone,Aciphex 20mg 2xday 
Resection 11/07


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 3/13/2008 10:59 AM (GMT -7)   
hi, munchkin 88, thanks so much for info abt your mri experience for crohn's;probably wouldn't work for me;the very word"barium" makes me nauseated & i vomit too easily; i really appreciate the reply...thanks again..rotten disease, huh....hang in;so will i, artpainter44 tc :-)
hi, i am artpainnter44, a female freelance artist with  many physical problems. i live in a simple manner regarding philosophy;the only thing in the world i can control is my own reaction to things that happen.
    there is such a freedom in that, it's incredible;i give up wanting to control things & other people(you can't);i am learning to keep my old reactive ego reactions out of the present;it is not easy, it is simple;it takes practice & you will still hurt, cry, etc. but it's a whole different perspectine on life;i think it saved mine. thanks, painter


sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 3/13/2008 12:38 PM (GMT -7)   
artpainter said...
dear sweeterthanhoney;do mri'd work to show crohv's? also what is zolparine? flexeril is muscle relant, right? does it help? i have crohn's and cfs and am so frustrated by lack of treatment that works;the 2 diseases seem to go together;i read that ppl w/crohn's are 80% likely to develop cfs. have you heard tthis? i would appreciate any info you have..very much.thanks, artpainter44


Hi artpainter,

MRI's are supposed to show quite well and you aren't exposed to radiation, but, I guess barium is an important part and my daughter had no problem with it. We won't be getting our results till the 28th of March at her follow up appointment. She has been on Remicade and that was the only thing that helped her symptoms for about 6 months then the pain returned. We had all been under the assumption that she had a narrowing in her TI and as the symptoms came back with a vengeance the dr did a colonoscopy with the intentions of dilating the narrowing. When he got there he found nothing! SO.. we are at a loss, and she is in constant LRQ pain whether she eats or not. She is not eating more regularly since it seems to make no difference. I am hoping that SOMETHING will show up on the MRI to give us some kind of answers. For now the dr told her to stop Remicade and put her back on AZA, which to me is useless as it didn't help her the year she took it before.

You asked what zolparine is? I don't know, it isn't in my list of meds I take for my FM. What I think you are asking about is Zopiclone, which is a sleep med. Flexeril is a muscle relaxant, and it does help somewhat, but makes me want to eat carbs eyes

Oh, my daughter was injected with something to stop her bowels too. Made her feel sick for a couple of minutes but was fine after. We went on to do a bunch of shopping later.
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 18, Dx: Crohn's, amitriptyline 50mg, Forvia, AZA 150mgs
 
 Husband with treatment resistant depression:   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 3/13/2008 9:22 PM (GMT -7)   
thanks for explaimimg all that;complicated;i sure hope they figure out something for your daughter...you are very sweet & i appreciate you & the info, thanks, artpainter44
hi, i am artpainnter44, a female freelance artist with  many physical problems. i live in a simple manner regarding philosophy;the only thing in the world i can control is my own reaction to things that happen.
    there is such a freedom in that, it's incredible;i give up wanting to control things & other people(you can't);i am learning to keep my old reactive ego reactions out of the present;it is not easy, it is simple;it takes practice & you will still hurt, cry, etc. but it's a whole different perspectine on life;i think it saved mine. thanks, painter

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