iron infusions

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way2tired
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Date Joined Nov 2007
Total Posts : 68
   Posted 3/18/2008 9:09 AM (GMT -7)   
 
   Hi....went to the doctor yesterday and he suggested that we start iron infusions, can anyone tell me what to expect, also any side effects? thanks

Ladybugs
Regular Member


Date Joined Jan 2006
Total Posts : 158
   Posted 3/18/2008 9:43 AM (GMT -7)   
I didn't have any side effects. You go to the infusion center, they put in an IV, hook up saline and the iron. The first time they'll probably push the iron in pretty slowly, just to make sure every thing is fine. I went once a week for 8 weeks. After the first time, it only took about 20 minutes or so to push the iron, but the whole visit, waiting for the iv, waiting for the iron, waiting for someone to remove the iv etc usually took about two hours. I just sat and read a book. It wasn't bad.

I didn't start to notice a difference in how I felt until about the 6th week. Then I felt like a new woman - didn't get dizzy and winded so often.

Good luck :)

way2tired
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 3/19/2008 9:07 AM (GMT -7)   
 Thanks for your input, I was really worried I read some stories on the internet and I needed to hear at least one good thing about it.

randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 3/19/2008 3:57 PM (GMT -7)   
i have had lots of them over the years, i did have a reaction to one years ago, but we switched types and have had no trouble since..
randynoguts 



     http://www.geocities.com/randynogutsweb/


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 3/19/2008 4:26 PM (GMT -7)   
I have only had one, my iron seems to be staying put right now, and it was really easy. She did a small amt first to watch for reaction and then pushed the rest through.

Bring a bunch of stuff to do. I was in a cancer chemo center and they had warm blankets, snacks, ice (a must when I'm low on iron!), TVs, etc. I brought magazines, my laptop, and food for lunch. I was there a full workday, really.

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 3/19/2008 5:02 PM (GMT -7)   
the only risk is a reaction to the iron which you can go into shock etc,i might need one but trying iron pills again.
dx 17 aug 2007
20 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed  100mg azamun


Sugarmarie
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Date Joined Jul 2003
Total Posts : 1205
   Posted 3/19/2008 8:14 PM (GMT -7)   
I did have a terrible anaphylactic shock almost died. I got INFED through IV within 5 seconds my throat was closing and I felt myself going black. Lucky me that a patient sitting across from me getting chemo saw me waving my arms pointing to my neck and she screamed for the nurse they gave me Benedryl and Prednisone IV it was so scary I was crying and shaking could not believe how fast it happen.
Good luck ,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


nawlinscate
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Date Joined Jan 2007
Total Posts : 656
   Posted 3/19/2008 9:13 PM (GMT -7)   
To greatly decrease the risk of anaphylactic shock, my doctor gave me Ferlecit (spelling?) in 16 weekly doses. I never had any adverse reaction, but it didn't help my anemia, either. So she gave me another 16 doses. In both cases, infusion took 60-90 minutes. There was no pain (except on the occasions when they had trouble locating a vein). Considering that I am always crazy busy, it really was kind of relaxing: an hour or two of enforced leisure, sitting with a good book or talking with the inspirational oncology patients around me. I missed it a little when I was able to stop going. I'm still not sure whether it had a major effect--my hematocrit is still low, just not as low as it was--but it was a valuable experience that gave me a lot more perspective on my condition versus other people's. I'll take Crohn's over chemo any day.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 3/19/2008 9:36 PM (GMT -7)   
nawlinscate said...
To greatly decrease the risk of anaphylactic shock, my doctor gave me Ferlecit (spelling?) in 16 weekly doses. I never had any adverse reaction, but it didn't help my anemia, either. So she gave me another 16 doses. In both cases, infusion took 60-90 minutes. There was no pain (except on the occasions when they had trouble locating a vein). Considering that I am always crazy busy, it really was kind of relaxing: an hour or two of enforced leisure, sitting with a good book or talking with the inspirational oncology patients around me. I missed it a little when I was able to stop going. I'm still not sure whether it had a major effect--my hematocrit is still low, just not as low as it was--but it was a valuable experience that gave me a lot more perspective on my condition versus other people's. I'll take Crohn's over chemo any day.
Interesting that yours just took 1-2 hours. I was there forever! I think it actually dripped several hours, maybe they were going really slow since it was my first?
 
Spending a day in a chemo area put things into perspective for me, too. There was a young couple there for her first day of chemo. They watched an intro video, then everything was explained to her as each medication was administered. I sat across from her all day and watched (and listened). She was about my age. They said they were newlyweds and she was a 1st grade teacher. She brought lesson plans to work on.
 
I got in my car and burst into tears at how good I actually had it. I don't think crying about my condition is a bad thing (actually think it's healthy on occasion) but it was the dose of reality that I needed that day.

nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 3/20/2008 12:12 PM (GMT -7)   
The first couple of infusion that I had took way longer--like yours, Aimee. My doctor was making sure that I wasn't going to have any adverse reactions. Once it became clear that I was having no problem with the drug, she had the nurses increase the drip, which dramatically decreased the infusion time.

