vaginal fistula surgery

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oddiggy
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 3/27/2008 9:42 AM (GMT -6)   
Has anyone had surgery for a vaginal fistula due to crohns?  If so I would appreciate any input you may have - thanks - my dr recommends I have the surgery but I'm very nervous about it

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 3/27/2008 9:39 PM (GMT -6)   
Hello Oddiggy.

Welcome to the Forum! I don't have a vaginal fistula (just two peri-rectals), but I have read a number of posts from people who do. Maybe they will chime in. I suggest you search back posts for fistulas.

I do know that they can be more difficult to treat in CD people -- but certainly not impossible! You may want to consult with a surgeon who knows about them and CD. It just may take an experienced colorectal and/or OBGYN surgeon to give you the best success. Consulting with several Drs may give you more peace of mind. Let us know how it goes with you!!

Beachy Mom
New Member


Date Joined Mar 2008
Total Posts : 18
   Posted 3/27/2008 10:40 PM (GMT -6)   
Hi Oddiggy-
I was diagnosed with Crohn's Disease and had a vaginal fistula all within 2 months. I had a seton put in then they took it out to see if the fistula would heal, it didn't so they put the seton back in then took it back out in about 3 months. They started me on Remicade, which made the fistula smaller but it still didn't heal and continued to drain. Last July I had surgery to repair the fistula. My surgery was not easy. They had to do a skin graft in addition to the fistula repair to cover the mucosal tissue they pulled down. I did not fully heal until September. I now am very happy that the surgery was successful. I don't miss the drainage at all. I notice now though when I have a Crohn's flare up that I have discomfort and itching on the scar tissue at the surgery site. When they first advised me that I needed to have surgery I refused and put it off for about a year. You have to be ready to do it.
Hope all goes well for you-
Just "Beachy"

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