Perianal Crohn's

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Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 3/23/2008 9:31 AM (GMT -7)   
Most of my crohn's problems occur in the rectal anal  area. ughhhh. I have a problem with itching evry time I have a BM. I make sure the area is clean and use a sitz bath after every bm. and have to apply anamantle cream. the cream does help. but is  the itching ever going to stop? What else can be done? I have an appt with a Colon Rectal surgeon, doc this coming Friday. Would there be anything  else he could suggest?
Also, I need to start taking a vitamin with iron supplement. Is there any one that is better than another?is constipation just as likely with the multi vitamin supplement? Any ideas or advice is very welcomed. Thanks. Julie

FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 3/23/2008 10:46 AM (GMT -7)   
Hello Pommom,

I too have CD in the rectum. I just had my second peri-rectal abcess and fistula. This disease is barrels of fun!! This time has been much easier because I knew what to expect. I jump in the tub after each toilet use and rinse using the shower spray (a real God-send!). I apply Balmex and then tuck guaze pads between my cheeks. The guaze absorbs nasty stuff and the Balmex protects my skin from all the nasty stuff.

Sounds like you may have fissures. I haven't had any but it sounds like you are doing the right things. Keep it clean anus the cream. This will heal more quickly. Maybe someone else will post who has had fissures.

Hang in there!

Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 3/23/2008 11:07 AM (GMT -7)   
yes, i did have a fissure. i was thinking it is about healed. the thing that helped the most for the fissure was the nitroglycerin paste, tho it does give me a headache. thanks for your reply. Julie pommom

Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 3/23/2008 11:13 AM (GMT -7)   
i forgot to ask,, what is Balmex? and what section of the store do I find it? Thanks.

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 3/23/2008 11:29 AM (GMT -7)   
You may want to try some of the rectal enemas such as Rowasa Enema, Cortenema or better yet, Cortifoam. The enema's are retention enemas that you hold in all night. The foam is one that can be applied both in the morning and at night. Also, you might want to consider taking a fiber supplement daily to help with the constipation. Sorry for all your suffering. I hope you find relief soon.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 3/23/2008 12:13 PM (GMT -7)   
Hi Pommom,

Balmex is a diaper rash ointment. You buy it in the baby supply isle of your grocery store. Yes! You too can be a baby again! ;-) It works well. I used to get skin yeast infections because of all the yucky wetness, but Balmex protects your skin. There are other brands that are cheaper, but some smell like fish and are too oily -- they don't rinse off easily. Balmex washes off and smells OK.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/23/2008 1:35 PM (GMT -7)   
I use extra virgine olive oil on my anal crohns skin tags, it helps heal fissures because it's a antifungal, antibacterial, antiviral and it has pain reliever affect.

It's a great skin moisturizer, I use it everyday from head to toe, my hair and scalp are very healthy and I eat EVOO everyday too.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


sasha1
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 3/25/2008 1:24 PM (GMT -7)   
i have rectovaginal fitulas with abcesses in both butt cheecks with alot of anul ittichin my dr gives me proctofoam which helps realy well

sasha1

ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 3/25/2008 3:23 PM (GMT -7)   

Hi Julie-

i also have perianal crohns and I used the same cream you did for my fissures. It did work well. For the itching, I use Rosebud Salve from Sephora. It is kind of like petroleum jelly but it smells like roses and it feels good.

Hope you're feeling better soon. :-)


37 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (29 surgeries including abscess I & D, exploratory surgeries, 4 C-ton drains and 1 fistula plug) Have also had several self bursting abscesses.
1st Remicade infusion 6/5/07-still taking it.  Praying I'll get better soon so we can have a baby.
Ginger :)


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 3/25/2008 4:25 PM (GMT -7)   
I use Calmoseptine ointment when my bum is really bugging me. It burns a little at first, but after that, it feels good. I get it at the pharmacy at Walgreens, I guess it's also used for ostomies and it is OTC. Anamantle doesn't give me any relief. Please write back after you see the surgeon. I am curious what he has to say. I hope you all feel better soon.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica started 1/17/08


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 3/25/2008 9:01 PM (GMT -7)   
Thanks for the reminder about Calmoseptine. I havent used it in awhile.And had forgotten about it. It does work good. I will post when I get back from the colon/rectal surgeon. Take Care....Pommom/ Julie

Bonwilsky
Regular Member


Date Joined Dec 2006
Total Posts : 22
   Posted 3/26/2008 3:18 PM (GMT -7)   
What do the enemas do for you? 
 
My husband has at least three fistulas down there and one of them has a seton.  His bathroom routine goes much like the previous poster's: after going he jumps into the shower and uses the hand-held shower head to wash off then he gets out and puts a 4x4 piece of gauze in between his butt cheeks.  I'll mention the Balmex to him.
Bonnie
Wife to 26 y/o diagnosed with Crohn's in August 2006
Possible perianal fistula presence for 2 or more years
Taking Remicade but switching to Humira 


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 3/28/2008 3:06 PM (GMT -7)   
Update,,I saw the colon rectal surgeon today.He said he wouldnt even consider a surgery for the fissure.with of the constant diarrhea.The recovery would be really bad.The nitro paste does help the fissure. so he said I was very lucky to have found something that would help some.Since I have used other meds and they didnt help.The nitro can be safely used for long term. There really wasnt anything else he could suggest. since I have tried so many things.This was a colon rectal doctor in Charlotte, N.C.He basically said,,God, Help me,,if I have to have surgery on the 1/3 intestines I have left. That I am a high risk, and he wouldnt even do surgery. He would send me to MUSC at Charleston, S.C. I have spent a Lot of time there, already.  As for the anal itching,keep it clean, dry and slightly acidic. Use Calmoseptine Cream. Avoid excessive use of soap in that area. cause it changes the normal acidity of the skin. Use Cetaphil cleanser.Items in the diet that may cause itching are coffee,tea, sodas,choclate, tomato products, citrus, beer,nuts, popcorn,and milk. And Stress can contribute to anal itching.
 
