I went for 12 yrs. without Drs. finding my fistulas. My fistulas were found by a combination of MRI and exam under anesthesia. I believe they use peroxide to show the fistula and to see if it branches out...... Can you go to a different surgeon? I have gotten a 2nd opinion (I am seeing a Dr. at Mt. Sinai in NYC) and now I feel as though I am finally on the road to recovery.
It is very frustrating and abscess are the worst. I have had 30+. (Not all of them were surgeries-some just burst through the skin on their own.) At times I felt like I would never recover. I would just be very agressive with the surgeon if you can't see another and ask him/her how you can be expected to live like this.If he /she can't help you, ask if they know of someone who can. That is no quality of life-take it from someone who went through it.
Have you thought of remicade? That's my only other suggestion.....
I really hope you have better luck than I did
37 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (29 surgeries including abscess I & D, exploratory surgeries, 4 C-ton drains and 1 fistula plug) Have also had several self bursting abscesses.
1st Remicade infusion 6/5/07-still taking it. Praying I'll get better soon so we can have a baby.