I have been on Entocort for the last 8 months (3 pills per day), and it works OK. It needs 2-3 weeks to kick in so be patient. For me it's not the miracle drug like prednisone, but at least it reduces my symptoms to a satisfying level.
I haven't experienced any side-effects whatsoever which is good. I have been on pred in the past and although it worked great, it had terrible side effects, that's why I chose to continue with Entocort.
yeah, that doseage does seem high. clinical trials showed that there was no benefit in upping the dose beyond 9 mg, which is why the manufacturer's instructions list that as the highest dose that should be taken.
entocort worked great for my daughter...in remission nearly two years. nearly one year, at only 3 mg daily. she has a stricture, too, but it is a problem only when she flares, which happened only when she tried to go off entocort.