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Regular Member

Date Joined Oct 2007
Total Posts : 208
   Posted 4/1/2008 2:05 PM (GMT -6)   
So had my GI appt Friday, and I'm officially off Entocort and down to my maintenance dose of 2000mg Pentasa/150mg imuran a day. I'm still having symptoms though confused . I have some pain after I eat, pretty much anything, on my URQ. The fatigue and muscle pain, if anything, has gotten worse! He suggested that I may have fibromyalgia. Since there's no definitive test for FS, there's no way I'll know what the fatigue is from...the pain is esp. bad in my hips and mid-back.  I think the biggest problem right now is my incredible fatigue; I have no motivation for doing anything! I just want to get some pep back in my life!
My question is: is this as good as it gets? I thought remission was the absense of symptoms? So frustrating...

Pentasa- 1000mg/2x 1/08; Percocet/Ultram for pain; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?

Veteran Member

Date Joined May 2003
Total Posts : 2480
   Posted 4/1/2008 3:33 PM (GMT -6)   
Pain in joints and hips are totally related to crohns.
Upper pain could signify crohn's higher up in the digestive system, not sure about the right side, unless the pain of crohn's in the TI is shooting upwards (this happens to me often).

As for when this will get better, who knows? I've been sick for 10 years straight. Never been in remission, not even after a 1 ft. resection. The Maker's Diet helps.

Veteran Member

Date Joined Aug 2004
Total Posts : 1169
   Posted 4/1/2008 8:01 PM (GMT -6)   
pains in the joints and hips and lower back are crohns--sorry things do get better
remission just take 1day at a time,I know you have probably heard this too often
but things are better and crohns is a disease that is chronic but liveable too-best
thoughts for pain free days and nights--
crohns -diabetes,highblood preasure,chronic pain, arthritis

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