What is with these freakin' chills!

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broomhilda
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   Posted 3/17/2008 5:31 PM (GMT -7)   
Has anyone ever been given an explanation for the bone rackin' chills.  My heat is on 74 degrees, I am clothed in flannel pajamas, a thick terry robe, long johns and 2 pairs of socks and it's still cold!  My tummy has been fine, I have no temp and my blood pressure is fine.  Skin is not clammy except for the crap the Derm doctor gave me for my psorasis.  I have a theory that the endocrine system is more involved in this hideous disease than the most prestigious doctors are even aware.  Anyone else have a theory relative to this or a mere course of reason?
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


sjkly
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Date Joined Dec 2007
Total Posts : 2113
   Posted 3/17/2008 6:30 PM (GMT -7)   
broomhilda, I can't explain it but the same thing happens to me. (sometimes-but not always-I do have a fever). Even if the thermometer says I don't have a fever I take one tylenol and twenty minutes later I feel fine and have to turn the heat back down. Don't know if the same would happen for you though even when we are the same we are differnt.

wanthealth
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Date Joined Feb 2008
Total Posts : 78
   Posted 3/17/2008 6:36 PM (GMT -7)   
Broomhilda,
I have occasionally felt cold for no obvious reason, especially my hands.
But the reason I'm writing is that a strange thing happened recently concerning the psoriasis that I have as a result of humira.  I've been on Humira since the middle of October and have had psoriasis almost as long. Also have been putting steroid creams on the lesions--was on the third cream. At  my last visit to the derm she sort of threw up her hands and said she didn't know what to try.  I stopped using the creams and in 2 days I noticed the lesions were healing.  It's now 5 days since I stopped and the crusts are falling off many of the lesions. They are healing with no treatment! I'm due for a Humira shot Thursday, and really don't know what to expect. I would like to think that this condition is on it's way out---but I don't believe in the tooth fairy. Strange disease...
MI
 
 

broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 3/17/2008 6:40 PM (GMT -7)   

Thanks Skjl-

Starting to feel the nightly crappiness coming on anyway...I'll take a percocet and see what happens.  Started taking my Lexapro at night ever since I came off the predinose.  Used to take the Lexapro during the daytime to offset the hyperness of the pred.  Maybe between the percocet and lexapro I'll just knock myself out.  I know this isn't a good option but some days I just get so disgusted with it all!

 


justjenjen
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Date Joined Nov 2003
Total Posts : 518
   Posted 3/17/2008 8:03 PM (GMT -7)   
I used to get crazy chills, too. Weird. Oh-Moodindigo--please post what happens to your psoriasis after your humira. My hubby has it and I'm curious...

nawlinscate
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Date Joined Jan 2007
Total Posts : 656
   Posted 3/17/2008 8:48 PM (GMT -7)   
Wow. Me too. I'm down in Louisiana, and we have our AC set at 78 degrees. But a couple of times each evening--and every morning--I have to turn on a huge electric space heater and let it blow directly on me for a while, just to warm myself up. I don't know what it is, but once I'm chilled, I can't get warm again without a major effort.

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 3/18/2008 5:19 AM (GMT -7)   
I definitely get the freaky chills every so often. I have a space heater in my bedroom. Sometimes I'll come home at work because I'm freezing, even on a day that's really not all that cold. So weird! So annoying!
Diagnosed in October, 2003 at age 31.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


lady1012
Regular Member


Date Joined Nov 2006
Total Posts : 304
   Posted 3/18/2008 5:55 AM (GMT -7)   
yup understand you there, i am always cold.....even in summer i usually wear a sweater or light jacket......i can't stay warm at all.......and all i hear is ah your just to skinny you have no meat on your bones......just gain some weight.......grrrr
I'm cute. Let's put me in charge.(happy bunny)
 
 
 anemia, b12 deficiancy, and malobsorption, moderate joint pain,severe weight loss, gastritis
 omega 3, digestive enzyme, calcium, vit d, flax oil, aloe vera juice, 9mg of entecort, 100mg Imuran
 diagnosed with a CT scan september of 2007.


homeschoolmom
Regular Member


Date Joined Feb 2008
Total Posts : 31
   Posted 3/18/2008 6:30 AM (GMT -7)   
Broomhilda, I also get those chills, awful when it happens.  I usually end up in a super hot tub and soak until I get warm.  On the flip side, does anyone get horrible sweats?  I agree, this disease affects every part of our bodies!

Diagnosed 1972 with UC (12 years old); many flares over the years
1994 had my son and became very ill; took 4 years to get the correct diagnosis.
 
PCP diagnosed with IBS and was down 70lbs. by the time I insisted on seeing a specialist.
 
1997 Diagnosed  with Fistulizing Crohn's
 
1998 had 1ft. of small intestine removed including terminal illieum, have had constant diarrhea since.
 
Currently taking imuran, prilosec, synthroid, zoloft, xanax & B12


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/18/2008 9:26 AM (GMT -7)   
For myself, I find as I get older I'm less tolerable to cold in general, much more sensitive to it, but when I was having 20-30 BM's daily I would get chilled, I chalked it up to sitting on the porceline throne for so long and so often and losing all that poop which I think of as insulation in a way, nothing in those pipes can leave me feeling very chilled.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 3/18/2008 3:28 PM (GMT -7)   
So, I discovered form the Mayo Clinic website on Imuran that fever/chills is a side-effect. It drives me absolutely crazy! The Imuran apparently suppresses your body temp as well, so even if you have a fever a thermometer can still show that you had a normal temp.
Pentasa-tapering 1000mg/2x 1/08; Entocort 3mg/3x daily down to 1x 2/08; Percocet/Ultram for pain; Prilosec 30mg; Xanax-ANXIETY; Cymbalta 60mg
Neurontin-tapering, 300mg 1x/day
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 3/18/2008 3:34 PM (GMT -7)   
I get chills when I'm having an attack of pain and diarrhea. Other then that I've also had them when I was anemic (I was always SO cold when I was anemic).


