update - saw GI yesterday

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smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 3/13/2008 4:03 PM (GMT -7)   
Hi everybody! I went to see the surgeon and my GI yesterday since my surgery 4 weeks ago. All is going really well and they said my bowels are adjusting well since surgery. Rarely any D, and I alternate from "normal Bm" to loose bowels, so no complaining here! I am currently taking Pentasa 500mg - 2 pills 3 times a day. The doc advised my to only now take 1 pill a day! He said just to use my own judgement and if I am feeling not well and want to take two a day etc go ahead. My son is really sick right now with cold, fever etc. and then 2am last night my husband and I were up with him in the bathroom because our son was vomitting. I put my son back to bed and was getting him a cold cloth when all of a sudden my husband just buckled and past out on the bathroom floor. I was horrified. Long story short he feels completely fine today and refused to go see the doctor..uggh. So feeling little stressed out and scared its going to make me flare up!!! So I will not reduce my meds just yet until things calm down here. So my question is: Has anybody else been told to take such a small dose of Pentasa as maintenace? Thanks for listening!
 
Shelley
40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Feb/2006
meds: pentasa 500mg 2 x 3day,probiotic,fibre supplement,mult-vit
Surgery-Feb11/08 (resection)
 


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 3/13/2008 4:39 PM (GMT -7)   
Glad your doing ok, except for having a sick family. Especially with a stubborn member. People just don't pass out for no reason. Is it some strain of Flu? Which might explain why he feels fine now. I don't know a way to help in that, unfortunately. If he refuses, than that's it.
Anyway, hang in there maybe things will get better.

Sincerely,
Matthew

smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 3/13/2008 8:48 PM (GMT -7)   
Thanks Matthew, just so you know I am taking both husband and son to see the dr. tomorrow am. Husband is still feeling fine, but agrees better get checked out in case.
40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Feb/2006
meds: pentasa 500mg 2 x 3day,probiotic,fibre supplement,mult-vit
Surgery-Feb11/08 (resection)
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/14/2008 8:13 AM (GMT -7)   
HI there
Am glad you are getting them both to the doc's best idea IMHO....just to make sure ya know

As for your ? about the low dose I know I have not been but am hoping others will have some input for you on that
I would try to stay as stress free as possible if I were you and I KNOW its hard believe me .......

Like Matthew...hoping things do get better for you all
lt us know okay whats going on

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns
    www.healingwell.com Donate today to keep HW helping others
 
                     
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/14/2008 8:29 AM (GMT -7)   

Good morning,

I am sorry your family is not well but you are a wise lady and taking them to see physician is the right thing to do.  Please keep us updated.

As for your med, I am sorry I do not have the answer but I am sure someone will.
Hugs

Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/14/2008 9:20 AM (GMT -7)   
Smile my personal opinion is stay on the current Pentasa dose, don't decrease. I have had 2 resections and only take Asacol. After my last resection my old GI (now fired) told me I didn't need to take Asacol (sister med to Pentasa) anymore. I quit taking it and ended up getting sick. Went back on it and everything went back to normal. I am not a doctor, but my personal opinion is don't fix what isn't broke. I would stay on the same Pentasa dose.

Hope the rest of the family gets feeling better soon.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 3/14/2008 10:02 AM (GMT -7)   
1000mg of Pentasa per day is the lowest dose I read about in the literature, but GI's sometimes make different decisions based on your individual case. Talk to your GI and see what s/he is thinking.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares

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