2 Months Gluten FREE

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Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 3/25/2008 3:57 PM (GMT -7)   
I have been Gluten free 2 months now and I DO feel better. To re-cap I did test negative for Celiac but have read that you can be Gluten intolerant . I have been really good and have noticed no pain in my ileum where I know I have one of my many strictures . I am making really nice formed poop twice a day. I have gained 3 pounds. My stomach NEVER gets bloated after I eat anymore.

I also try to buy organic when possible like my eggs, milk and veggies.

Sugarmarie yeah yeah yeah
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 3/25/2008 4:07 PM (GMT -7)   
Good for you Sugarmarie! You are an inspiration :) I also tested negative for celiac, but my mom has it...and I do have Crohns. I would like to go GF, but am having a hard time of it! All the best...

Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 3/25/2008 4:13 PM (GMT -7)   
I've been eating gluten free for 4 years. I also tested negative for celiac, however I was already eating a gluten free diet for a year. There was a HUGE difference in my health as well. I just tell people I'm celiac so they don't think it's okay to give me gluten. =)

Good job!
Diagnosed with UC in August 2005. 
Suffered for my whole life before being diagnosed. 
Told to "Eat more fibre." 
 
Currently on:

Salofalk 1500mg x 4/day
Entocort
6mg x 1/day
Entocort increased to:
9mg x 3/day as of 2.14.08


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/25/2008 5:33 PM (GMT -7)   
i've been eating gluten free for over a year now. it is great. i find the less grains and sugars and starches i eat the better i am so i hardly touch the stuff any more.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/25/2008 7:09 PM (GMT -7)   
right on! I am 2 1/2 months and am so much better. I spent the last 3 days in Portland OR and went to several gluten-free restaurants, a a bakery, and Bob's Red Mill Store. I brought home a gorgeous loaf of bread and two cinnamon rolls, yum! Melissa, it isn't that tough. just think of it as bad stuff that hurts you and who would want to eat it?
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/25/2008 7:14 PM (GMT -7)   
After reading all these posts I'm going to go gluten free! I just figured that if you didn't test positive for celiac you didn't have to worry, but after reading these posts I've "seen the light."

Great job Sugarmarie and thanx to all who posted replies!
turboemma.blogspot.com/


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 3/25/2008 7:25 PM (GMT -7)   
I have started to try and cut out gluten also in my diet. I've started with brown rice pasta and its delicious! The hardest part for me is going to be the bread!!! I was wondering what breads you guys eat that taste decent? I haven't found a good bakery yet. Years ago I did the SCD diet for a strict 6 months and I did feel really good, but then just got lazy and started to cheat again! Then I used alot of almond flour in my recipes but didn't care for it. Any suggestions or recipes would be great! Thanks

40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Feb/2006
meds: pentasa 500mg 2 x 3day,probiotic,fibre supplement,mult-vit
Surgery-Feb11/08 (resection)
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/25/2008 7:58 PM (GMT -7)   
bread and baked goods were hard for me, but after doing 4 months of no grains, sugar, or starchy foods i no longer desire them. when i have bread i use the ezekiel bread as it is sprouted and make toast out of it. i store it in the freezer as i hardly have toast. once in a rare blue moon when i a pinch i'll eat a sandwich at a deli or something. as i make virtually my own food, i just dont eat grains much. i just dont crave them any more. it is odd.

wholefoods has a whole section of gluten free stuff. oats arent completely gluten free, but they are close. spelt doesnt have a lot of gluten if i remember correctly. there are only 4 non-gluten grains: amarinth, buckwheat, quinoa, and sorry but i forget the 4th. try cooking with this stuff. quinoa is a good substitute for rice. tastes great with black beans, onion, bell pepper, tomato, and salsa. i've found through experience that buckwheat aint the best to cook with. the scd recommends nut flours. they dont like to rise so the only success i've had with them is with cookies.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 3/25/2008 8:23 PM (GMT -7)   
From what I have read us folks with digestive problems can have damaged Villi usually from disease ,years of taking medication cause the inflammation that over time damage the Villi. Once the Villi is damaged it does not absorb nutrients or digest Gluten as well those undigested foods cause inflammation and aggravate the delicate lining of the intestines . This made sense to me since I have an inflammatory type of Crohns .
Inflammation turns into Stricture and other problems .

