HUMAN FECAL INFUSION

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Crohny93
Regular Member


Date Joined Mar 2008
Total Posts : 118
   Posted 3/25/2008 10:40 PM (GMT -7)   
Hey guys,
I've been doing a lot of reading about this particular procedure (human fecal infusion) and there are so many amazing results. Has anybody had this done, ? From what I understand, they perform in Australia, but I am very interested in having it done, and cannot travel so far. Does anyone know of any clinics and/or facilities that perform this in the US? Any information, would be greatly appreciated. Thanks so much:)

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/26/2008 2:12 AM (GMT -7)   
WHAT???? your kidding right?
randynoguts 



     http://www.geocities.com/randynogutsweb/


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 3/26/2008 2:37 AM (GMT -7)   
That sounds totally gross!!!!!!!!!!!!!!!!!!!!
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


GeeBee
Regular Member


Date Joined Oct 2006
Total Posts : 24
   Posted 3/26/2008 3:03 AM (GMT -7)   
Hi Angie
I am from New Zealand and a friend of mine is undergoing this treatment. I have researched it and it seems they have had some amazing results. I am actually having a consultation tomorrow to see if I can be accepted for this treatment too.

The treatment is totally naturally, fully screened and the results are pretty convincing so what the heck, what have I got to lose?

Here is a link to the hospital doing this research and also a link to Professor Tom Borody who is leading the research:

http://www.cdd.com.au/html/hospital/clinicalstaff/borody.html
http://www.cdd.com.au

Good luck in finding someone to help in the States and I'll let you know how I go.
 
[*I just activated the URL - C2]

Post Edited By Moderator (CrohnieToo) : 3/27/2008 11:44:57 PM (GMT-6)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/26/2008 3:11 AM (GMT -7)   
But what is it? How does it work? And what's the rationale behind it?

Ivy, in Australia, and intrigued.
Co-Moderator Crohn's Forum.


nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 3/26/2008 3:47 AM (GMT -7)   
There are only a few docs here in the US that perform it. It is usually a treatment for c.difficile that will not go away with conventional treatments. The theory is that they test your donor for all types of diseases (from their stool). You take 2 weeks of vanco to clean out your bowel and then you infuse your donors stool via enema and replace the microbes in your system with theirs. Dr. Borody is the leader in this. He is also a pioneer in the triple antibiotic treatment for crohns (MAP). I wasn't aware that the stool transplant was a cure for crohn's only c.dif though. It has a99% cure rate for c.diff---don't know about crohns though.

Chris

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/26/2008 5:15 AM (GMT -7)   

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 3/26/2008 5:16 AM (GMT -7)   
I have never heard of this but am interested in learning more. I myself wouldn't go through it just b/c I am so skeptical of things like that but it sounds really interesting. I think if I would be more apt to go to the Mayo Clinic to see what they have to say before I did anything that drastic...it sounds scary to me! I hope it works for y'all! Let us know =) I'll be thinking about ya ;)
turboemma.blogspot.com/


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 3/26/2008 8:16 AM (GMT -7)   
i've heard of this.   
 
Does anyone know a) the success rate in curing and b) what us doctors perform this?   
 
 
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 3/26/2008 9:18 AM (GMT -7)   
Dr. Brandt at Montifiore in Bronx does this but only for c.difficile. I don't know anyone in the US who does this for crohn's disease thoug.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 3/26/2008 12:07 PM (GMT -7)   

The following info, talking about its use in UC, is from http://en.wikipedia.org/wiki/Fecal_bacteriotherapy  

"While its effects on ulcerative colitis have not yet been adequately researched, small case series suggest it has positive effects. A recent article by Borody et al which details 6 cases of severe chronic ulcerative colitis treated using Fecal bacteriotherapy suggests that the procedure may be extremely successful in these cases as well. Complete reversal of symptoms was achieved in all patients by 4 months post-HPI, by which time all other UC medications had been ceased. At 1 to 13 years post-HPI and without any UC medication, there was no clinical, colonoscopic, or histologic evidence of UC in any patient[8]. The Sydney group also reports a case of presumed sclerosing cholangitis, a disease frequently associated with IBD, which recovered fully after the treatment..."


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/26/2008 8:09 PM (GMT -7)   
I've heard about this before.

I have to ask this....so how much would I pay for getting someone else's poop! And would insurance actually pay for this! I would like to see the diagnostic procedure code on that one! If all else fails and it is successful, I might and I mean I might, consider it. Do let us know how this works out for any of you that try it.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/26/2008 8:28 PM (GMT -7)   
dude, i think i'll just stick to what i did and detox myself for 4 months with no grains or sugars and reseed with probiotics. i can handle getting a blood transfusion or even an organ, but transfusing a bowel movement is where i have to draw the line. perhaps it is a mental thing for me. fantastic they are getting results with this. good to see something going on that is not drug related. best of luck for those who are doing this.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 3/26/2008 8:37 PM (GMT -7)   
I like your style Harry.The way you express yourself makes sense.

