O/T Kinda....Pyoderma Gangrenosum Outbreaks ......

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Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 3/19/2008 7:24 AM (GMT -7)   
 I just wanted to shout out that since I have moved from Bothwell to this new city I have had NO major breakouts of the PG...Many of the "Vets" will remember the amount and size of sores from pics .......
I am having CD flares of course had pnuemonia and other things BUT to me this is totally amazing
I am really not sure if the stress of the small town and my family stress was causing all this before but it must be
We also literally lived on oil wells ( deep into ground ) but still it was an oil town from what I have researched environment is nothing to do with this .
Anxiety
Trauma to the body
EXTREME stress does all fit into the PG  and outbreaks ..as well as the CD
Just wanted to let you all know ......Oh how good it feels not to have a huge hole in my leg or on my fingers all the time
IV's up the keister ( not literally lol)
I have had a few small outbreaks but nothing like before.........
I have been affected by Vancomycin due to length of time on it thru IV 4 mths at a time sometimes ......I have no hearing in left ear  and losing it in right one .......( previous Doc)
THIS is clearly stated on the meds for docs to see but not the patients.I am legally pursuing this dont know where it will go but I will try anyways ..........
Anyways thanks for letting me share my good news........I am so excited about it and doc is certainly relieved as well ........This Doc is the BEST IMHO
Take care all and
God Bless
  LYN
 


  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/19/2008 10:11 AM (GMT -7)   

Dear Lyn,

It is so good to know you don't look like swiss cheese anymore.  I know the terrible pain you went through and the IV's, I saw the pictures and I often wondered how any one person could handle so much as you did.

Yet you never gave up and now the move has been a good thing for you.  It makes me so happy for you.  You already have so many obstacles to battle daily and having a decrease in the break outs is grand news.

Celebrate and see if you can find my easter eggs that I hid...........can't remember where I hid them.

Hugs dear Lady
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 3/19/2008 12:11 PM (GMT -7)   
Yeah that is good news. No more "swiss cheese" problems. Will continue to pray that it stays that way.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 3/19/2008 3:36 PM (GMT -7)   
Thanks my lil sis and sweet Nanners I so appreciate your support and words of encouragement.......I am so glad I dont look like swiss cheese and it was sad that I no longer felt any IV's being put in they never fazed me at all ......not good IMHO way to many I guess........
Veins are coming back to normal I believe or getting healed....Thank God
Thanks to all that supported me thru these times .......Sadly alot of our old vets dont post much or are gone ........

God Bless you both for replying

Luvs
Big sis
LYN


  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 3/19/2008 4:29 PM (GMT -7)   
You are an inspiration! I am so happy for you. We must celebrate these sweet times of relief! This reminds of one of my favorite hymns.


GREAT IS THY FAITHFULNESS
Verse 1
Great is Thy faithfulness, O God my father!
There is no shadow of turning with Thee;
Thou changest not, Thy compassions, they fail not:
As thou hast been Thou forever wilt be.
Chorus:
Great is Thy faithfulness, Great is Thy faithfulness,
Morning by morning new mercies I see:
All I have needed Thy hand hath provided
Great is Thy faithfulness, Lord unto me!
Verse 2
Summer and winter, and springtime and harvest,
Sun, moon and stars in their courses above,
Join with all nature in manifold witness
To Thy great faithfulness, mercy and love.
Verse 3
Pardon for sin and a peace that endureth.
Thine own dear presence to cheer and to guide,
Strength for today and bright hope for tomorrow
Blessings all mine, with ten thousand beside!

FamilyGuy
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Date Joined Jan 2004
Total Posts : 3310
   Posted 3/19/2008 5:17 PM (GMT -7)   
Great news Lyn! I hope things continue to settle down for you. Give Dad a hug from me.
Jon,  Co-moderator for Crohn's Disease and Depression forums
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret." -- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet 
 
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curley
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Date Joined Mar 2005
Total Posts : 4305
   Posted 3/20/2008 1:06 AM (GMT -7)   
Lyn,that is so good to hear and I am so happy for you,I can use good news right now.
Curley
.........
 


lamb61
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Date Joined Jan 2005
Total Posts : 1719
   Posted 3/20/2008 3:31 AM (GMT -7)   
Lyn, I know you've been through the wringer with PG --- so this is great news! May you continue to be PG free.......
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/20/2008 4:14 AM (GMT -7)   
Thanks all
Curley whats going on .........Email me if you want k

I have also been Hades bent on NOT breaking out and i believe my mindset and stubborness lol has a lil to do with it
Will keep you's posted............

