I too have had the leakage problem you describe... what fun us Crohnies have, eh?
I have to echo misspriss on this one - I couldn't have survived without the 4x4's of gauze. It keeps you from getting chapped, and you can change the gauze several times a day to prevent any odor. My leakage stopped for the most part with my Remicade, but Flagyl might help you as well, like misspriss.
The bottom line (terrible unintentional pun) is that your doc needs to take this issue more seriously with you. It effects every hour of every day of your life, so just sticking you on prednisone and thinking "mission accomplished" is NOT going to cut it. Make him understand that this is a "quality of life" issue, no matter how silly it may sound to someone who isn't experiencing it. If he won't take you seriously - get a new GI! You deserve to be taken seriously about
this because it IS more than an annoyance or inconvenience.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."