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misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 3/13/2008 5:41 PM (GMT -7)   
Ok, I am SO embarrassed to talk about this, but I must.

So, for the past few months, I have noticed that, (not everyday), but MOST days, I have a "leakage" problem in the bum area. Basically, I first noticed it b/c I thought I had started my period, but realized thats NOT what it was. Its extremely embarrassing and even though my family says they don't notice, I feel like there is an odor present at times. I talked to my dr' about it and he hasn't really suggested anything other than sticking me on Prednisone and telling me that it will fix it (it didn't).

This is happening during the day while I'm at work. Has this happened to anyone else? Am I going crazy here? I am soooo thankful to have found this website where all of you have the same issues, I was just wondering if anyone else out there is having this same "leakage" problem and what , if anything, there is to do about it?
26 y/o, diagnosed at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, tired all the time (except when on Prednisone), occasional abdominal pain
Weigh loss, but scared that once I start the Entocort where will be lots of weight gain :(


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 3/13/2008 5:55 PM (GMT -7)   
I use 4x4 gauze sponges that I buy at a local medical supply store. They are way cheaper than buying them at Wal-Mart or some place like that. I get 200 of them for around $6. They aren't sponges in the sense that you would think of a sponge that you clean with....it is a medical term. I fold one or two (if it is after a bm) in half and then just tuck in between my butt cheeks. They stay in place no problem. It keeps the drainage from dripping on your skin and causing irritation like it would if you would use a feminine pad.

I would ask your dr. about trying flagyl. It works realy well for my rectal issues.

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/13/2008 6:19 PM (GMT -7)   
I too have had the leakage problem you describe... what fun us Crohnies have, eh?

I have to echo misspriss on this one - I couldn't have survived without the 4x4's of gauze. It keeps you from getting chapped, and you can change the gauze several times a day to prevent any odor. My leakage stopped for the most part with my Remicade, but Flagyl might help you as well, like misspriss.

The bottom line (terrible unintentional pun) is that your doc needs to take this issue more seriously with you. It effects every hour of every day of your life, so just sticking you on prednisone and thinking "mission accomplished" is NOT going to cut it. Make him understand that this is a "quality of life" issue, no matter how silly it may sound to someone who isn't experiencing it. If he won't take you seriously - get a new GI! You deserve to be taken seriously about this because it IS more than an annoyance or inconvenience.

Best wishes.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

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