Help! I've been diagnosed with high grade dysplasia of the colon

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pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 3/29/2008 2:16 PM (GMT -7)   
Hi!  I have crohn's disease, plus autoimmune hepatitis, and now I have had a colon polyp that shows "high grade dysplasia", which I understand to be a "pre-cancerous" stage of colon cancer.  On Thursday, April 4, I will be getting a "special" colonoscopy that involves blue dye that will show if I have any other interesting areas to biopsy.  Ha, Ha, three major diseases.  what a party! 
Does anyone else have this?  I know colon cancer chances increase with crohn's, and I am immunosuppressed to treat the hepatitis, also.  How do I cope with all of this at once? sad mad confused

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/29/2008 2:43 PM (GMT -7)   
Hi Pix Welcome to Healing Well glad you are here with us . Hope your test goes good. I know at times it is hard to cope and somehow we manage to threw things. I guess it is by getting one thing at a time done. Hoping that the scope finds things early for you that is one good thing about crohn's disease we get checked often. Hoping someone who has had some problems with pulps will be helpful. I am having some eye problems right now and it gets me down some but I find reading and being a part of HW helps.It helps when there is some anxiety to Keep in touch. lol gail

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/29/2008 3:15 PM (GMT -7)   
Hi and welcome, I do not have dysplasia or hep, and I am sorry that I do not have a whole lot of info about either one of them, but I do know about crohns. ga is right it is about one step at a time and getting the info you need by doing more tests so you can make a treatment plan. How long ago were you dx? It sounds pretty new... Please ask all the questions you can think of... We will try to answer all that we can. In all honesty I know this is a hard way to look at if it, If you were going to get cancer this is the best time to nail it...before it progresses to any stage... Please any questions that you want, this has to be so incredibly difficult for you.
Hugs,
Navy
Crohn's Co-moderator

We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
____________________________________
All suggestions/options/opinions are caveated with please consult with your local health care provider...


pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 3/29/2008 4:27 PM (GMT -7)   
Thanks, folks. Boy MMMNAVY and gachrons, you sure have had alot of posts!!!!!!! I was diagnosed six months ago, and I am being checked again after only 6 months to see if there are any more areas to biopsy. You are right, that if I didn't get alot of colonoscopies, it might not have been found, but the reason that I had the colonoscopy 6 months ago was rectal bleeding (which turned out to be from hemorrhoids!!!) So now, am I saying "thank goodness for hemorrhoids?" Life sure is strange.

Yes, I am scared about having another illness, and I am very good at being a "brave fighter". I am so afraid of burning out my family and friends though, who are so supportive. The sicker I get, the more I need support, and the more afraid I am that I won't be able to count on it.

How do you do it?

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/29/2008 5:57 PM (GMT -7)   
Hi again I know how you feel about family and friends sometimes I feel I have burned out help too especially with all the trips for medical care the more I can do for myself the better I feel and my teen has been a life saver with all the help and I worry that sometimes I have been a responsibility for someone who is young. Your right about being thankful for things that we never thought would mean so much .I was diagnosed a year ago in Jan. and it has been quite the year or so. I got threw it by being here and some help from friends and my teen. You sound like you have some support at home. The VON was helpful in giving home care when I needed it.My DR. also was very hepful .I do post alot hoping it helps some and keeping in touch with friends that have come to mean lots to me not to mention the great humour that is wonderful at times. We all get scared at times and it helps to talk about it. We are here for you and don't feel alone. lol gail

pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 3/30/2008 9:15 AM (GMT -7)   
Hi, ga chrons!
thanks for your post, so much. Actually, I live alone, and, although I do have a son and sister, they don't live with me. What is the VON? My doctors are good, and I feel supported by them. The hepatitis receptionist even recognizes my voice!! The Forum is great, as everybody understands some of the icky parts of chronic illness, especially here in the crohn's forum. How do you feel about people who try to "cheer you up" when you are feeling bad?
Pix, the asker of many questions

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 3/30/2008 9:39 AM (GMT -7)   

Hi Pix. I was diagnosed with Crohns last July. I had two sidmoidoscopys, two colonoscopys, CT scan and SBFT within a month. I was told my options were Remicade or surgery. I was scheduled to start Remicade in February but meanwhile was referred to a Crohns specialist. He saw "mild dysplasia" on the pathology report from my second colonoscopy and was very concerned but he questioned it (as I have also read that dysplasia is very hard to diagnose in areas of inflammation). He had the previous slides sent to their lab and rechecked and also did a third colonoscopy using the blue dye and took multiple biopsies. There was no area of dyslasia that showed up but if there had been it would have meant surgery for sure. I am now being referred to a collorectal surgeon to take care of my stricture but was told it would have been a different type of surgery if dyslasia had been present. I am thinking in both our cases that we would be thankful that it is found at this stage.  Take care.