One guy on my IBS forum got WORST with fecal transfusion.I'm done with that.
To me when someone get worst it is a red flag.
-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 3/27/2008 6:59 AM (GMT -7)   
Spas,

What do you mean?  What happened to the guy? 
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 3/27/2008 8:28 AM (GMT -7)   
He did it for IBS and got his bloating worst apparently.Sorry i don't have much detail.


-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/27/2008 10:39 AM (GMT -7)   
They talked about this a LOT on the UC forum. Run a search there.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/27/2008 10:43 AM (GMT -7)   
Here is one from UC
http://www.healingwell.com/community/default.aspx?f=38&m=1068548&p=1 
 
Ill edit this when I find the second.
 
Edit: Here is another one that links within that to two more
 
Personally - I would have to be a lot more desperate before I got to this point.  Ive been in remission for sometime though so my perspective might be different if I were flaring.


26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 

Post Edited (FitzyK23) : 3/27/2008 11:59:57 AM (GMT-6)


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 3/27/2008 10:48 AM (GMT -7)   
My crohnie daughter had a friend online who tried this with her infant's pooh. Her rationale was that it has lots less of the bad flora and just the good guys. She said she had a great improvement in her symptoms then she disappeared from the forum after a few months. Don't know if she got all better and didn't want to post anymore or if she was just a busy new mommy. Anyway, she used baby pooh... Who knew that stuff could be good for something? LOL!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 3/27/2008 1:36 PM (GMT -7)   
OK, I'm not doubting there are good results......I just want to know WHO sits around and THINKS UP THIS STUFF???

I just can't imagine a situation where I would be sitting around, most likely on the potty, and then it strikes me - "I GOT IT, let's take pooh out of one person and put it into someone else".

Again, if it works, great. I just don't have the imagination these researchers do I guess.
The funny story of my first abscess

The paper about the apheresis study

******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/27/2008 5:43 PM (GMT -7)   
i dont know who thinks this kind of stuff up, but i'll tell, in college i studied engineering and most of my epiphanies were when i was on the can. irony?
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/27/2008 6:52 PM (GMT -7)   
Not at all ironic Harry...did you ever see the episode of "Scrubs" where the janitor installs a throne on the roof and attempts to keep it from his colleagues? Everyone finds out about it and each person has there own "epiphanany" while on the roof. What I want to know is do you still have them now? I would imagine you are not alone in this group on this one considering all the time we spend in there on any given day!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 3/27/2008 7:09 PM (GMT -7)   
UKpup,
 
Although it definitely seems bizarre at first glance, this concept is well-founded.  In trying to understand IBD, researchers have been doing similar testing in mice/rats for years now (putting poo from a diseased mouse into a healthy one to see what happens, and vice versa, and also altering the mice genes and then doing the same tests again).  These tests have yielded results consistent with the IBD model of the disease being a combination of genetics and the makeup of gut flora.  So it's not too surprising to see that some maverick doctors out there are trying similar experiments on people.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 3/27/2008 10:58 PM (GMT -7)   
So putting poo from a disease mouse into a healthy one gave the healthy one the disease as well as vice versa??

That might make this research even MORE interesting! I guess raising and showing dogs for 30 years gave me a different perspective on poo.

However, the part I'm really leery about is that its coming from another person. I've got enough problems of my own, I don't want someone elses. Some things they don't know to test for yet (think HIV years ago in the blood supply) and if no symptoms have appeared the person is healthy, right? Not necessarily.

I've been intrigued by the research being done in Israel utilizing biopsies from our own gut to make a personalized autologus vaccine for our own Crohn's.

Years ago my hubby broke out in boils - all over - they thought at first diabetes, then they tucked him into isolation and "suited up" before they would go anywhere near him. There were way too many to lance. They ended up bringing some doctors down from Mass General who took samples from the boils, went back to Boston, made a vaccine, came back and gave him some and the boils cleared up and he's never had another.
 
When a particular kennel was having severe conception problems of long duration it was suggested that samples be taken from each "female dog" *sigh* (since I can't use proper terminology here) and an autogenous bacterin produced to treat them with.

They've been doing this for years in cattle for mastitis.

Hey, they laughed at and derided the guy who discovered H. pylori, remember?


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 3/28/2008 12:01:15 AM (GMT-6)


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 3/28/2008 8:49 AM (GMT -7)   
I would absolutely be willing to try this procedure for my CD if the research indicates such a high success rate of total remission. Like Jeannie 143's friend who used her infant baby's poo, I would absolutely use the poo from an infant to be infused into me so long as it's been tested and it's safe. And if it's proven to work heck yea!!

"Difficult things take a long time,
impossible things a little longer. " ~Author Unknown
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 2x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
 

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