Crohn's Stories...

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misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 3/20/2008 4:42 PM (GMT -7)   
I thought it might be kinda fun to share stories of our "Crohn's Moments" with each other.

I'll start us off with my weekend:

On a trip to a wedding out of town, I stayed with my boyfriend's parents, his sister, her baby, their grandmother and two other guests (one bathroom total). I panicked slightly, realizing that at exactly 6am I would have to get up and have D, as I normally do everyday. Sure enough, I get up at 6am, raring to, uh, poop-de-loop...and Grandma is hogging the bathroom!! I am doing a little potty dance outside the door, wiggling back and forth, waiting.... 15 minutes!! OMG!! haha



Also, just today, I was heading home in excruciating traffic, on a bridge, with no where really to exit off when it hit me. I mean, when it hits, it HITS!! D!!!! I gotta go!!!!! I came "thisclose" to pooping in my pants. How embarrassing! I have never been so excited to see a gas station before in my life!!!!!!! haha I seriously contemplated pulling over and just going on the side of the road. I carry Charmin travel pack in my purse for just such occasions; I'm sure that would have been an interesting way to get out of a ticket in court, "yes sir, I have Crohn's disease and my poop was uncontrollable...". haha

Has anyone else ever had a "close call?"
26 y/o, diagnosed at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, tired all the time (except when on Prednisone), occasional abdominal pain
Weigh loss, but scared that once I start the Entocort where will be lots of weight gain :(


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/20/2008 5:04 PM (GMT -7)   
I actually have a disposable container with a small roll of TP in my car at all times. I had to have my family pull over once, everyone had to get out of the car while I stayed inside, used the container as a port a potty. Then, I threw the container in the trash. I've always hoped that there were no trash pickers at the rest stop!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/20/2008 5:17 PM (GMT -7)   

Oh gosh!  I have more than enough close call stories (and some Oops stories as well)...  But I will share one that Zanne's story reminded me of.

If wasn't long ago, maybe a month.  I was in a fit of bathroom runs but I *had* to leave the house to get to my GI appointment.  I desperately needed antibiotics for his fever silliness.  So, I packed up my WagBag (bag with sewer treatment stuff in it) and my daughter and headed to the GI appointment 30 minute away.  Well, of course I had to pull into a quiet residential and use my wagbag on the way there.  Afraid I would need it again I cinched it up (it's designed for backpackers and more than one use) and headed back on the road.  I ended up making a couple stops at different places (doctor, hospital lab) and each time I would put the bag under my car so that the car wouldn't smell up.  The final visit I was so exhausted (fever was peaking), my daughter was more than ready to get home and was herself starving...  it was cold out so we rush to the car in the hospital parking garage, hopped in and zipped off in search of food for my girl.  HaHa...  I completely forgot the bag of poop until I was half way home!  That is one my daughter and I got a good laugh out of.  Oops!!!!  I did feel bad, but I was so sick and distracted.  I doubt I will forget it again!


--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05
--1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone
--tried Prochymal in Phase III study (can't wait til it's approved!)
--waiting to start Tysabri
--single mom to 10-year-old girl


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/20/2008 5:25 PM (GMT -7)   
My inlaws were in town and staying at my apartment. There were four of us with one bathroom. I know lots of people live like this daily but w/ my crohns and my husbands IBS it was asking a lot. Plus I'm not comfortable going in to poop with someone else in the shower. So we get up and I usually don't have to poop until I eat. So we eat... and nothing. My hubby showers. Nothing. Then my father in law gets into the shower and wham, it hits. We weren't even married yet and they live far away so I don't see them very often. I couldn't bring myself to admit that I couldn't hold my bowels and needed him to get out of the shower. I lived 1 block from the city library. So mid conversation I jumped up and said "oh no, my book is due back today. Be right back." Ran to my bedroom, grabbed a random book and ran out of the apartment. I drove to the library, pooped and came right back. Of course like an hour later my mother in law says, so what book did you just finish? I looked at her like she had 10 heads totally forgetting my pooping excuse. So I had to make up a book and a story. Later that night I told my husband the truth and he thought it was hysterical but was kind of upset that I couldn't just be honest with his parents. If I said I was going to the library to poop they would have pulled his poor dad out of the shower. I knew I could be there in under 5 minutes if I didn't have to explain. So thats what I did.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 3/20/2008 7:26 PM (GMT -7)   
well me and my mum were driving back from the doctors (went there for sumthing to relieve the pain) and we were going through a a bit of road which you really cant stop on on and i suddenly desperatly need the toilet,so mum started speeding to get this park which we knew was just up a head.I didnt even bother to look for a toilet i went in the bush.Once i was done i relised i was really close to the picnic table and the next day was a saturday i just hoped like hell that some innocent lil kid wasnt gonnna find the nasty surprise i left behind.I even find it hard going to the toilet wen im out esp wen your a lady and the dam toilets are absolutly packed.And you always carry air freshner with you! stupid crohns.
dx 17 aug 2007
20 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed  100mg azamun


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/20/2008 8:14 PM (GMT -7)   
Close calls?? I wish.... I've flat out pooped my pants on a few occassions, even at home on my way running to the can.