I was inspired by the good humor and the resilience of the chemo patients around me--and by the sensitivity and positive attitude of the nurses, both male and female, who worked with them. I was glad when my 32 iron infusions were over, but my time with these people was an experience that I'll never forget.

I wish I could cry, too. I haven't cried since Hurricane Katrina, although I've been living with levels of stress that probably should have killed me by now. As the property manager of the condo complex in which I live, I've been responsible for rebuilding the homes of 93 families, including my own. I'm tough as nails now, but it would be a relief to be able to cry--about my condition or anything else at this point.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 3/20/2008 8:01 PM (GMT -7)   
nawlinscate said...
The first couple of infusion that I had took way longer--like yours, Aimee. My doctor was making sure that I wasn't going to have any adverse reactions. Once it became clear that I was having no problem with the drug, she had the nurses increase the drip, which dramatically decreased the infusion time.

I was inspired by the good humor and the resilience of the chemo patients around me--and by the sensitivity and positive attitude of the nurses, both male and female, who worked with them. I was glad when my 32 iron infusions were over, but my time with these people was an experience that I'll never forget.

I wish I could cry, too. I haven't cried since Hurricane Katrina, although I've been living with levels of stress that probably should have killed me by now. As the property manager of the condo complex in which I live, I've been responsible for rebuilding the homes of 93 families, including my own. I'm tough as nails now, but it would be a relief to be able to cry--about my condition or anything else at this point.
Wow, I can't imagine your stress levels. It's interesting how our bodies can kick in and handle high levels of stress so well - I just know they can't do it forever. Don't forget about yourself. Stress is my #1 trigger for flares and I constantly have to watch how I handle things.

PDianeO
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/26/2009 11:34 AM (GMT -7)   
Iron deficiency anemia is what I have. I've taken PO supplements off and on for the past 3-4 years and once I finished i become anemic again and just feel like I don't have the energy to exercise and play tennis, or can't even cut the grass! I'm back at the hematologist. He suggests IV Iron and I am thrilled, take it all at once and feel better quicker. Well after explaining side effects and signing the paperwork she easily inserts the IV, give me fluids and a little Benadryl just in case. Then she gives a "test" dose to make sure I tolerate it and here's what happened just a few hours ago... The very small test dose begins, after maybe 1-1/2 minutes my heart gets squeezed, I literally can not catch my breath and I can barely talk or move. Getting very scared and want to tell her to stop but can't form the words. She sees the paniced look and my shallow ineffective breaths prob about 40/minute and chest squeezing and heart beating likes it's pounding out of my chest and now man I am terrified. I'm even having cramping in my legs!! They were very calm and reassuring, stopped the iron, gave me benadryl and solumedrol and more IV fluids. After 5 min or so (seemed longer) I began breathing better, heart rate slowing and more in control of myself. I do know I told her in the heat of it all "I just really don't want to do this", and she calmly said don't worry sweety it's all turned off. When that was over she gave a little ativan to relax me, helped to rest, and after 30 more minutes I was able to leave. I think I will stick to the by mouth Iron tablets, too much of a scare!

metoo50
Regular Member


Date Joined Aug 2007
Total Posts : 55
   Posted 8/26/2009 12:47 PM (GMT -7)   
Everyone is different, a medication effect people in different ways. I want to share my experience with IV iron infusions.  I was given Venofer, the 1st. time it took about an hour. the iron was given very slowly. Soon I got home I had to run to the bathroom, and had several loose BM. The day after, I was in terrible pain, all my digestive system was hurting, the bood pressure was very low, and the nausea was overwhelming. I did not realize until the 3rd. infusion that was not the Crohn's acting up, but the iron infusion.  I looked up the Venofer for the side effects and listed on line were the same symptoms that I had. When I called the hematologist and explained the situation He said that it was the crohn, and no the Venofer. During this time I lost some weight, and the blood count went down.  No more IV infusion for me.
Good Luck, I hope that it will work for you.
nono  

Post Edited (metoo50) : 8/27/2009 2:44:20 PM (GMT-6)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 8/26/2009 2:58 PM (GMT -7)   
I've also had low blood pressure from Venofer and I passed out. I also had a major bleed a few days after an infusion, but I think that was the CD.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 8/26/2009 4:08 PM (GMT -7)   

I had my first iron infusion about a month ago after being anaemic for 4 years. I am feeling the benefit now, I don’t feel like I need to crawl up in the loo at work at lunch time and go to sleep like I used to!

 

My drip took a full 6 hours, they administered it very slow. It all went well. When they put the saline in at the end to flush the line though, I became really cold, and started running a small fever when I got home, I was shivering even in a hot shower, and felt headachy etc….. But I had a good night’s sleep and was right as rain to go back to work the next day. I can’t recommend the iron infusions highly enough really. My GI is checking my levels to see if I need a top-up in the future.

