fatigue...hard time remembering stuff anyone...

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way2tired
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 3/19/2008 5:52 PM (GMT -7)   
hey, just wondering if anyone else has a hard time concentrating or remembering stuff. I always second guess myself and find that I forget things....I know crohns makes you tired, but the only meds I'm on are pentasa, entocort and my iron....I think my brain is sleeping eyes

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/19/2008 6:39 PM (GMT -7)   
Don't worry! I am definitely WAY more flighty than I ever was before! You're not alone!! I blame it on the remicade, but who knows!
turboemma.blogspot.com/


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/19/2008 8:00 PM (GMT -7)   
I'm like that too, I guess this DD even effects our memory, too bad we don't forget we have to go to the can all the time eh!!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


sasha1
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 3/19/2008 8:08 PM (GMT -7)   
i cant remember much any more very aggravating but i call mine remicade brain when i told my doctors this is what i call it they said they had never heard it called that before and laughed said it probably was caused by my remicade but i think being put to sleep alot and all the different drugs they give us plays a role in it too i find myself writin things down then forgettin where i put the tablet people can talk to me its like i hear them but my brain doesnt comprehend what is being said wish i could find somethin to help this cause i take care of my 78yr old dad so i need my brain to work right but what can we do.

sasha1

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/19/2008 8:25 PM (GMT -7)   
I'm not even on meds, just naturals and only 40 and have memory issues though.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 3/19/2008 8:46 PM (GMT -7)   
lol  My sweetie just put up a fence and it is behind my parking spot. He said "Now remember blondie....I dont want to have to put it up again". lol   I thought it was cute since he is a very serious man and doesnt usually joke around  lol      sorry...what was I talking about? lol

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 3/20/2008 12:58 AM (GMT -7)   
My memory is terrible....and concentration even worse. I used to be able to sit and read for hours....now I read 2 or 3 pages and I'm dozing off...not because the book isn't interesting....and then I often have to re-read what I read to remind myself of where I left off. Alzheimers? It scares me to death.
On the other hand I can never repeat gossip, because I can never remember who the heck we were talking about or who did what to whom? a blessing in disguise.
A funny story about parking the car. My mom took the car to the bank the other day....went in to do her banking....dad happened to pass by on his daily walk....didn't like the way she had parked....so took the car home!!!!!!! mom came out of the bank .....no car! Boy they are still fighting about that one.... its typical mom and dad stuff though...cracks me up! LOL.
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 3/20/2008 3:34 AM (GMT -7)   
Have your B12 levels been checked lately? I only ask, because before mine were checked and I started receiving monthly injections I was having memory issues. It's been a year on monthly b12 and I have noticed a marked change in my memory. Just a thought.
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/20/2008 4:22 AM (GMT -7)   

Dear Friends,

You have just lifted my spirits as my hubby has gotten awful about remembering things and he is not on meds.  He is just 60 and he can find his way home but his short term memory is awful.  I was beginning to be very concerned  and  the PCP just blew it off when I mentioned it but you have given me some insight here. 

I never put it together with the Crohn's.  Thanks you for this thread.
KItt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/20/2008 6:45 AM (GMT -7)   
I have alot of memory problems myself. I really think it has to do with all the medications I am on (in my case). But with Crohns its quite possible that is the cause too. I wouldn't be surprised. There are so many other side effects of Crohns, whats one more. HA!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


way2tired
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 3/20/2008 7:55 AM (GMT -7)   
I just want to thank everyone so much for answering my question, I honestly feel like I am losing my mind... Sasha1, I know what you are going through I take care of my mom who has had strokes and is bedridden, and as of tomorrow my 84 year old dad will be comming home from the hospital he just had a stroke so I have to develope a system how to remember everyones meds.
Thanks again,and hopefully I won't forget I asked this question....lol

mom2carrington
Regular Member


Date Joined Sep 2005
Total Posts : 69
   Posted 3/20/2008 8:04 AM (GMT -7)   
I too have memory problems. I get my days confused. I am not on meds either so I can't blame it on that. I think mine all started right after our son was born 7.5 years ago. It seems to have gotten worse. Come to think of it, our son was 8 month old when I had my appendectomy and all my problems with cd began! Link? Who knows.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/20/2008 11:18 AM (GMT -7)   
You know, I honestly think it's the stress, the major mental stress which often doesn't get recognized by docs, that might be the huge impact regarding our memory issues...researchers should do a large study on IBDers and memory function, I'd bet that the majority would have issues with this more so than the minority who suffer with IBD. Only thing is, even with research confirming there's a link to IBD and memory disfunction I doubt there'd be anything they could really do to help us with it.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 3/20/2008 7:13 PM (GMT -7)   
hahaha i always forget stuff too ! i usually write things dwn,its really frustrating sometimes though,think my memory is shot due to my low iron,dsnt help that i haf a million things to do aswell
dx 17 aug 2007
20 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed  100mg azamun


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 3/20/2008 7:37 PM (GMT -7)   
Btw, anxiety and stress can easily cause memory loss, inability to concentrate. 
 
True, low iron does cause low level memory and learning issues.

bmike
Regular Member


Date Joined Aug 2004
Total Posts : 63
   Posted 3/21/2008 9:23 AM (GMT -7)   
I started to feel the effects of aging about 4 years ago in my early forties. I've found that taking Acytle L Carnitine along with Alpha Lipoic Acid with meals has worked wonders for my memory. Its like brain food to me. Good luck. 
Its astounding, time is fleeting.


