has anyone had a seton changed?

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Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 3/17/2008 2:15 AM (GMT -6)   
I'm just back from a medical appt where I was told that mine had to be taken out and replaced with a new one -- under anaesthetic, of course. Apparently it's standard procedure to do it every twelve months.

I believe them, but it surprises me that I've never heard anyone discussing it here. So... has anybody had it done before? If so, does it hurt afterwards? The surgeon says it won't, but I'm still anxious.

Ivy, of the perpetually sore bottom eyes
Co-Moderator Crohn's Forum.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 3/17/2008 4:58 AM (GMT -6)   
Hi ivy6,
I never had a seton, I hope everything goes good with it.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 3/17/2008 7:55 AM (GMT -6)   
Why would they need to change it??? This Sept., will be 2 years for mine. I would get a second opinion.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 3/17/2008 9:29 AM (GMT -6)   
I had to have my first seton changed. She only used one small thread and the opening closed up too much. So, after 4 months of having my first seton, I got a thicker, improved seton. It didn't hurt, it actually felt better than the first.
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05
--1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone
--tried Prochymal in Phase III study (can't wait til it's approved!)
--waiting to start Tysabri
--single mom to 10-year-old girl

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 3/17/2008 5:25 PM (GMT -6)   
Thanks, folks. I didn't *think* anybody here had had a seton changed each year.

Crohniemom, I don't need a second opinion, and in a way they are the second opinion anyway - I live in the country, and we rely on the city docs for the tricky decisions :-). These people are the top experts, and I trust them.

I asked why they needed to be changed each year and I did get an answer... but unfortunately the surgeon had a thick accent and I didn't really understand him. There wasn't really time for confabbing yesterday - I'll ask more when I'm admitted.

Co-Moderator Crohn's Forum.

Regular Member

Date Joined Jan 2006
Total Posts : 117
   Posted 3/17/2008 10:48 PM (GMT -6)   

I have had mine for 5 years now.


Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 3/17/2008 11:40 PM (GMT -6)   
Hmm. Weird.

Maybe it's just standard procedure in Australia then...?
Co-Moderator Crohn's Forum.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 3/18/2008 1:48 PM (GMT -6)   


I agree that procedures and standards of care do differ from one country to another.  I wish you the best with getting yours replaced.

Hugs to you sweetie.

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

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