 

I begged for iron infusions for so long from my last GI who told me they ‘only do them at hospitals’ – if you’re being offered them I would say jump at the chance! If you have a bad reaction you will be surrounded by professionals who know just what to do.

 


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 8/27/2009 12:40 AM (GMT -7)   
Iron Infusions are great..the only side effect that i had..was just a few extra bowel movements....buts thats just how my body reacts to iron...other than that...no side effects and i felt great...bring a headset or a book or a magazine...you can take a nap while it goes in the body..its not painful..just make sure the iv feels comfortable...it did give me energy and i wasn't out of breath all the time..i had this while pregnant with my second child..good luck

 crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa cipro flagyl vicodin


dogmom
New Member


Date Joined Feb 2010
Total Posts : 5
   Posted 2/24/2010 3:51 PM (GMT -7)   
Hi! Just joined, and hate to resurrect an old discussion, but I'm going to be starting IV iron infusions next week and I am kind of concerned about what to expect.

As a rule, I rarely have adverse side effects to medications (outside of a few making me tired). When I do, they rarely last long, so I'm hoping the same will be true with these injections because I'm sick and tired of being sick and tired.

I have spent quite a few hours online trying to find any information about IV iron treatments, but it hasn't been easy. I don't have Crohn's Disease, just chronic anemia. I had a bone marrow biopsy a week ago and I have no iron stores in my marrow. The doctor thinks my arthritis is interfering with my ability to absorb iron and I'm a bit confused on how that happens.

Any suggestions on how I could reword my searches to better find information? Thanks in advance!

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/24/2010 4:11 PM (GMT -7)   
Are you getting Venofer? Most people here have good luck with that one. Good luck!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


dogmom
New Member


Date Joined Feb 2010
Total Posts : 5
   Posted 2/24/2010 5:55 PM (GMT -7)   
I honestly don't know. I know so little about how this is done that I didn't realize there were so many options. I was told it would take about an hour and a half.

I was expecting a different diagnosis so I had no questions ready. Although this is a much better diagnosis than the one I was preparing myself for.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/24/2010 6:15 PM (GMT -7)   
Ya I think I know what you mean. Serious side effects to iron infusions are very rare (less serious ones are more common) so try not to worry about it.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 2/24/2010 8:45 PM (GMT -7)   
Sugar, I almost redlined also. My Heart rater hit 190 and everything went.. I started closing my eyes and they kept saying, "Stay with me" Stay with me.

I was sent to the E.R and went home at 1:00Am.

Worst/Scariest day of my life.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/24/2010 9:16 PM (GMT -7)   
Wow, that's pretty scary debilitated! All that happened to me was low blood pressure so I don't get them anymore. Most are fine with them though...
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 2/24/2010 9:30 PM (GMT -7)   
Yes sir, I started praying in my head as best as i could.. I kept asking the 4 nurses... Am i going to die.. am i going to die.. And i took a pillow and hugged it hard and just tried to breathe..

The rask on my face was SCARFACE look-alike. It was bad.

They all ran in, Crash cart, Cortizone injection, benadryl, Ativan everything.

I later got an EKG and was watched Closely.
Infed is scary. I was Told it was too strong for me.

My hemotologist was happy i was ok, but so impressed my hemocrit FLEW up and my iron got better.. I was like....... ooook.

They went to try again with a BETTER TOLERATING iron...
Same thing.... 155 HR and No rash.. They blamed it on Anxiety.. Anxiety? HA!!

Never again will i I.V Iron.

dogmom
New Member


Date Joined Feb 2010
Total Posts : 5
   Posted 2/25/2010 8:25 AM (GMT -7)   
Well I rarely have side effects to medications let alone bad reactions. I have some allergies but for the most part they are minor (like I'm allergic to the dog and cat fur that flies around my house in abundance every day).

Even if I have minor reactions, with my arthritis I'm on pretty strong pain medication so I'm not even sure I'd know whether it was a reaction or the same old, same old.

I'd just feel better if I could find something online to read. I can't find much of anything and I'd just feel better if I could find something trustworthy to read about both my diagnosis and the treatment. Everything I'm finding is about blood transfusions.

Anyone Google savvy enough to suggest some wording that might help me find anything?

Thanks everyone! I do appreciate the help you've all given and I wish everyone here the best in their fight for better health.

I always hoped my social calender would someday be full, I had no idea that after 50 it would be full of doctor's appointments.

Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 2/25/2010 9:02 AM (GMT -7)   
I had the Infed iron in Oct for my chronic anemia. I was in the chemo clinic for about 8 hours. I had severe bone pain for about 10 days afterward. I had to pay cash for it and it was not cheap. I just wanted to feel better and it did not do a thing. My HCT has actually dropped some more now. I can't take iron pills due to the constipation and strictures from my crohn's. So I don't know what to do now. I know everybody is different. I hope it works for you.
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    

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