55 yr. old F dx. CD 07/07
Currently on no medication


pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 3/30/2008 12:16 PM (GMT -7)   
Thanks, Bammer! I bet you had Crohns for a while, then, if you already have a stricture. I'm glad that you didn't need surgery. How often do you need follow-up colonoscopies for the dysplasia? Was the dye colonscopy any worse than a reqular one? Are you feeling better since you had the Remicade? What is SBFT?

Welcome to the forum! There are alot of supportive people. I am special, because I belong on the hepatitis forum, too.

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 3/30/2008 3:57 PM (GMT -7)   
I probably have had Crohns for quite some time but never had any symptoms such as diarrhea, abdomianl pain or fatigue. In fact I was considered the "healthy one". I have had bright red blood in the toilet six times in six months which I thought to be hemorrhoids which they did find. They casue me no discomfort. Other than that I did vommit very occasionally with a bowel movement which is why I got tested. (Later looked up vommiting and bowel movement on the internet and it probably means blockage which makes sense).  Plus stools that are getting narrower should have been a signal but guess I never paid that much attention. SBFT is a small bowel follow through which I had to think about  awhile when other people used SBFT on the forum as this is all relatively new to me. Have researched a lot in the last eight months and read this forum almost daily but first time posting after I read your post. I did not take the Remicade as my consultation with the specialist was the day before my infusion was supposed to be. Specialist felt we needed to further test if there actually was dysplasia. If there was, taking any drug which suppresses the immune system would not have been a good thing under the circumstances. Besides this all takes time to get your tests and follow-up appointments and with further reading and thinking I had almost decided against taking Remicade. My reasoning was that I have no symptoms now and it is not going to be effective if the stricture is made up of a lot of scar tissue, I did not want to take the risk of the side effects.  My goal is to have the surgery if necessary and not to be on any medication or at least a "lesser" drug. Time will tell. The colonoscopy using the dye was no different although I did have some mild cramps that night which I've never had with the tests before. Could have been from the test itself.
 
These forums have been great as a person has so many questions that only those who have experienced them can help you make more informed decisions.
 
I am thinking "high grade dysplasia" is nothing to fool around with whicih is why you are having a colonoscopy with the blue dye. When I asked the Crohns specialist why my GI or General Surgeon had not said anything about the diagnosis of dysplasia he said that is what he looks for and my file was marked URGENT. Glad you are not to far away from your test and will hopefully get answers. Keep us posted.
55 yr. old F dx. CD 07/07
Currently on no medication


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/30/2008 4:17 PM (GMT -7)   

Welcome Pix,

I am so sorry we have to meet here but I am glad you found this wonderful support site.  The members are caring and supportive and please ask your questions and hopefully someone will have some insight to share with you. 

You asked how to cope with all that is happening.  You are always welcome to come here and vent about your anxiety, concerns, and your fears and we will  be here to help you out in anyway we can.

Dealing with Crohn's is extremely hard on a bad day and the good days you hope stick around for a long time.

Re your tests, try not to outguess what the results will be.  Try to stay in the moment and don't get stuck in anticipatory anxiety.  I know you cannot ignore the issue completely but your test date is soon, please try to be good to you and know you have joined a group that knows where your coming from and what your going through.
Abundant Blessings
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/30/2008 4:23 PM (GMT -7)   

Bammer

Welcome to HealingWell and I was happy to see you read the forum, I hope you continue to keep posting. There is something comforting about baring your soul to the members of HealingWell and still being able to be anonymous.
Thank you so much for sharing your story as I am sure it was appreciated by Pix.

Again I hope to see you posting your questions or continue to contribute your own experiences with the members.
Respectfully
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 3/30/2008 4:26 PM (GMT -7)   
Hi Pix, Welcome to HW. I am glad you found us there are alot of great ppl here. I have Crohn's, Osteoarthritis and Rheumatoid Arthritis. I hope things go good for your test please keep us posted.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 

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