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 3/22/2008 8:38 PM (GMT -7)   
AHHHH..I am so frustrated due to the memory issues. My boyfriend bought me a digital camera for Christmas a year ago.  We have been doing remodeling on the house, and have been taking before/after pictures to watch our progress..not to mention a year's worth of pictures of us, the dogs, family, etc.  I have managed to LOSE my camera. I am so devastated because I can't "make up" those pictures again, and he saved up to buy it for me. How do you LOSE a stinking camera??????  I am so frustrated because I feel if I give up and buy another one, it will creep back from the hole it was in.  It's having to admit I am a dimwit,,,and I am hoping it will reappear 8(

Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.


wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 3/23/2008 6:29 AM (GMT -7)   
I am sleepy all the time, and my b counts are up & fine, according to the bloodwork I get done every couple months...was just there a week or two ago. As a matter of fact, I slept 24hours from yesterday to this morning, when my body said it's time to get up now! If you know what I mean? Memory?!? If I hadn't just typed this so I could reread it, I'd have already forgotten it! Thought it was just meds & "me"...phew!!!!! I'm NOT alone! Thank goodness!!!
 currently rediagnosed with probable crohn's disease with IBS with d...need blood test? Had the Prometheus serology 7 blood test done, now get results 18th of this month (Mar./08) Ha!  Now need another colonoscopy....          
2 4 asacol 3x daily for UC/UP.  
Canasa suppositories, also 3x  daily,
3tsp. Donnatol elixir every 6 hours, as needed
1 20mg tab aciphex daily
1-2 depakote 3x daily for bipolar disorder
1 tramidol hcl 50mg. every 6 hours as needed for pain
2 caps of probiotics 3x daily (acidophilus)
4 caps Pentasa 2x day (500mg. ea.)


Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 3/26/2008 11:06 AM (GMT -7)   
This is a cruel disease, indeed. I too am extremely fatigued, all the time - and what frustrates me is that most people (dear hubby included) can't seem to understand what that means. You know, to be totally drained of energy.

Also, about the time I was having my worst flare ever...I also turned 30. And it seems like overnight my brain left the building...I kept blaming it on my turning 30 and have had enough people chuckle about that - so I am now thinking it must have to do with the CD. I forget everything! And I used to have a pretty darned good memory - but it's gone. In the evening, I can't remember what I did in the morning without thinking about for a while. Post it notes and lists could work, but I stick them in my purse and forget about them :)

<<sigh>>
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...nap anyone?
 
Suffered with symptoms for 12 years, dx Colitis-Crohn's 11/2007 after a bad flare up.  Asacol, Aciphex, Rowasa, Bentyl as of right now.  I'm still flaring and trying to avoid steriods, argh. 
 
 
 
 
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/26/2008 11:22 AM (GMT -7)   
I forgot about this post! LOL!!!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


way2tired
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 3/26/2008 12:26 PM (GMT -7)   
Okay I am Definitely not alone! lol....There has to be a way to research this further.

Beachy Mom
New Member


Date Joined Mar 2008
Total Posts : 18
   Posted 3/26/2008 4:26 PM (GMT -7)   
So glad to hear that I'm not alone!!! My doctor always looks at me like I'm crazy. Fatigue and memory loss has been a major symptom for me after being diagnosed with Crohn's. I now at least don't think I'm crazy.
Now what was I doing.......
Just "Beachy"


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 3/26/2008 5:55 PM (GMT -7)   
At work I have 3 people who as part of their job remind me of meetings and appointments and deadlines for certain jobs I am supposed to do. Thankfully they all think its amusing that I need the reminders.
I have told everyone at work that I don't trust myself with original documents so please only give me copies.

jar567
New Member


Date Joined Mar 2008
Total Posts : 14
   Posted 3/26/2008 8:01 PM (GMT -7)   
It is nice to know you aren't alone in how you feel with this disease. I am newly diagnosed and looking back at all my symptoms it seems like I had it long before they diagnosed me. But I agree with the memory thing, I feel like I am losing my mind sometimes with some serious mood swings. I just started the meds though, 3x Entocort and 2x Lialda, so maybe my body is getting used to it. It also seems like I have no control over my words, they fly out of my mouth before I can stop them.... anyone else with this problem?? Well it is comforting to read everyone's posts. Thank you!

map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 3/27/2008 9:03 AM (GMT -7)   

Ok, so yesterday I somehow managed to spill a bunch of coffee directly onto myself or onto my desk and either did not notice it or managed to completely forget about it.  I was typing and I was suddenly like gee what's this with my sleeve being wet...did I somehow sweat so much it traveled to my elbow?  Hmm it's cold <sniff> hey that's....coffee?  When did I soak my entire top half of my sleeve in coffee?  I'm pretty sure I spilled it on myself and just forgot about it since sometimes I get up to go to the bathroom down the hall, and if it's not an urgent trip due to D I often forget why I went into the hall!  LOL tongue

As far as having trouble with saying stuff and being like what did I just say or oh no how come I said that, happens all the time when I'm adjusting to being on prednisone.  Gets worse if I start to get dehydrated from prednisone sweats or too many bathroom trips, I always know I should drink more when I can barely manage to say anything the way I want to ;) 

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