I found Gluten free bread at my local health food store in the refrigerator section its made from Millet. I also like the hot brown rice cereal its kinda like Cream of Wheat but its Cream of brown rice I make it with milk and sweeten with Agave. Walmart even had Gluten free bacon for those of you who like bacon. I make my own hash browns in the oven then freeze a huge batch have them ready to go in the morning with scrambled eggs.

OATS have now been listed as a NO NO for gluten free peeps.
ALL types of rice is gluten free ( thank God I am Hispanic and my DH is Japanese so we eat a lot of rice).

go here > http://www.celiac.com/
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

Post Edited (Sugarmarie) : 3/25/2008 9:29:50 PM (GMT-6)


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 3/25/2008 9:49 PM (GMT -7)   
thanks Harry and Sugarmarine! I will definitely check out our Cdn Walmart and health stores and see what they have to offer. I will visit celiac.com and start to research for my grocery list!
40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Feb/2006
meds: pentasa 500mg 2 x 3day,probiotic,fibre supplement,mult-vit
Surgery-Feb11/08 (resection)
 


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 3/25/2008 10:49 PM (GMT -7)   
I would say for me the best gluten free bread you can buy is Ener-G High Fibre or Ener-G Brown Rice Bread. Do not buy the tapioca or yeast free, it's terrible. It's an American company so I assume you can buy it in health food stores in the US. You can buy it in health food stores accross Canada.

It is fresh. If you ever try it, toast it lightly for a sandwich, otherwise it is too dry.

www.ener-g.com
Diagnosed with UC in August 2005. 
Suffered for my whole life before being diagnosed. 
Told to "Eat more fibre." 
 
Currently on:

Salofalk 1500mg x 4/day
Entocort
6mg x 1/day
Entocort increased to:
9mg x 3/day as of 2.14.08


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/26/2008 3:04 AM (GMT -7)   
Can you go gluten free on a low-res diet, or do you have to wait until you're feeling a bit better and able to integrate more fibre into your diet?
Co-Moderator Crohn's Forum.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/26/2008 7:30 AM (GMT -7)   
I see no reason to not try gluten-free when on a low-res. the good news is I was able to go back to eating salads once I stopped gluten!
as for breads, quick breads and cookies are easy and turn out about the same. start with bobs red mill's web site
http://www.bobsredmill.com/
and there are lots of great recipes. you can buy their flours everywhere, I think. most recipes are based on rice flour and add a few others for taste and texture.
I don't like the breads you can buy packaged in stores, I just use rice crackers and corn tortillas for bread. spelt is a wheat, so don't use that as a substitute. I also found a lovely cookbook called Gluten Free Baking by Rebecca Reilly. it is my favorite.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 3/28/2008 9:19 AM (GMT -7)   
I've been Gluten free for years. Fortunately, they opened a health foods store right near my home just before I was diagnosed with CD (Celiac and Crohn's, -both "CD." The irony.) The store has lots of gluten free products including breads and pastas, cereals, etc. When I went Gluten free, I noticed an improvement within days (had the runs chronically prior to going gluten-free.) I was tested and had a "positive" for damaged villi. My mom, who had a Crohn's re-section many years ago, went gluten free as well about a year after I did and also saw improvement in her digestive and overall health. The Crohn's for me is relatively new. I hate to think how sick I'd be right now if I weren't already Gluten free prior to being diagnosed with Crohn's.
Type I Diabetes- 28 yrs. (MiniMed Insulin Pump)
Celiac Disease- 6 yrs.
Crohn's Disease- 1+ year (Nov. '06)


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 3/28/2008 1:39 PM (GMT -7)   
I am thrilled to hear all the good results from Gluten free. I know some people think its too hard but it really is not. The hardest thing is the bread but once you find a good gluten free bread the rest is easy.
I figured this was something I HAD to try. I could not go wrong by trying it and what if it helped.
sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

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