 
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.
 
pommom

ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 3/28/2008 5:40 PM (GMT -7)   
 The nitro paste was the only thing that helped my fissure-it was 2 inches long and very deep! Do you do lots of sitz baths, Julie? That always helps me,too (in adition to my miracle rosebud salve).....
Sorry you may have to have surgery again. My thoughts and prayers are with you. :-)
37 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (29 surgeries including abscess I & D, exploratory surgeries, 4 C-ton drains and 1 fistula plug) Have also had several self bursting abscesses.
1st Remicade infusion 6/5/07-still taking it.  Praying I'll get better soon so we can have a baby.
Ginger :)


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 3/28/2008 6:22 PM (GMT -7)   
Hi  All
Ginger, where do you find the rosebud salve? I would give it a try, too.I have been very lucky to not have had a surgery in the last 7 years. So maybe my doctor and I are doing something right. i try not to dwell on it. I would be so depressed if I did. The daily struggles are stressful enough.  Have a super weekend. Julie
 
 
 
 
 
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 3/29/2008 7:57 AM (GMT -7)   
Julie-
Rosebud Salve is found at Spehora.
Best,
Ginger
37 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (29 surgeries including abscess I & D, exploratory surgeries, 4 C-ton drains and 1 fistula plug) Have also had several self bursting abscesses.
1st Remicade infusion 6/5/07-still taking it.  Praying I'll get better soon so we can have a baby.
Ginger :)


cd2
Regular Member


Date Joined Feb 2003
Total Posts : 43
   Posted 4/3/2008 12:14 AM (GMT -7)   
I too have perianal/rectal crohns.  One of my first symptoms of Crohns was rectal Crohns that was misdiagnosed as hemorrhoids, resulting in a horrible surgery that left skin tags and a narrow rectum due to tissue resection.
 
I too have been helped by the steroid foams.  They are pretty easy to insert and you do it before bedtime. I have used both Rowasa and Cortifoam and cant remember if one worked better than the other.  I do remember one of them had a really high co=pay.  Also, flagyl or another antibiotic may be necessary/helpful in some cases.  I was told that this may have helped and I could have possibly avoided surgery this way.
 
I have also become a speedy butt cleaner with sitz bath, quick shower or even baby wipes for sensitive bums.  Another cream similar to the balmex is Dr. Budreaux's Butt Paste (comes in a yellow box) which was one of Oprah's favorite things.  Keeps the area clean and prevents moisture from iritating the skin
 
I would kill for an easily wipable butt!  Let us know how stuff works, I find this one of the most irritating parts of this disease.  Good Luck, wishing you a cool and calm bum.

tilli
Regular Member


Date Joined May 2007
Total Posts : 21
   Posted 4/3/2008 10:33 AM (GMT -7)   

Hi, I have had 2 perianal abcesses removed in the last 3yrs and before surgery i tried many of the lotions & potions available from the pharmacy, slapped them on the area thickly and covered with gauze as a couple of other posts have mentioned. I was visited by the home nurse after my second surgery and she advised me to use something called a " CAVILON STICK" it is basically a swab that you wipe over the affected area and it coats that area with a very thin protective film that acts as a waterproof barrier to all the nasty infections etc that can occur during the healing process. It works wonders as i was very concious of infection occuring whenever i had a BM before i used Cavilon sticks but since using them i don't have to worry about the endless cleaning routine that would usually take place.

Hope this helps

Tilli


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/3/2008 10:34 AM (GMT -7)   
cd2 :)

Your experiance sounds similar to my perianal crohns skin tag ordeal...

Mine too (CD) presented itself first with perianal crohns skin tags that were mistaken for hemmies, I had mine banded (they were suppose to shrink up and disappear had they been hemmies) because of that banding they've remained large and in a continuous flare my entire 17 yrs now of having this DD.

From those tags the disease moved into my rectom and colon and even found itself in my small intestine for the first couple of yrs all at the same time, it cleared up in the small intestine, but has remained constant in the colon (crohns-colitis) and comes on and off in the rectom (proctitis)...very depressing.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Beachy Mom
New Member


Date Joined Mar 2008
Total Posts : 18
   Posted 4/3/2008 11:47 AM (GMT -7)   
It is so great to finally hear what symptoms other crohnnies have. I also have perianal crohn's. The itching drives me crazy. I have had a fistula repair on the left side of my bum and the scar tissue is always inflamed and itchy as well. I have tried the anamantle cream but it didn't help. Thanks for posting all of your suggestions.

Just "Beachy"


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 5/25/2008 7:49 AM (GMT -7)   
Hi All,
I just wanted to bring this back up so some of the newer members could read it and maybe find some helpful suggestions.
 
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more. 26 meds..
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