~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/18/2008 3:53 PM (GMT -7)   
Broom
I get the dang same thing and then I will feel like I am totally CHILLED to the bone wrap blankies around me and have a hoodie on and temp in house up and I am still chilled
I HAVE to have feet warm for sure and I am definitely asking doc what this could be
Am fed up with this as well
feel warmer ..........I hope .Will let you know what he has to say .......
I am not Imuran
THEN yes on the flip side I will end up sweating and feeling all hot especially at night .....occasionally when sick / flaring especially.
Jessh I have no IDEA what is going on but I intend to find out

I hear ya
LYN


  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 3/18/2008 4:03 PM (GMT -7)   
Don't feel like the Lone Ranger! I must be Tonto. Yep, I get those hor-eye-bull, deep down, bone aching chills too. And I got them BEFORE ever starting Imuran. Mostly I will get them after eating a full meal. I used to joke that my body was so busy digesting it didn't have time to provide heat too. Except it ain't funny. And that isn't the only time I get them. Just the most predictable.

I generally end up in bed, w/two pair of PJs (one fleece, one not) all the blankets and the comforter PLUS a down sleeping bag until it passes. I have found drinking a cup of HOT tea or chocolate, something really warm, does help. (Good excuse for hot lemonade w/a tad of vodka in it?) *wicked grin*

Jenny26, any chance you've got the URL to the Mayo article on Imuran? I'd sure like to read it!
 
It was only recently I learned from an ER doc that Imuran suppresses a fever - it never occurred to me that pretty much explains WHY I "normally" run 94.6 to 97.4, usually around 95+ to 96+.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 3/18/2008 8:37 PM (GMT -7)   
Thanks to all for the ear(s)...warmer tonight and got the munchies. Will probably wake up with neck sweat in the morning. So nasty...but that's the pattern of things here.

Moonindigo- I did notice that my psorasis lesions got much worse and many more in number when I started the Humira verses the Remicade. However, this switch over was done during the winter itch months in the first place. The Derm gave me the strongest topical steroid cream and had me apply it once a day. After 3 weeks I am clear! Of course the weather is getting warmer here, but I haven't graduated to shorts yet and begun to absorb some of those skin healing sunshine rays.
Also, the Derm did say my last option would be some form of "pill" that is also strong but it would raise my cholestrol. Great, I replied. Mine is already higher than it should be so I opted to try the cream first. Not to mention, I just couldn't stand the thought of yet another "pill" to take. Let us know how the skin issues are coming along. I might recommend daily usage of a natural bristle bath brush to remove the scallies instead of a wash cloth. It exfoliates much better and by removing the dead skin cells the topicals can get to the lesions more sucessfully.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


wanthealth
Regular Member


Date Joined Feb 2008
Total Posts : 78
   Posted 3/19/2008 7:12 AM (GMT -7)   
Many thanks, Broomhilda, for the information. Can you tell me the name of the cream that worked for you?--(just in case). None of the ones I tried were successful. The tips about exfoliating were also good. So far these strange lesions are healing by themselves! Go figure.
Thanks again.
Moodindigo

jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 3/19/2008 11:51 AM (GMT -7)   
Here is the Mayo Clinic site: http://www.mayoclinic.com/health/drug-information/DR601561 the side-effects are at the end.
Pentasa-tapering 1000mg/2x 1/08; Entocort 3mg/3x daily down to 1x 2/08; Percocet/Ultram for pain; Prilosec 30mg; Xanax-ANXIETY; Cymbalta 60mg
Neurontin-tapering, 300mg 1x/day
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 3/19/2008 2:41 PM (GMT -7)   
I'm finding that the spine chilling chills have got worse since being on Humira. Like you no temp....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/20/2008 6:46 AM (GMT -7)   
I am always cold and shivering right now. When I was in Thailand it was just under 90 degrees and I had been laying out in the pool. We went into the water to get a drink at the float up bar and I was shivering, teeth chattering. My husband thought I was nuts. I had just got too warm and the water felt freezing to me in comparison.

At night I am always cold. I get in bed with a sweatshirt and socks on and I have a heating blanket and flannel sheets. But I can't stay like that or else I wake up sweaty. My husband has terrible night sweats so he keeps the room temp really low. So I lay in bed like that until I am just about to fall asleep then I peel off the sweatshirt and socks. Seems to work.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 3/20/2008 9:31 PM (GMT -7)   
Yeah Fitzy I do about the same at night. I have to peel off the layers, sometimes to bare necessities cause my husband must have 3 layers of quilts on him due to his meds lowering his blood pressure. Between the Imuran, his body heat and all those dang quilts I am usually in a sweat by morning. As much as I love the man throw in his snoring and I opt for the recliner and the heated body pad. Some nights it's just not worth the effort!

Moonindigo, I'll try and check my cream name and post it this weekend for you, hubby is already asleep and I don't want to wake the nature of the beast!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


wanthealth
Regular Member


Date Joined Feb 2008
Total Posts : 78
   Posted 3/21/2008 11:18 AM (GMT -7)   
Thanks, Broomhilda. Since I took the shot Thursday, the lesions which looked like they were healing started to reverse. I'm looking for another derm to get a second opinion. I'd hate to have to stop Humira because of these darn sores.
Again, thanks.
MI
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