Depressing!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/20/2008 8:40 PM (GMT -7)   
yeah, pb4, I'm with you on that one! Those are my Oops stories. Those are the most frustrating humiliating days. Of course, I always remind myself, I can hide it any nobody needs to know... So far, except my daughter, I've kept that up. The worst was when I lost it right as I was walking into a meeting (I had to walk through the conference room to get to the bathroom). Other than the fact I was in there a while, I think I got away without anyone realizing. Of course, most "normal" people don't think about others pooping in their pants! It's just not something people without Crohn's (or UC) worry about! Lucky us!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05
--1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone
--tried Prochymal in Phase III study (can't wait til it's approved!)
--waiting to start Tysabri
--single mom to 10-year-old girl


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/20/2008 9:13 PM (GMT -7)   
It's senior day on the baseball field at my youngest son's college. This is where they call out and introduce all the senior's parents on the field and you are presented with usually a flower and some small token of appreciation (college sweatshirt) by your child. Well...of course about 20 minutes to the designated time, it hits. Now this 4 year university only has one bathroom stall for women in the whole baseball, softball and tennis complex. So I jump in the car, ride over numerous speed bumps, pass the guard gate, turn in my visitors pass and proceed to rush through traffic lights to get to the nearest gas station. No idea how I exercised this much control at this point! I go in, do my business and rush back to the field. They actually delayed calling my son and "his parents" on the field until the last announcement. As I'm pulling up in the baseball parking lot I can see we are about to get called out. I pull up next to the dugout "not a parking space" slam my car in gear, toss my water bottle to my daughter in the passenger seat and tell her to park the car. I run out on the field exactly at the moment our names are called, the head coach presents me with the sweatshirt, shakes my hand and says "Gotta Love It"....He had no idea. Needless to say, my son leans in and wants to know where I am since he couldn't talk with his father and I'm getting the evil eye from my husband. All ends well with no damage done except as soon as I walk off the field of course, you guessed it....gotta go again! Whew, I should have gotten the district tourney trophy for that amount of effort!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


sasha1
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 3/21/2008 7:59 AM (GMT -7)   
i had just finished my remicade and called my husband to come get me when i had to go the bathroom was about ten feet from me when i had my hand on the door knob when it all came out luckly i was the only patient in the infusion room at the time except for my nurse so i go in the bathroom stick my head out and ask my nurse if she had a bag called my husband to bring me some clothes now i dont go anywhere without a depend on
sasha1

Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 3/21/2008 9:59 AM (GMT -7)   
well, I was on a trip for 10 days to Italy with my boyfriend.  Packed all my meds, careful about how much I ate and drank, and stopped at every bathroom I could to make sure I was all set to go (pardon the pun)...
 
anyway, we get to the Imperial forum, where there's no bathroom.  When I realized there was no bathroom, I panicked, and it mad me flare.  I didn't have anywhere to go and it just happened.  I just stood there and cried.  My poor b/f had to lower me into a ditch so I could finish and then he had to run all the way to a snack stand to get napkins and a bottled water to help me clean up.  I was so humiliated.  I then had to wear my pooped pants for another half hour during the bus ride back in the 90 degree heat.  I wore dark pants the rest of the trip, needless to say.  Now its just a bad memory of another day with crohns, but that day I found out what a great b/f I had who could help me through it.  I am so thankful, despite everything!  :)
Diagnosed with UC 8 years ago/Diagnosed with Crohn's 6/26/2007
Canasa / 1 per day
Azathioprine / 100 MG Day
Colazal/ 9 per day
Entocort/ 3 per day
Humira
 
Tried:
Asacol / 12 per day
Levaquin 1 per day
Flogyl 1 per day
Rowasa / 1 per day
Prednizone / 40 MG Day( finished taper!!!) 
 


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 3/21/2008 10:21 AM (GMT -7)   
Well, my least favorite came one day when I ran to the bank. Was in the drive-through window, one car in front at the teller, two or three behind and the urge hit. There was no way to back up or peel off and go around, and the big explosion happened just as the car in front pulled out. I pulled up to the window and handed my deposit into the tray and noticed that there was a morning paper lying on the counter behind the tellers and i pushed the call button and asked if they ajd finished with it. She said yes and I asked if I could have it and she handed it through the tray and I raised up and scooted it under me to save the car seat. Got a couple of funny looks, then got my deposit slip and headed home in a hurry, saved by the paper.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/21/2008 7:26 PM (GMT -7)   
Mike B-

I have always wondered about that situation. So far I've been lucky at the bank!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 3/22/2008 3:44 PM (GMT -7)   
I think we are all tremendously strong people to have gone through these situations and are still able to laugh and share them!
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