Biopsy Results-

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Regular Member

Date Joined Sep 2007
Total Posts : 219
   Posted 3/31/2008 9:14 AM (GMT -6)   
My results are in and they are listed as chronic inactive enteritis. I have narrowing in the terminal ileum as well.  I have my capsule endocscopy for this Wed.  I guess this is good since the last colonoscopy showed chronic active inlammation in laminapropria and in crypts.
Does anyone know if this menas the narrowing is scar tissue now since I am not flaring?  Is there any other way to know?  I am going to ask the GI as well when I speak with him.

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 3/31/2008 9:30 AM (GMT -6)   
Well it's most likely scar tissue, if you have no active inflammation, but remember that in Crohns inflammation can be very localized and not show up elsewhere. So the capsule will probably tell you a lot.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 3/31/2008 9:36 AM (GMT -6)   

Good Morning,

I would have to agree with Mike, if it is inactive then it sounds to me like it would be narrowing due to scarring.  Let us know how you make out on Wed.
Take care

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 3/31/2008 2:25 PM (GMT -6)   
Good luck w/the CE! Hopefully you will finally get some answers. But - did you ask how much narrowing? And if they know there is narrowing would it be a wise idea to do the Agile Patency Capsule FIRST??

It would be a heck of a note if it is inflammation causing the narrowing but they had to do surgery to get the CE out 'cause it couldn't pass thru the narrowing. Unless you're ready to get some relief by having the narrowing resected. Then who cares as long as you get RELIEF!!!! Sometimes those resections must as we don't want them are a REAL BLESSING! I know mine was! It gave me a full 20 year remission!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 3/31/2008 2:56 PM (GMT -6)   
CrohnieToo beat me to the punch. One of my GI's told me that 13 out of 100 patients had to have surgery to remove the capsule. Of course, he also said that the surgery resolved their issue since it was narrowing. So the question is, how much narrowing and how narrow is narrow. One of my resections, I was down to less than the width of a pencil. I don't think the capsule would have gone through, but I would have been grateful to have the surgery as an emergency, because I ended up waiting months while the doctors tried multiple medicines to try to reduce the inflamation. Only problem was it was scar tissue. To this day, I can't eat Jello, just too many months of Jello breakfast , lunch and dinner!

Best of luck on Wednesday.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Sep 2007
Total Posts : 219
   Posted 3/31/2008 4:15 PM (GMT -6)   
Yes, I had the patency capsule last week and was wanded (for lack of a better term) the following day to make sure it had passed. I am still worried about the narrowing and the capsule getting stuck and expressed my concern to the PA and she said that if the patency pill passed then so shall the capsule. Sure hope she is correct as I mostly certainly don't want surgery. The narrowing they said in the report "mild narrowing at entrance to the terminal ileum". I was surprised at the lack of descriptive info on the biopsies. I keep telling myself no news is good news. LOL...
Thanks all!!
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