High dose of Entocort.

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Asia
Regular Member


Date Joined Aug 2005
Total Posts : 185
   Posted 3/25/2008 1:32 PM (GMT -6)   
I have Ulcerative Colitis, so I hope no one minds that I'm posting here. Seems that people with Crohn's are given Entocort more than people with UC.

I'm looking for anyone that is or has been on a high dose of Entocort (more than 3 pills;9mg).
What were your side effects for a large dose?
How was your taper? Any problems coming off?

I've been on 27mg since February. Side effects included: acne, moonface, leg cramps in mornings, even more easily bruised
I'm currently tapering. I went down to 21mg last week. And I'm now starting 15mg.
I've noticed a lot of headaches. Leg cramps are now moving to other parts of my body. I'm SO sore. Everywhere. Also, as of a couple of days ago my teeth seem to be realllly sensitive. I've had no problems before.

I'd like to know if anyone else has experiences.
Diagnosed with UC in August 2005. 
Suffered for my whole life before being diagnosed. 
Told to "Eat more fibre." 
 
Currently on:

Salofalk 1500mg x 4/day
Entocort
6mg x 1/day
Entocort increased to:
9mg x 3/day as of 2.14.08


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 3/25/2008 1:42 PM (GMT -6)   
Asia - that is such a high dose!  I've been on Entocort on and off during the last 3 years, but never more than 9 mg/day.  What did your doctor tell you about the high dosage?  I read the package insert when I first took Entocort and didn't recall any mention of a dose higher than 9 mg.  Have you checked your blood pressure?  I was hypertensive on 3 mg/day.

50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Currently on Humira and Entocort.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 3/25/2008 1:45 PM (GMT -6)   
Yeah Asia that doesn't sound right to me either. The packaging and my doc told me the max dose was 9 mg. too. At 9 mg I had little to no side effects. I liked it more than Pred thats for sure.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 185
   Posted 3/25/2008 2:05 PM (GMT -6)   
I'm getting the impression that the high dose is odd, I can only find people on a max dose of 9mg.
I was on 6mg for a year and a half. After a recent colonoscopy I started to really flare--so that's why he upped it.
I wasn't supposed to be on the high dose for long, but he was MIA and so was my GP. I was left with no tapering instructions so I had to wait a month and a half for my appointment.

I had to many problems on prednisone which is why I use Entocort. And I agree, I LOVE Entocort. On 6mg, I have no side effects at all.

I haven't checked my blood pressure since starting the high dose. What is hypertensive?
Diagnosed with UC in August 2005. 
Suffered for my whole life before being diagnosed. 
Told to "Eat more fibre." 
 
Currently on:

Salofalk 1500mg x 4/day
Entocort
6mg x 1/day
Entocort increased to:
9mg x 3/day as of 2.14.08


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1882
   Posted 3/25/2008 5:29 PM (GMT -6)   

The following from the manufacturer provides detailed info about Entocort. It says that a clinical trial did not show any benefit in increasing from 9 mg to 15 mg, so it seems unlikely that 27 mg would be any better than 9 mg.

According to one article I read, 3 mg Entocort is strong, like 15 mg of prednisone, but the dose is targeted where you need it so it causes fewer side effects than pred.

http://www.astrazeneca.ca/documents/ProductPortfolio/ENTOCORT%20Capsules_PM_en.pdf

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