Fall Colours....Beautiful
God BLess
Jon .......will do ..he is not great at all .....thanks my friend......
lamb...thanks so much I so appreciate your support......

Take care all ..........LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


bluemeanies
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Date Joined Jun 2004
Total Posts : 1372
   Posted 3/20/2008 9:15 AM (GMT -7)   

Glad to hear you are doing better.  May it last a long time.  I am still job hunting but have a second interview today with a company.  I was able to get my unemployment started again.  Apparently the state of North Carolina says being fired for having a very bad reaction to Imuran and missing work was not my fault.  I am so glad they agreed with me.  Hopefully, I will get this job today and will have health insurance again soon.  I'm on 30 mg of pred a day and I hate it.  It's been 4 months on it and I can't get off until after I get some insurance.  Enough about me, I really am glad to hear you are doing well. 


 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/20/2008 4:02 PM (GMT -7)   
Blue
I SO hope things start to work out for you
Will keep you in my thoughts and heart/ prayers
Thanks hun for your support
Luvs
LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 3/20/2008 4:12 PM (GMT -7)   
((((((((((((((((LYN))))))))))))))))))))))
Crohn's Co-moderator

We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....


vietvet
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Date Joined Jan 2005
Total Posts : 1510
   Posted 4/15/2008 8:58 PM (GMT -7)   
lynn, i was so happy to see this. i hope it stays good for you. you've certainly paid your dues with that scourge. if you recall one of your friends redface here suggested to you that environment and allergy might have some bearing on your situation. riding weather has finally returned to iowa. have you guys had a chance to fire up the harley yet?

vv

NAVY - i've also been reading of your travails lately. you young folks shouldn't have to deal with such things. i hope things turn around for you soon. anchors aweigh and full speed ahead!

vv

Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 4/16/2008 1:52 AM (GMT -7)   
Soooooooooooooooooooooo Glad you are doing better. Yes, STRESS, I think its worse than all other illness when it comes to what it does to the human body. So, as I say, ever chance I get,,,,Lets Ride...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


vietvet
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Date Joined Jan 2005
Total Posts : 1510
   Posted 4/16/2008 7:18 PM (GMT -7)   

Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 4/17/2008 5:20 AM (GMT -7)   
HI my friends
Yes I am intending on firing the old bike up this weekend
CANT wait
Stress is a killer for sure
Yes I do remember being told ( old friend) about environment and the PG but at that time I wondered .....I WONDER no more
I have had a new tattoo no outbreaks have started CHAMPIX for smoking ( to quit after 40 plus yrs ) and doing great so far only thing it is doing is helping me not smoke so much ( able to smoke while on it sends receptors to brain saying I have nicotine in body kinda thing) and no out breaks but am starting to go into a flare dont know if that is the pill for not smoking or the time of the yr........
NO matte I am stopping regardless
and I am riding regardles
Thanks for all your support ..........greatly appreciated

LYN


  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 4/17/2008 8:38 AM (GMT -7)   
Glad to hear you are not suffering as you were. Hope all continues to go good.
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/17/2008 8:58 AM (GMT -7)   
Hmmm, I don't know if I'll ever enjoy swiss cheese again.

I am thrilled for you Lyn that you are finally getting better with the PG...I couldn't even imagine the pain you must have been in from that alone...I had severe eczema as a kid, looked like flesh eating disease it was that extream so I'm a little familiar with how painful and annoying serious skin issues can be, but not to the extent of what you must have been going through...

Keeping fingers crossed for you to have a full recovery and no more future outbreaks.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 4/17/2008 9:52 AM (GMT -7)   
Lyn,I had all ready put on a post on her but I must say this I do believe that severe stress can agravate it because I have one on my back at the present and it all started back up after my sister had a head on wreak and the amount of severe stress that I have been up- under has in my opinion a flare with the pyderma.the one on my back is about the size of a fifty cent peice and it is awful looking as well and lord behold it runs right were my bra runs so that aggervates it.I do belive that the enviroment we live in also has something to do with it even it no one thinks it does.I hope that since you have moved you will stay in remission for now on.

Curley
.........
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/17/2008 2:19 PM (GMT -7)   
Curley
I am hoping that yours soon stettles down I have NO doubt that stress is a big factor the biggest I think as well as any trauma to body I had scopes I would break out
The environment too I have come to believe has alot to do with it
I am so sorry about your sis ...That would certainly cause an outbreak for sure
I ahve never had one on my back .....
My thoughts are with you

Again thanks all for your continued support and caring

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 

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